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CORDIS

The European Training Network on Informal Care

Deliverables

Report on the usability and effectiveness of advanced positive technology (i.e., the Transformative Storytelling technique - TS technique) for dealing with psychological stress in caregiving

Report on the usability and effectiveness of advanced positive technology ie the Transformative Storytelling technique TS techniquefor dealing with psychological stress in caregiving

Report on the main barriers that might prevent specific categories of caregivers from using available ICT-based solutions

Report on the main barriers that might prevent specific categories of caregivers from using available ICTbased solutions

Report on implementing a supportive intervention for informal caregivers
Report on developing persuasive and adaptive ICT solutions that encourage carers' willingness to care in real time, tailored to contexts

Report on developing persuasive and adaptive ICT solutions that encourage carers willingness to care in real time tailored to contexts

Report on the cultural and related psychosocial issues in willingness and motivations to provide care and their consequences
Report on the feasibility of sharing emotions and needs with social robots in order to reduce emotional stress
Report on policy and business/economic issues related to willingness to provide care and its consequences

Report on policy and businesseconomic issues related to willingness to provide care and its consequences

Report on dyadic issues in willingness to provide care and its consequences
Report on exploring the needs and preferences of different groups of caregivers towards designing eHealth solutions
Report on the development and implementation of Smart Solutions
Report on implementing eHealth psychological support for informal caregivers
Report on the opportunities and challenges of household-based migrant care work as a support to informal caregiving

Report on the opportunities and challenges of householdbased migrant care work as a support to informal caregiving

Report on agile development of unobtrusive sensing technology to support caregivers in caring for patients on a distance
Report on DiaLOGO: Setting the stage for developing a novel internet-based dyadic intervention to alleviate informal caregivers' burden in the illness context

Report on DiaLOGO Setting the stage for developing a novel internetbased dyadic intervention to alleviate informal caregivers burden in the illness context

Report on personal and geographical issues in willingness to provide care and its consequences
First online version of network public website
Call for applications
Awarding of doctoral degrees

Awarding of doctoral degrees will include an overview of the PhD dates on which the ESRs have been awarded for those completed or an estimated date for those not completed, and abstracts of their PhDs.

Publications

Digital technologies as sources of information for patients and caregivers during COVID-19 pandemic: A cross-sectional survey

Author(s): Alhassan Yosri Ibrahim Hassan; Micol Bronzini; Giovanni Lamura
Published in: Digital Health, Issue 9, 2023, ISSN 2055-2076
Publisher: SAGE journals
DOI: 10.1177/20552076231156214

Organizational Support Experiences of Care Home and Home Care Staff in Sweden, Italy, Germany and the United Kingdom during the COVID-19 Pandemic

Author(s): Connie Lethin; Andrea Kenkmann; Carlos Chiatti; Jonas Christensen; Tamara Backhouse; Anne Killett; Oliver Fisher; Agneta Malmgren Fänge
Published in: Healthcare, Issue 9, 2021, ISSN 2227-9032
Publisher: MDPI
DOI: 10.3390/healthcare9060767

Why do they care? A qualitative systematic review and meta-synthesis of personal and relational motivations for providing informal care

Author(s): Mikołaj Zarzycki; Diane Seddon; Eva Bei; Val Morrison
Published in: Health Psychology Review, 2022, Page(s) 1-33, ISSN 1743-7199
Publisher: Routledge, Taylor & Francis Group
DOI: 10.1080/17437199.2022.2058581

Between Migrant Care Work and New Occupational Welfare Tools: Changing Home Care Arrangements in Italy

Author(s): Georgia Casanova, Mirko Di Rosa, Oliver Fisher, Giovanni Lamura
Published in: International Journal of Environmental Research and Public Health, Issue 17/15, 2020, Page(s) 5511, ISSN 1660-4601
Publisher: MDPI
DOI: 10.3390/ijerph17155511

