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Securing Adoption of Personalised Health in REgions

Deliverables

Regional ecosystems

Report summarising the information gathering from desk research: Regional ecosystems and frameworks for PM. WP2 entails the gathering and processing of relevant information concerning PM in regions: policies, research infrastructure, funding instruments, best practices of adoption, healthcare system, intra- and interregional collaborations, etc. To identify regional ecosystems and frameworks for research, innovation and adoption of PM. This will be done by means of: • Desk research: i.a. making use of the various databases related to regions and biomedical clusters (e.g. RIS3 platform, Interreg, Eurostat, Innovation Scoreboards, CORDIS, European Cluster Collaboration Platform, European Observatory for clusters and industrial change, etc.) • Interviews with existing associations/networks of regions, national and regional representatives in Brussels, ICPerMed members, running collaborative projects and partnerships, etc.

PM profiles

Report on regional PM profiles (SWOT) including forward look. WP2 will particularly focus on joint SWOT-analyses with regions to establish their current position as well as a forward look per region to implement PM. The Stakeholders’ Platform will include different communities active to implement PM in collaborative efforts and at different levels (interregional, cross-border). The specific aim is to reach out to regional stakeholders to verify the state of the affairs regarding PM (SWOT) and to establish their demand articulation (unmet needs) in the (future) adoption of PM in the region. In collaboration with WP4 and WP5, a Stakeholders’ Platform built around different communities will be established for consultation and information exchange

Communication and dissemination plan

Development and implementation of the communication and dissemination plan: A ‘Communication and Dissemination Plan’ will be developed in consultation with the other partners, defining key messages, target audiences (input from WP2), and selecting appropriate tools and channels (including those of other partners). It will draw on the networks, communication channels and vehicles of the partners and the Stakeholders’ Platform. The plan includes a strategy for engaging with and monitoring social media.

Regulatory needs and opportunities

Policy brief of regulatory needs and opportunities in regions Identification of relevant stakeholders and their needs (M 6-21) The inventory created in WP2 will identify the different regional stakeholders and will bring a general insight in the current state of play with respect to PM in these regions. To address specific needs to implement PM in different regions dedicated workshops are envisioned to get answers on specific questions. The issues, distilled from the analyses in WP2, will be introduced by ‘issues papers’ which will provide a basis for discussions during the workshops. In addition, feedback on these issues papers and further input from workshop participants will be asked prior to the workshops. The outcome of discussions in the workshops will be summarised in policy briefs that will be published on the website of the project. In a first phase, workshops are envisioned on: • Regional needs and barriers interfering with PM implementations; How can we address these? • Identifying regulatory needs: what can regions provide? What are specific regulatory needs for different regions? • The role of university hospitals and of regional hospitals • Identifying specific needs in different regions and specifically in sparsely populated regions (North-South; East-West (EU-13)) • How to translate science in applications – industry involvement

Barriers and needs

Policy brief on barriers and needs interfering with PM implementations and how to overcome these Identification of relevant stakeholders and their needs (M 6-21) The inventory created in WP2 will identify the different regional stakeholders and will bring a general insight in the current state of play with respect to PM in these regions. To address specific needs to implement PM in different regions dedicated workshops are envisioned to get answers on specific questions. The issues, distilled from the analyses in WP2, will be introduced by ‘issues papers’ which will provide a basis for discussions during the workshops. In addition, feedback on these issues papers and further input from workshop participants will be asked prior to the workshops. The outcome of discussions in the workshops will be summarised in policy briefs that will be published on the website of the project. In a first phase, workshops are envisioned on: • Regional needs and barriers interfering with PM implementations; How can we address these? • Identifying regulatory needs: what can regions provide? What are specific regulatory needs for different regions? • The role of university hospitals and of regional hospitals • Identifying specific needs in different regions and specifically in sparsely populated regions (North-South; East-West (EU-13)) • How to translate science in applications – industry involvement

Complementarities to implement PM

Report on complementarities across regions and specific prioritised themes for interregional collaboration to implement PM Establishing collaboration potential through analysis and mapping: • Seeking opportunities for (inter)regional collaboration by identifying ‘smart’ complementarities in the PM value chain. • Identification, selection and prioritisation of topics suitable for scoping workshops (in collaboration with WP3 and WP4).

DMP

Data Management Plan (DMP) will be developed for data collected during the course of the project to be stored and made findable, accessible, interoperable and re-usable (FAIR). The DMP will include information on the handling of research data during & after the end of the project; what data will be collected, processed and/or generated; which methodology & standards will be applied; whether data will be shared/made open access; and how data will be curated & preserved (including after the end of the project).

Online database on PM implementation in EU regions

Online database giving information on PM implementation in EU regions the database will provide access to the data gathered in WP2.

Project website

Development of project identity, templates and website (M1- M6) • Branding: project identity, graphic line and logo: A project identity, logo and templates will be created, capturing the vision of the project. • Project website: A specific website (www.saphire.eu) for the project will be set up and maintained for the duration of the project (+3 years after the project). It will include: o External website: main project information resource (objectives, partners, work areas, WP2 database, relevant PM news and developments, social media links, and project results), and means of communication. o An internal platform intranet (restricted area) for communication and document repository.