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EUROlinkCAT: Establishing a linked European Cohort of Children with Congenital Anomalies

Deliverables

Interactive website tables

Interactive website tables

Information Leaflet

Produce initial information leaflet to promote EUROlinkCAT project.

Report on geographical variations in Europe on survival of children born with a congenital anomaly

Report on geographical variations in Europe on survival of children born with a congenital anomaly

Report on survival and risk factors for survival for children born with a congenital anomaly

Report on survival and risk factors for survival for children born with a congenital anomaly

Report on Hospitalisations and surgery across Europe for the first 5 years of life

Report on Hospitalisations and surgery across Europe for the first 5 years of life

Formation of e stakeholder forum “ConnectEpeople”

Formation of e stakeholder forum “ConnectEpeople”

Initial Website Online

Uploading the content to the website, with the first version ready by month 6

Build Website

Build the website and install a CMS on the website

Searching for OpenAIRE data...

Publications

EUROlinkCAT: Common Data Model

Author(s): Maria Loane, James Densem, Joan Morris, Joachim Tan
Published in: International Journal of Population Data Science, Issue 3/2, 2018, ISSN 2399-4908
DOI: 10.23889/ijpds.v3i2.537

Exploring Research Priorities of Parents Who Have Children With Down Syndrome, Cleft Lip With or Without Cleft Palate, Congenital Heart Defects, or Spina Bifida Using ConnectEpeople: A Social Media Coproduction Research Study

Author(s): Marlene Sinclair, Julie EM McCullough, David Elliott, Anna Latos-Bielenska, Paula Braz, Clara Cavero-Carbonell, Anna Jamry-Dziurla, Ana João Santos, Lucía Páramo-Rodríguez
Published in: Journal of Medical Internet Research, Issue 21/11, 2019, Page(s) e15847, ISSN 1438-8871
DOI: 10.2196/15847