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My Health - My Data

Objetivo

Issues of data subjects’ privacy and data security represent a crucial challenge in the biomedical sector more than in other industries. The current IT landscape in this field shows a myriad of isolated, locally hosted patient data repositories, managed by clinical centres and other organisations, which are subject to frequent and massive data breaches. Patients are disenfranchised in this process, and are not able to have a clear understanding of who uses their personal information and for what purposes. This makes it the ideal field to build and test new models of privacy and data protection, and the technologies that encode them. MyHealthMyData (MHMD) aims at changing the existing scenario by introducing a distributed, peer-to-peer architecture, based on Blockchain and Personal Data Accounts. This approach will determine new mechanisms of trust and of direct, value-based relationships between people, hospitals, research centres and businesses, in what will be the first open biomedical information network centred on the connection between organisations and the individual. The system will develop a comprehensive methodology to guide the implementation of data and identity protection systems, specifically defining approaches and tools to profile and classify sensitive data based on their informational and economic value, to assess the most suitable and robust de-identification and encryption technologies needed to secure different types of information, to allow advanced analytics, and to evaluate the overall reliability of a generic multi modular architecture. MHMD will also analyse users’ behavioural patterns alongside ethical and cultural orientations, to identify hidden dynamics in the interactions between humans and complex information services, to improve the design of data-driven platforms and to foster the development of a true information marketplace, in which individuals will be able to exercise full control on their personal data and leverage their value.

Convocatoria de propuestas

H2020-ICT-2016-1
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Coordinador

LYNKEUS
Dirección
Livenza 6
00198 Rome
Italia
Tipo de actividad
Private for-profit entities (excluding Higher or Secondary Education Establishments)
Aportación de la UE
€ 573 750

Participantes (16)

ATHINA-EREVNITIKO KENTRO KAINOTOMIAS STIS TECHNOLOGIES TIS PLIROFORIAS, TON EPIKOINONION KAI TIS GNOSIS
Greece
Aportación de la UE
€ 419 375
Dirección
Artemidos 6 Kai Epidavrou
151 25 Maroussi
Tipo de actividad
Research Organisations
CONSIGLIO NAZIONALE DELLE RICERCHE
Italia
Aportación de la UE
€ 212 250
Dirección
Piazzale Aldo Moro 7
00185 Roma
Tipo de actividad
Research Organisations
DIGI.ME LIMITED
United Kingdom
Aportación de la UE
€ 197 812,50
Dirección
The Old Coach House Grange Court Grange Road
GU10 1DW Tongham
Tipo de actividad
Private for-profit entities (excluding Higher or Secondary Education Establishments)
MAAT FRANCE SARL
Francia
Aportación de la UE
€ 468 576,25
Dirección
Impasse Des Pres D En Bas
74370 Argonay
Tipo de actividad
Private for-profit entities (excluding Higher or Secondary Education Establishments)
HAUTE ECOLE SPECIALISEE DE SUISSE OCCIDENTALE
Suiza
Aportación de la UE
€ 0
Dirección
Route De Moutier 14
2800 Delemont
Tipo de actividad
Higher or Secondary Education Establishments
H W COMMUNICATIONS LIMITED

La participación finalizó

United Kingdom
Aportación de la UE
€ 170 218,75
Dirección
Greaves Road Parkfield
LA1 4TZ Lancaster
Tipo de actividad
Private for-profit entities (excluding Higher or Secondary Education Establishments)
NEGRI-CLEMENTI, TOFFOLETTO, MONTIRONI & SOCI

La participación finalizó

Italia
Aportación de la UE
€ 0
Dirección
Via Agnello 12
20121 Milano
Tipo de actividad
Private for-profit entities (excluding Higher or Secondary Education Establishments)
SBA RESEARCH GEMEINNUTZIGE GMBH
Austria
Aportación de la UE
€ 275 560
Dirección
Floragasse 7, 5 Og
1040 Wien
Tipo de actividad
Research Organisations
SIEMENS HEALTHCARE GMBH
Alemania
Aportación de la UE
€ 284 687,50
Dirección
Henkestrasse 127
91052 Erlangen
Tipo de actividad
Private for-profit entities (excluding Higher or Secondary Education Establishments)
UNIVERSITATEA TRANSILVANIA DIN BRASOV
Rumanía
Aportación de la UE
€ 147 750
Dirección
Bdul Eroilor 29
500036 Brasov
Tipo de actividad
Higher or Secondary Education Establishments
DEUTSCHES HERZZENTRUM BERLIN

La participación finalizó

Alemania
Aportación de la UE
€ 0
Dirección
Augustenburger Platz 1
13353 Berlin
Tipo de actividad
Higher or Secondary Education Establishments
OSPEDALE PEDIATRICO BAMBINO GESU
Italia
Aportación de la UE
€ 101 250
Dirección
Piazza Sant Onofrio 4
00165 Roma
Tipo de actividad
Research Organisations
QUEEN MARY UNIVERSITY OF LONDON
United Kingdom
Aportación de la UE
€ 189 531,25
Dirección
327 Mile End Road
E1 4NS London
Tipo de actividad
Higher or Secondary Education Establishments
UNIVERSITY COLLEGE LONDON
United Kingdom
Aportación de la UE
€ 92 125
Dirección
Gower Street
WC1E 6BT London
Tipo de actividad
Higher or Secondary Education Establishments
CHARITE - UNIVERSITAETSMEDIZIN BERLIN
Alemania
Aportación de la UE
€ 91 875
Dirección
Chariteplatz 1
10117 Berlin
Tipo de actividad
Higher or Secondary Education Establishments
PANETTA & ASSOCIATI STUDIO LEGALE
Italia
Aportación de la UE
€ 231 427,25
Dirección
Vicolo Della Palombra 19
00186 Roma
Tipo de actividad
Private for-profit entities (excluding Higher or Secondary Education Establishments)