The projected network aims at improving care for patients with hepatic or portal vein thrombosis through recommendations based on scientific evidence regularly up-dated by the scientific results gained by the project. A board will gather 10 world-leading experts from 9 countries, with overlapping expertise. The board will federate 9 specific national networks acting as well as for data collection, as for counselling individual professionals or patients. Communication will be through a dedicated website. Data exploitation will target clarification of aetiology and assessment of therapy; it will include planning for future clinical studies on project-raised hypotheses, and basic research on registered samples. The whole network, database, and sample register should become permanent through the active search for other funding. This project is intended to be used as a template to be adapted for other networks on similarly rare and severe disorders.
Funding SchemeTHN - Thematic network contracts
2300 RC Leiden
B15 2TH Birmingham
3015 GD Rotterdam