Objective Hereditary angioedema (HAE) is a rare, potentially lethal disease caused by the deficiency of Cl inhibitor. It is characterised by recurrent swelling of the skin (causing disfiguration), of the bowel (causing severe abdominal pain), of the upper airways (causing asphyxia). There is very low awareness to this disease; thus a minority of patients reach correct diagnosis and treatment. Small and dispersed case-list and lack of epidemiological data lessen the value of clinical studies and discourage research aimed to develop new therapeutic strategies. We propose the creation of a European research group on HAE composed by scientist, clinicians and associations of patients involved in the field of HAE. The project is aimed to improve the quality of life of HAE patients through:(i) creation of a European register for HAE; (ii) improvement of existing therapeutic resources (iii) identification of new targets for therapy. Programme(s) FP5-LIFE QUALITY - Specific Programme for research, technological development and demonstration on "Quality of life and management of living resources", 1998-2002 Topic(s) 1.1.1.-7. - Chronic and degenerative diseases, cancer, diabetes, cardivascular diseases and rare diseases Call for proposal Data not available Funding Scheme CON - Coordination of research actions Coordinator THE UNIVERSITY OF MILANO EU contribution No data Address 15,via pace 15 20122 Milano Italy See on map Total cost No data Participants (8) Sort alphabetically Sort by EU Contribution Expand all Collapse all CENTRE HOSPITALIER UNIVERSITAIRE DE GRENOBLE France EU contribution No data Address 38043 Grenoble See on map Total cost No data CLB - SANQUIN BLOOD SUPPLY FOUNDATION Netherlands EU contribution No data Address Plesmanlaan 125 1066 CX Amsterdam See on map Total cost No data HOSPITAL UNIVERSITARIO LA PAZ Spain EU contribution No data Address Paseo de la castellana 261 28046 Madrid See on map Total cost No data JOHANNES GUTENBERG UNIVERSITAET MAINZ Germany EU contribution No data Address Langenbeckstrasse, 1 c/o prof. dr. k. bork 55131 Mains See on map Total cost No data NORDLAND HOSPITAL Norway EU contribution No data Address Prinsens gate 8092 Bodo See on map Total cost No data ODENSE UNIVERSITY HOSPITAL Denmark EU contribution No data Address Sdr. boulevard 5000 Odense See on map Total cost No data SEMMELWEIS UNIVERSITY OF MEDICINE Hungary EU contribution No data Address Kutvolgyi ut 4 1125 Budapest See on map Total cost No data UNIVERSITY OF ZURICH Switzerland EU contribution No data Address Gloriastrasse 31 8091 Zurich See on map Total cost No data