Care Home and Home Care Staff’s Learning during the COVID-19 Pandemic and Beliefs about Subsequent Changes in the Future: A Survey Study in Sweden, Italy, Germany and the United Kingdom

Author(s): Agneta Malmgren Fänge; Jonas Christensen; Tamara Backhouse; Andrea Kenkmann; Anne Killett; Oliver Fisher; Carlos Chiatti; Connie Lethin
Published in: Healthcare, Issue 10(2), 2022, ISSN 2227-9032
Publisher: MDPI
DOI: 10.3390/healthcare10020306

Beyond influence: Contextualization and optimization for new narrative techniques and story-formats. Perspective paper

Author(s): Petrovic, M., Liedgren, J., & Gaggioli, A.
Published in: Frontiers in Communication, Issue 7(A), 2022, ISSN 2297-900X
Publisher: Frontiers in Communication
DOI: 10.3389/fcomm.2022.915308

Factors Influencing Implementation of eHealth Technologies to Support Informal Dementia Care: Umbrella Review.

Author(s): Sofia Bastoni; Christian Wrede; Marcia Cristina da Silva; Robbert Sanderman; Robbert Sanderman; Andrea Gaggioli; Annemarie Braakman-Jansen; Lisette van Gemert-Pijnen
Published in: JMIR Aging, Issue 4, 2021, ISSN 2561-7605
Publisher: JMIR Aging
DOI: 10.2196/30841

Informal caregiver support needs and burden: a survey in Lithuania

Author(s): Ieva Biliunaite; Evaldas Kazlauskas; Robbert Sanderman; Gerhard Andersson
Published in: BMJ Open, Issue 12(1), 2022, ISSN 2044-6055
Publisher: BMJ Publishing Group
DOI: 10.1136/bmjopen-2021-054607

Process Evaluation of Internet-Based Cognitive Behavioral Therapy Intervention for Informal Caregivers

Author(s): Ieva Biliunaite; Evaldas Kazlauskas; Robbert Sanderman; Robbert Sanderman; Gerhard Andersson; Gerhard Andersson; Gerhard Andersson
Published in: Frontiers in Medicine, Issue 2227, 2021, ISSN 2296-858X
Publisher: Frontiers Media
DOI: 10.3389/fmed.2021.725510

Challenges and Recommendations for the Deployment of Information and Communication Technology Solutions for Informal Caregivers: Scoping Review

Author(s): Alhassan Yosri Ibrahim Hassan
Published in: JMIR Aging, Issue 3/2, 2020, Page(s) e20310, ISSN 2561-7605
Publisher: JMIR
DOI: 10.2196/20310

Caregivers’ willingness to pay for digital support services: Comparative survey

Author(s): Alhassan Yosri Ibrahim Hassan; Marco Cucculelli; Giovanni Lamura
Published in: Health Policy, Issue 130, 2023, ISSN 0168-8510
Publisher: Elsevier BV
DOI: 10.1016/j.healthpol.2023.104751

Protocol for a Mediated Long-Term Experiment with a Social Robot

Author(s): Laban, G., Kappas, A., Morrison, V., & Cross, E. S.
Published in: PsyArXiv Preprints, 2021, ISSN 2331-8422
Publisher: Cornell University
DOI: 10.31234/osf.io/4z3aw

Psychological Support Interventions for Healthcare Providers and Informal Caregivers during the COVID-19 Pandemic: A Systematic Review of the Literature.

