CORDIS fournit des liens vers les livrables publics et les publications des projets HORIZON.
Les liens vers les livrables et les publications des projets du 7e PC, ainsi que les liens vers certains types de résultats spécifiques tels que les jeux de données et les logiciels, sont récupérés dynamiquement sur OpenAIRE .
Livrables
Final document describing the NEURONET data and knowledge management policy especially referring to the IMI ND Knowledge Base INKB
Initial Data & Knowledge Management Plan (s’ouvre dans une nouvelle fenêtre)Outline for the NEURONET data and knowledge management policy, especially referring to the ‘IMI ND Knowledge Base’ (INKB).
The public part of the yearly events will be minuted and filmed. The proceedings and videos of the event will be made available on the NEURONET and Alzheimer Europe websites, and widely propagated through social media with the help of the communication community.
Public event proceedings and videos - Year 3 (s’ouvre dans une nouvelle fenêtre)The public part of the yearly events will be minuted and filmed The proceedings and videos of the event will be made available on the NEURONET and Alzheimer Europe websites and widely propagated through social media with the help of the communication community
Public event proceedings and videos – Year 1 (s’ouvre dans une nouvelle fenêtre)The public part of the yearly events will be minuted and filmed. The proceedings and videos of the event will be made available on the NEURONET and Alzheimer Europe websites, and widely propagated through social media with the help of the communication community.
INKB web platform v2 (s’ouvre dans une nouvelle fenêtre)Updated version of the web platform.
INKB web platform v1 (s’ouvre dans une nouvelle fenêtre)First version of the web platform.
A report will be developed to inform IMI and other stakeholders on the results of the mapping and gap analysis, including recommendations for future activities that could be topics for IMI projects or funded by other means.
"Report #2 on activity of SCB, WGs and TFs" (s’ouvre dans une nouvelle fenêtre)Periodic report gathering details on evolution of the organisational structures, their output and updated workflows, and results of specific synergies and collaborations enabled by NEURONET.
Map of relevant initiatives and gap analysis v2 (s’ouvre dans une nouvelle fenêtre)A report will be developed to inform IMI and other stakeholders on the results of the mapping and gap analysis including recommendations for future activities that could be topics for IMI projects or funded by other means
Final report on impact of IMI neurodegeneration portfolio (s’ouvre dans une nouvelle fenêtre)A report will be developed to inform IMI on the results of the impact analysis including recommendations to increase impact and better use project outputs
Integrated programme analysis v1 (s’ouvre dans une nouvelle fenêtre)This deliverable will offer a first integrated view on the whole IMI ND project portfolio, with proposed actionable items to exploit potential synergies and collaborations.
First version on guidance tools on data/sample sharing and use (s’ouvre dans une nouvelle fenêtre)First document providing guidance on how data and sample sharing can be facilitated across IMI projects and with the wider research community.
Interim report on dissemination activities (s’ouvre dans une nouvelle fenêtre)A detailed list of dissemination activities will be carried out halfway through the coordination and support action. The report will assess the impact of undertaken communication activities, analyse their compliance with the initial plan and identify future dissemination opportunities as updates to the communication strategy.
Integrated programme analysis v2 (s’ouvre dans une nouvelle fenêtre)This deliverable will offer an updated integrated view on the whole IMI ND project portfolio with proposed actionable items to exploit potential synergies and collaborations
First version of guidance on sustainability (s’ouvre dans une nouvelle fenêtre)Document describing a catalogue of sustainability models used in, or applicable to IMI neurodegeneration projects – including legal, IP, technical, financial, organisational considerations.
Final version of guidance on sustainability (s’ouvre dans une nouvelle fenêtre)Updated document with a complete catalogue of sustainability models used in or applicable to IMI neurodegeneration projects practical advice and tools for decision making including legal IP technical financial organisational and business model considerations
"Report #1 on activity of SCB, WGs and TFs" (s’ouvre dans une nouvelle fenêtre)Periodic report gathering details on evolution of the organisational structures, their output and updated workflows, and results of specific synergies and collaborations enabled by NEURONET.
First report on impact of IMI neurodegeneration portfolio. (s’ouvre dans une nouvelle fenêtre)A report will be developed to inform IMI on the results of the impact analysis, including recommendations to increase impact and better use project outputs.
White paper on project impact analysis (s’ouvre dans une nouvelle fenêtre)This deliverable will report on the lessons learned through the impact analysis exercises for future reference
Final report on dissemination and outreach activities (including impact measures) (s’ouvre dans une nouvelle fenêtre)The final report will compile all undertaken dissemination activities and evaluate their impact also reporting on all the tools developed to support these activities
"Report #3 on activity of SCB, WGs and TFs" (s’ouvre dans une nouvelle fenêtre)Periodic report gathering details on evolution of the organisational structures their output and updated workflows and results of specific synergies and collaborations enabled by NEURONET
White paper on regulatory, HTA, and payer strategy for neurodegenerative diseases (s’ouvre dans une nouvelle fenêtre)Report on the challenges faced in engagement with regulatoryHTA agencies as informed by the interaction with IMI ND projects and the lessons learned through the HTAregulatory WG activities
Final version of guidance and tools supporting how data and sample sharing can be facilitated across IMI projects and with the wider research community. It will include an assessment of uptake/impact of such guidance across the IMI ND portfolio.
Final version of guidance on standards and practices for protecting data privacy (s’ouvre dans une nouvelle fenêtre)Final version of tools and guidance on the legal and practical aspects of data privacy laws with a particular focus on the changes made necessary by the General Data Protection Regulation (GDPR). It will include an assessment of uptake/impact of such guidance across the IMI ND portfolio.
First version of guidance on standards and practices for protecting data privacy (s’ouvre dans une nouvelle fenêtre)The project will provide guidance on the legal and practical aspects of data privacy laws with a particular focus on the changes made necessary by the General Data Protection Regulation (GDPR). It will include recommendations on informed consent, with a first template providing the minimum standards which should be included in informed Consent Forms for trials and research studies in IMI projects. This will provide guidance for the inclusion of clauses allowing explicit data and sample sharing and for research participants to be re-contacted for future research opportunities.
Publications
Auteurs:
Carlos Díaz, Lewis Killin and Nigel Hughes
Publié dans:
Frontiers in Neurology, Numéro 16642295, 2022, ISSN 1664-2295
Éditeur:
Frontiers Research Foundation
DOI:
10.3389/fneur.2022.1050360
Auteurs:
O’Rourke D, Coll-Padrós N, Bradshaw A, Killin L, Pradier L, Georges J, Dawoud DM, Steukers L and Diaz C
Publié dans:
Frontiers in Neurology, Numéro 13994301, 2022, ISSN 1399-4301
Éditeur:
Frontiers in Neurology
DOI:
10.3389/fneur.2022.994301
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