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Genetics education: improving non-genetic health professionals' understanding of genetic testing (GENED)

Objective

New genetics information and technologies are expanding rapidly. The rate of increase of trained medical geneticists and counsellors has not kept pace with genetic discoveries and demand for services. As genetic testing moves into mainstream health care tests will be administered by physicians with no training in genetics. There is concern that these physicians cannot interpret genetic tests adequately and may not comply with ethical and clinical guidelines. Using data from 2 successful BIOMED projects, this project will launch a European collaborative education initiative between geneticists, patient support groups and non-genetics health professionals to identify priority needs for education via an extensive survey of non-geneticists. A future RTD project to develop an educational model will be based on these empirical results.

Funding Scheme

ACM - Preparatory, accompanying and support measures

Coordinator

UNIVERSITY OF MANCHESTER
Address
Oxford Road
M13 9PL Manchester
United Kingdom

Participants (5)

HANNOVER MEDICAL SCHOOL
Germany
Address
Carl-neuberg-strasse 1
30625 Hannover
INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE
France
Address
Boulevard De Sainte Margueritte 232, Institut Paol
13273 Marseille
LUND UNIVERSITY
Sweden
Address
Paradisgatan 2
221 00 Lund
VRIJE UNIVERSITEIT AMSTERDAM - VERENIGING VOOR CHRISTELIJK WETENSCHAPPELIJK ONDERWIJS
Netherlands
Address
De Boelelaan 1105
1081 HV Amsterdam
WESTFAELISCHE WILHELMS - UNIVERSITAET MUENSTER
Germany
Address
Vesaliusweg 12-14
48149 Muenster