Author(s): Vanessa Bertuzzi; Michelle Semonella; Denise Bruno; Chiara Manna; Julian Edbrook-Childs; Emanuele Maria Giusti; Gianluca Castelnuovo; Giada Pietrabissa
Published in: International Journal of Environmental Research and Public Health, Issue 18, 2021, Page(s) 6939, ISSN 1660-4601
Publisher: MDPI
DOI: 10.3390/ijerph18136939

Tell Me More! Assessing Interactions with SocialRobots From Speech

Author(s): Guy Laban Jean-Noël George Val Morrison Emily S Cross
Published in: Paladyn, Journal of Behavioral Robotics, Issue 12(1), 2020, ISSN 2081-4836
Publisher: De Gruyter Open Access
DOI: 10.1515/pjbr-2021-0011

The Impact of Micro and Macro Level Factors on the Working and Living Conditions of Migrant Care Workers in Italy and Israel-A Scoping Review.

Author(s): Oliver Fisher
Published in: International Journal of Environmental Research and Public Health, Issue 18(2), 2021, ISSN 1660-4601
Publisher: MDPI
DOI: 10.3390/ijerph18020420

Providing Care From Afar: A Growing Yet Understudied Phenomenon in the Caregiving Field

Author(s): Eva Bei, Orit Rotem-Mindali, Noa Vilchinsky
Published in: Frontiers in Psychology, Issue 11, 2020, ISSN 1664-1078
Publisher: Frontiers Research Foundation
DOI: 10.3389/fpsyg.2020.00681

Internet-Based Cognitive Behavioral Therapy for Informal Caregivers: Randomized Controlled Pilot Trial

Author(s): Ieva Biliunaite; Evaldas Kazlauskas; Robbert Sanderman; Inga Truskauskaite-Kuneviciene; Austeja Dumarkaite; Gerhard Andersson
Published in: Journal of medical internet research, Issue 23 (4), 2021, ISSN 1438-8871
Publisher: Journal of medical Internet Research
DOI: 10.5281/zenodo.4671367

Psychosocial Effects and Use of Communication Technologies during Home Confinement in the First Wave of the COVID-19 Pandemic in Italy and The Netherlands

Author(s): Sofia Bastoni; Christian Wrede; Achraf Ammar; Achraf Ammar; Annemarie Braakman-Jansen; Robbert Sanderman; Robbert Sanderman; Andrea Gaggioli; Khaled Trabelsi; Liwa Masmoudi; Omar Boukhris; Jordan M. Glenn; Bassem Bouaziz; Hamdi Chtourou; Lisette van Gemert-Pijnen
Published in: International Journal of Environmental Research and Public Health, Issue 18 (2619), 2021, ISSN 1660-4601
Publisher: MDPI
DOI: 10.3390/ijerph18052619

Using the Transformative Storytelling Technique to Generate Empowering Narratives for Informal Caregivers: Semistructured Interviews, Thematic Analysis, and Method Demonstration

Author(s): Petrovic, M., Bonanno, S., Landoni, M., Ionio, C., Hagedoorn, M., & Gaggioli, A.
Published in: JMIR Formative Research, Issue 6(8), 2022, ISSN 2561-326X
Publisher: JMIR Formative Research
DOI: 10.2196/36405

Motivations and willingness to provide care from a geographical distance, and the impact of distance care on caregivers’ mental and physical health: a mixed-method systematic review protocol

Author(s): Eva Bei; Mikołaj Zarzycki; Val Morrison; Noa Vilchinsky
Published in: BMJ Open, Issue 11(7), 2021, ISSN 2044-6055
Publisher: BMJ Publishing Group
DOI: 10.1136/bmjopen-2020-045660

ICBT program for improving informal caregiver well-being: A qualitative study

Author(s): Ieva Biliunaite; Austeja Dumarkaite; Evaldas Kazlauskas; Robbert Sanderman; Gerhard Andersson
Published in: Internet Interventions, Issue 23, 2021, ISSN 2214-7829
Publisher: Elsevier BV
DOI: 10.1016/j.invent.2021.100361

Cognitive behavioural therapy self-help intervention preferences among informal caregivers of adults with chronic kidney disease: an online cross-sectional survey

