Deliverables Websites, patent fillings, videos etc. (9) Launch project website Twitter and Facebook account, open part project website set up Press launch of project Project newsletter 4 Project newsletter 6 Project newsletter 3 Project newsletter 5 Project newsletter 2 Project Newsletter Project newsletter 1 Project newsletters Other (1) Mandated deliverable 1. First study subject approvals package’. Protocol registered, ethical approval in one centre Documents, reports (9) First report of dissemination, impact and exploitation activity (posts, publications, engagement etc) Finalised data mangement plan, protocol and questionnaire for survey; set up webpage example Second report of dissemination, impact and exploitation activity (posts, publications, engagement etc) Second report of dissemination impact and exploitation activity posts publications engagement etc Summary of Evidence Paper on survey for submission to peer-reviewed journal Publication of protocol and study plans Full integrated plan for main trial analysis, including integration of qualitative and health economic data, submit for publication Full integrated plan for main trial analysis including integration of qualitative and health economic data submit for publication Informed consent forms and information sheets When submitting the applications for scrutiny to the local/national ethical boards/bodies for authorization, detailed information will be provided on the informed consent procedures that will be implemented. Copies of examples of Informed Consent Forms and Information Sheets will be included. There will be language understandable to the participants. Participants will have the right: -To know that participation is voluntary; - To ask questions and receive understandable answers before making a decision; - To know the degree of risk and burden involved in participation; - To know who will benefit from participation; - To withdraw themselves and data from the project at any time; - To know of any potential commercial exploitation of the research Project related templates of the informed consent forms and information sheets will be kept on file and submitted upon request Third report of dissemination, impact and exploitation activity (posts, publications, engagement etc) Third report of dissemination impact and exploitation activity posts publications engagement etc Publications Conference proceedings (2) Management of chronic breathlessness: a multinational survey of respiratory medicine and palliative care doctors Author(s): Krajnik M, Hepgul N, Wilcock A, Jassem E, Bandurski T, Tanzi S, Simon ST, Higginson IJ, Jolley CJ Published in: European Respiratory Journal, 2020 Publisher: European Respiratory Society DOI: 10.1183/13993003.congress-2020.5182 Non-pharmacological approaches for the management of chronic breathlessness in advanced chronic obstructive pulmonary disease, interstitial lung disease and lung cancer: a survey of respiratory and palliative care physicians Author(s): Krajnik M, Hepgul N, Wilcock A, Jassem E, Higginson IJ & Jolley CJ on behalf of the BETTER–B consortium. Published in: Palliative Medicine, 2020 Publisher: SAGE Publications DOI: 10.1177/0269216320958098 Peer reviewed articles (1) Do guidelines influence breathlessness management in advanced lung diseases? A multinational survey of respiratory medicine and palliative care physicians. Author(s): Krajnik M, Hepgul N, Wilcock A, Jassem E, Bandurski T, Tanzi S, Simon ST, Higginson IJ, Jolley CJ; BETTER-B research consortium. Published in: BMC Pulmonary Medicine, 2022, ISSN 1471-2466 Publisher: BioMed Central DOI: 10.1186/s12890-022-01835-0 Searching for OpenAIRE data... There was an error trying to search data from OpenAIRE No results available
