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European Health Data and Evidence Network

Objective

Europe is generating huge amounts of patient-level information contained in Electronic Health Record (EHR) systems and other types of health databases. These include structured data in the form of diagnoses, medications, laboratory test results, etc., and unstructured data in clinical narratives. The Electronic Health Data in a European Network (EHDEN) Consortium leverages these vast volumes of data to improve future clinical practice and individual patient outcomes by increasing our understanding of disease and treatment pathways. EHDEN will galvanize transparent and reproducible analytics that will generate valid real-world evidence to improve patient care, and enable medical outcomes-based research at an unprecedented scale. The EHDEN Consortium provides the infrastructure and eco-system supporting disease-specific projects in the IMI Big Data for Better Outcomes (BD4BO) programme. The core of EHDEN is the use of a common data model (OMOP-CDM), standardised outcome assessment (ICHOM), and transparent open-source analytics (OHDSI). The objective of the EHDEN consortium is to provide all the necessary services that enable a distributed European data network to perform fast, scalable and highly reproducible research, while respecting privacy regulations, local data provenance and governance. This will include services and tools to perform data standardization, analytical pipelines, tools to share study results, and tools for stakeholder engagement and training. The EHDEN Consortium combines active participation of stakeholder representatives with proven experience in: a) integrating different data types, methods and technologies to utilize diverse clinical datasets; b) platform development to make methods and datasets Findable, Accessible, Interoperable and Reusable (FAIR); and c) engaging a wide variety of stakeholders, including health technology assessment agencies, regulators and patients.

Field of science

  • /natural sciences/computer and information sciences/databases
  • /medical and health sciences/basic medicine/pharmacology and pharmacy/pharmaceutical drug
  • /engineering and technology/electrical engineering, electronic engineering, information engineering/information engineering/telecommunications/telecommunications network/data network
  • /social sciences/sociology/governance
  • /social sciences/sociology/governance/public services
  • /natural sciences/computer and information sciences/data science/big data

Call for proposal

H2020-JTI-IMI2-2017-12-two-stage
See other projects for this call

Funding Scheme

IMI2-RIA - Research and Innovation action

Coordinator

ERASMUS UNIVERSITAIR MEDISCH CENTRUM ROTTERDAM
Address
Dr Molewaterplein 40
3015 GD Rotterdam
Netherlands
Activity type
Higher or Secondary Education Establishments
EU contribution
€ 8 613 875

Participants (21)

SYNAPSE RESEARCH MANAGEMENT PARTNERS SL
Spain
EU contribution
€ 944 375
Address
Calle Velazquez 94 Planta 1
28006 Madrid
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
THE CHANCELLOR, MASTERS AND SCHOLARS OF THE UNIVERSITY OF OXFORD
United Kingdom
EU contribution
€ 656 312,50
Address
Wellington Square University Offices
OX1 2JD Oxford
Activity type
Higher or Secondary Education Establishments
TARTU ULIKOOL
Estonia
EU contribution
€ 309 375
Address
Ulikooli 18
51005 Tartu
Activity type
Higher or Secondary Education Establishments
UNIVERSIDADE DE AVEIRO
Portugal
EU contribution
€ 626 250
Address
Campus Universitário De Santiago
3810-193 Aveiro
Activity type
Higher or Secondary Education Establishments
THE HYVE BV
Netherlands
EU contribution
€ 831 812,50
Address
Arthur Van Schendelstraat 650
3511 MJ Utrecht
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
ODYSSEUS DATA SERVICES SRO
Czechia
EU contribution
€ 731 875
Address
Na Havrance 1508/14, Modrany
143 00 Praha
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
FORUM DES PATIENTS EUROPEENS
Belgium
EU contribution
€ 236 250
Address
Chaussee D Etterbeek 180
BRUSSELS 1040
Activity type
Other
NATIONAL INSTITUTE FOR HEALTH AND CARE EXCELLENCE
United Kingdom
EU contribution
€ 610 000
Address
Level 1A City Tower Piccadilly Plaza
M1 4BT Manchester
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
Stiftelsen WHO Collaborating Centre for International Drug Monitoring
Sweden
EU contribution
€ 203 750
Address
Bredgrand 7
S-75140 Uppsala
Activity type
Research Organisations
INTERNATIONAL CONSORTIUM FOR HEALTHOUTCOMES MEASUREMENT LTD
United Kingdom
EU contribution
€ 341 875
Address
1 Eversholt Street
NW1 2DN London
Activity type
Other
JANSSEN PHARMACEUTICA NV
Belgium
EU contribution
€ 0
Address
Turnhoutseweg 30
2340 Beerse
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
PFIZER LIMITED
United Kingdom
EU contribution
€ 0
Address
Ramsgate Road
CT13 9NJ Sandwich
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
ABBVIE INC
United States
EU contribution
€ 0
Address
North Waukegan Road 1
60064 North Chicago Il
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
INSTITUT DE RECHERCHES INTERNATIONALES SERVIER IRIS
France
EU contribution
€ 0
Address
Rue Carnot 50
92284 Courbevoie
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
SANOFI-AVENTIS RECHERCHE & DEVELOPPEMENT
France
EU contribution
€ 0
Address
Pierre Brossolette 1
91380 Chilly Mazarin
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
BAYER AKTIENGESELLSCHAFT
Germany
EU contribution
€ 0
Address
Kaiser-wilhelm-allee 1
51373 Leverkusen
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
Eli Lilly and Company Limited
United Kingdom
EU contribution
€ 0
Address
Lilly House, Priestley Road
RG24 9NL Basingstoke
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
ASTRAZENECA AB
Sweden
EU contribution
€ 0
Address
Vastra Maelarhamnen
151 85 Sodertaelje
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
NOVARTIS PHARMA AG
Switzerland
EU contribution
€ 0
Address
Lichtstrasse 35
4056 Basel
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
UCB BIOPHARMA SRL
Belgium
EU contribution
€ 0
Address
Allee De La Recherche 60
1070 Bruxelles
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
CELGENE MANAGEMENT SARL
Switzerland
EU contribution
€ 0
Address
Route De Perreux 1
2017 Boudry
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)