Author(s): Chelsea Coumoundouros; Paul Farrand; Alexander Hamilton; Louise von Essen; Robbert Sanderman; Joanne Woodford
Published in: BMC Nephrology, Issue 24 (1), 4, 2022, ISSN 1471-2369
Publisher: BioMed Central
DOI: 10.1186/s12882-022-03052-7

A Mixed-Method Systematic Review

Author(s): Srishti Dang; Anne Looijmans; Giulia Ferraris; Giovanni Lamura; Mariët Hagedoorn
Published in: Frontiers in Psychology, Issue 13, 2022, ISSN 1664-1078
Publisher: Frontiers Research Foundation
DOI: 10.3389/fpsyg.2022.832974

Extremely Distant and Incredibly Close: Physical Proximity, Emotional Attachment and Caregiver Burden

Author(s): Bei, Eva, Karin Mashevich, Orit Rotem-Mindali, Shira Galin-Soibelman, Ofra Kalter-Leibovici, Tami Schifter, and Noa Vilchinsky.
Published in: International Journal of Environmental Research and Public Health, Issue 19(14), 2022, ISSN 1660-4601
Publisher: MDPI AG
DOI: 10.3390/ijerph19148722

Dyadic associations between perceived social support and psychological well-being in caregivers and older care recipients

Author(s): Giulia Ferraris; Oliver Fisher; Giovanni Lamura; Paolo Fabbietti; Cristina Gagliardi; Mariët Hagedoorn
Published in: Journal of Family Psychology, Issue 36(8), 2022, Page(s) 1397–1406, ISSN 0893-3200
Publisher: American Psychological Association
DOI: 10.1037/fam0001009

Implementation of Unobtrusive Sensing Systems for Older Adult Care: Scoping Review

Author(s): Nikita Sharma; Jeroen Klein Brinke; J.E.W.C. van Gemert-Pijnen; Louise Marie Antoinette Braakman-Jansen
Published in: JMIR Aging, Issue 4(4), 2021, ISSN 1438-8871
Publisher: Journal of medical Internet Research
DOI: 10.2196/27862

Implementation of e-mental health interventions for informal caregivers of adults with chronic diseases: a protocol for a mixed-methods systematic review with a qualitative comparative analysis

Author(s): Chelsea Coumoundouros, Louise von Essen, Robbert Sanderman, Joanne Woodford
Published in: BMJ Open, Issue 10/6, 2020, Page(s) e035406, ISSN 2044-6055
Publisher: BMJ Publishing Group
DOI: 10.1136/bmjopen-2019-035406

Barriers, facilitators and motives to provide distance care, and the consequences for distance caregivers: A mixed-method systematic review.

Author(s): Bei, E., Morrison, V., Zarzycki, M., & Vilchinsky, N.
Published in: Social Science & Medicine, Issue 115782, 2023, ISSN 0277-9536
Publisher: Pergamon Press Ltd.
DOI: 10.1016/j.socscimed.2023.115782

Predictors of digital support services use by informal caregivers: a cross-sectional comparative survey

Author(s): Hassan, A. Y. I., Lamura, G., & Hagedoorn, M.
Published in: BMJ Open, Issue 12(4), 2022, ISSN 2044-6055
Publisher: BMJ Publishing Group
DOI: 10.1136/bmjopen-2021-059897

Supported cognitive-behavioural therapy self-help versus treatment-as-usual for depressed informal caregivers of stroke survivors (CEDArS) : feasibility randomised controlled trial

Author(s): Paul Farrand; Joanne Woodford; Chelsea Coumoundouros; Frida Svedin
Published in: The Cognitive Behaviour Therapist, Issue 13, 2020, ISSN 1754-470X
Publisher: Cambridge University Press
DOI: 10.1017/s1754470x20000239

Socio-Economic Predictors of Hiring Live-In Migrant Care Workers to Support Community Dwelling Older Adults with Long-Term Care Needs: Recent Evidence from a Central Italian Region

Author(s): Oliver Fisher; Paolo Fabbietti; Giovanni Lamura
Published in: Sustainability, Issue 13(10), 2021, ISSN 2071-1050
Publisher: MDPI Open Access Publishing
DOI: 10.3390/su13105349

Getting back or giving back: understanding caregiver motivations and willingness to provide informal care.

