European network for vascular disorders of the liver

Objective

The projected network aims at improving care for patients with hepatic or portal vein thrombosis through recommendations based on scientific evidence regularly up-dated by the scientific results gained by the project. A board will gather 10 world-leading experts from 9 countries, with overlapping expertise. The board will federate 9 specific national networks acting as well as for data collection, as for counselling individual professionals or patients. Communication will be through a dedicated website. Data exploitation will target clarification of aetiology and assessment of therapy; it will include planning for future clinical studies on project-raised hypotheses, and basic research on registered samples. The whole network, database, and sample register should become permanent through the active search for other funding. This project is intended to be used as a template to be adapted for other networks on similarly rare and severe disorders.

Programme(s)

• FP5-LIFE QUALITY - Specific Programme for research, technological development and demonstration on "Quality of life and management of living resources", 1998-2002

Topic(s)

• 1.1.1.-7. - Chronic and degenerative diseases, cancer, diabetes, cardivascular diseases and rare diseases

Funding Scheme

THN - Thematic network contracts

Coordinator

ASSISTANCE PUBLIQUE - HOPITAUX DE PARIS

Address

Boulevard Du General Leclerc, 100
92118 Clichy
France

Participants (9)

ACADEMISCH ZIEKENHUIS LEIDEN

Netherlands

Address

Albinusdreef 2
2300 RC Leiden

CENTRE HOSPITALIER UNIVERSITAIRE BRUGMANN - ASSOCIATION HOSPITALIERE DE BRUXELLES ET DE SCHAERBEEK

Belgium

Address

Place Arthur Van Gehuchten, 4
1020 Bruxelles

HANNOVER MEDICAL SCHOOL

Germany

Address

1,Carl-neuberg-strasse 1
30623 Hannover

HOPITAL CANTONAL UNIVERSITAIRE DE GENEVE

Switzerland

Address

Rue Micheli-du-crest 24
1211 Geneve

HOSPITAL CLINIC BARCELONA

Spain

Address

170,Villaroel 170 Hospital Clinic
08036 Barcelona

HOSPITAL GERAL DE SANTO ANTONIO

Portugal

Address

Largo Abel Salazar
4090-001 Porto

I.R.C.C.S. OSPEDALE MAGGIORE MILAN

Italy

Address

Via Pace, 9
20122 Milano

UNIVERSITY HOSPITAL BIRMINGHAM NATIONAL HEALTH SERVICE TRUST

United Kingdom

Address

C/o Queen Elisabeth Hospital, Metchley Park Road,
B15 2TH Birmingham

UNIVERSITY HOSPITAL ROTTERDAM

Netherlands

Address

Dr. Molewaterplein 40
3015 GD Rotterdam