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Content archived on 2024-05-21

The influence of environmental factors on the participation and quality of life of 8-12 year old children with cerebral palsy in 6 eu countries (PARTICIP-CP)

Objective

Cerebral palsy is the commonest cause of physical impairment in childhood and associated with cognitive and sensory impairments. It occurs in 1 in 500 births, or 10,000 new cases a year in the EU.Average life expectancy is at least 40 years. Children with cerebral palsy continue to be seriously disadvantaged with respect to social relationships, education and employment prospects. A collaboration of 14 cerebral palsy registers, funded by the EU, has already registered 6500children and standardised the identification and assessment of children (including severity of impairment). In children with stable impairments (as compared to children with illness), the two key outcomes of Participation and Quality of Life are especially influenced by physical, social and attitudinal Environmental Factors (Eves) as well as medical interventions. Our principal hypothesis is that children with similar severity of impairment will experience variable outcomes in different countries due to variation in Eves. This will allow the identification of Eves, which, if improved, will yield the greatest benefits for children and their families. Such knowledge will inform EU policy in the health, educational and social sectors and generate protocols to optimise outcomes. It is a further hypothesis, testable in a subsequent study, that successful management of these Eves will have long-term ...

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Coordinator

UNIVERSITY OF NEWCASTLE UPON TYNE
EU contribution
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Address
6,Walker Terrace 13
NE8 1EB GATESHEAD
United Kingdom

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Total cost

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Participants (6)

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