Author(s): Mikołaj Zarzycki; Val Morrison
Published in: Health Psychology and Behavioral Medicine, Issue 9(1), 2021, Page(s) 636-661, ISSN 2164-2850
Publisher: Taylor & Francis Group
DOI: 10.1080/21642850.2021.1951737

Making a Virtue Out of Necessity : COVID-19 as a Catalyst for Applying Internet-Based Psychological Interventions for Informal Caregivers

Author(s): Michelle, Semonella; Gerhard, Andersson; Rachel, Dekel; Giada, Pietrabissa; Noa, Vilchinsky
Published in: Frontiers in Psychology, Issue 13, 2022, ISSN 1664-1078
Publisher: Frontiers Research Foundation
DOI: 10.3389/fpsyg.2022.856016

Implementation of e-mental health interventions for informal caregivers of adults with chronic diseases: mixed methods systematic review with a qualitative comparative analysis and thematic synthesis

Author(s): Coumoundouros, C., Mårtensson, E., Ferraris, G., Zuidberg, J. M., von Essen, L., Sanderman, R., & Woodford, J.
Published in: JMIR mental health, Issue 9(11), 2022, ISSN 2368-7959
Publisher: JMIR Publications
DOI: 10.2196/41891

Adapting a guided low-intensity behavioural activation intervention for people with dementia and depression in the Swedish healthcare context (INVOLVERA): a study protocol using codesign and participatory action research.

Author(s): Frida Svedin; Anders Brantnell; Paul Farrand; Oscar Blomberg; Chelsea Coumoundouros; Louise von Essen; Anna Cristina Åberg; Anna Cristina Åberg; Joanne Woodford
Published in: BMJ Open, Issue 11(7), 2021, ISSN 2044-6055
Publisher: BMJ Publishing Group
DOI: 10.1136/bmjopen-2020-048097

Dyadic Interdependence in Non-spousal Caregiving Dyads’ Wellbeing : A Systematic Review

Author(s): Giulia Ferraris; Srishti Dang; Joanne Woodford; Mariët Hagedoorn
Published in: Frontiers in Psychology, Issue 13, 2022, ISSN 1664-1078
Publisher: Frontiers Research Foundation
DOI: 10.3389/fpsyg.2022.882389

The potential of transformative video design for improving caregiver’s wellbeing:

Author(s): Milica Petrovic; Andrea Gaggioli
Published in: Health Psychology Open, Issue 8(1), 2021, Page(s) 1-10, ISSN 2055-1029
Publisher: SAGE Publications Inc.
DOI: 10.1177/20551029211009098

Coping with Emotional Distress via Self-Disclosure to Robots: Intervention with Caregivers

Author(s): Laban, G., Morrison, V., Kappas, A., & Cross, E. S.
Published in: PsyArXiv Preprints, 2023, ISSN 2331-8422
Publisher: Cornell University
DOI: 10.31234/osf.io/gbk2j

Social Robots for Supporting Post-traumatic Stress Disorder Diagnosis and Treatment.

Author(s): Guy Laban; Ziv Ben-Zion; Ziv Ben-Zion; Ziv Ben-Zion; Ziv Ben-Zion; Emily S. Cross; Emily S. Cross
Published in: Frontiers in Psychiatry, Issue 12, 2022, ISSN 1664-0640
Publisher: Frontiers Research Foundation
DOI: 10.3389/fpsyt.2021.752874

What Makes a Robot Social? A Review of Social Robots from Science Fiction to a Home or Hospital Near You

Author(s): Anna Henschel; Guy Laban; Emily S. Cross; Emily S. Cross
Published in: Current Robotics Reports, Issue 2, 2021, ISSN 2662-4087
Publisher: Springer
DOI: 10.1007/s43154-020-00035-0

How Culture Shapes Informal Caregiver Motivations: A Meta-Ethnographic Review

Author(s): Mikołaj Zarzycki; Diane Seddon; Eva Bei; Rachel Dekel; Val Morrison
Published in: Qualitative Health Research, Issue 32 (10), 2022, Page(s) 1574-1589, ISSN 1049-7323
Publisher: SAGE Publications
DOI: 10.1177/10497323221110356

Human – Robot Relationship: long-term effects on disclosure, perception and wellbeing

Author(s): Laban, G., Kappas, A., Morrison, V., & Cross, E. S.
Published in: PsyArXiv Preprints, 2022, ISSN 2331-8422
Publisher: Cornell University
DOI: 10.31234/osf.io/6z5ry

Psychological interventions for symptoms of depression among informal caregivers of older adult populations: A systematic review and meta-analysis of randomized controlled trials

Author(s): Mårtensson, E., Coumoundouros, C., Sörensdotter, R., von Essen, L., & Woodford, J.
Published in: Journal of affective disorders, Issue 320, 2023, Page(s) 474–498, ISSN 0165-0327
Publisher: Elsevier BV
DOI: 10.1016/j.jad.2022.09.093

Protocol of the ENTWINE-iCohort

Author(s): Val Morrison; Mikołaj Zarzycki; Noa Vilchinsky; Robbert Sanderman; Giovanni Lamura; Oliver Fisher; Giulia Ferraris; Saif Elayan; Erik Buskens; Eva Bei; Anne Looijmans; Viola Angelini; Mariët Hagedoorn
Published in: International Journal of Environmental Research and Public Health, Issue 19 (2), 2022, ISSN 1661-7827
Publisher: Multidisciplinary Digital Publishing Institute (MDPI)
DOI: 10.3390/ijerph19020821

Digital Mental Health Tools for Caregivers of Older Adults—A Scoping Review

Author(s): Milica Petrovic, Andrea Gaggioli
Published in: Frontiers in Public Health, Issue 8, 2020, ISSN 2296-2565
Publisher: Frontiers in Public Health
DOI: 10.3389/fpubh.2020.00128

Cultural and societal motivations for being informal caregivers: a qualitative systematic review and meta-synthesis

Author(s): Mikołaj Zarzycki; Val Morrison; Eva Bei; Diane Seddon
Published in: Health Psychology Review, 2022, Page(s) 1-30, ISSN 1743-7199
Publisher: Routledge, Taylor & Francis Group
DOI: 10.1080/17437199.2022.2032259

Implementation of e-mental health interventions for informal caregivers of adults with chronic diseases: a systematic review

Author(s): Coumoundouros, Chelsea; Mårtensson, Erika; Ferraris, Giulia; von Essen, Louise; Sanderman, Robbert; Woodford, Joanne
Published in: Implementation Science - Proceedings of the Virtual 3rd UK Implementation Science Research Conference, Issue 15, article number 105, 2020, ISSN 1748-5908
Publisher: BioMed Central
DOI: 10.1186/s13012-020-01062-3

Implementation of Unobtrusive sensing systems to support Informal caregivers in Elderly care

Author(s): Nikita Sharma
Published in: 15th International Conference on Persuasive Technology 2020, 2020
Publisher: CEUR-WS
DOI: 10.5281/zenodo.4110117

Implementation of unobtrusive sensing technology to support informal caregivers for elderly care

Author(s): Nikita Sharma
Published in: 2020
Publisher: CEUR

Determinants of motivations to care and willingness to care in informal caregiving: a mixed-method systematic review

Author(s): Zarzycki, M; Morrison, V & Seddon, D
Published in: 2019
Publisher: PROSPERO International prospective register of systematic reviews

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