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EUROlinkCAT: Establishing a linked European Cohort of Children with Congenital Anomalies

Deliverables

Information Leaflet

Produce initial information leaflet to promote EUROlinkCAT project.

Formation of e stakeholder forum “ConnectEpeople”

Formation of e stakeholder forum “ConnectEpeople”

Initial Website Online

Uploading the content to the website, with the first version ready by month 6

Build Website

Build the website and install a CMS on the website

Searching for OpenAIRE data...

Publications

EUROlinkCAT: Common Data Model

Author(s): Maria Loane, James Densem, Joan Morris, Joachim Tan
Published in: International Journal of Population Data Science, Issue 3/2, 2018, ISSN 2399-4908
DOI: 10.23889/ijpds.v3i2.537

Exploring Research Priorities of Parents Who Have Children With Down Syndrome, Cleft Lip With or Without Cleft Palate, Congenital Heart Defects, or Spina Bifida Using ConnectEpeople: A Social Media Coproduction Research Study

Author(s): Marlene Sinclair, Julie EM McCullough, David Elliott, Anna Latos-Bielenska, Paula Braz, Clara Cavero-Carbonell, Anna Jamry-Dziurla, Ana João Santos, Lucía Páramo-Rodríguez
Published in: Journal of Medical Internet Research, Issue 21/11, 2019, Page(s) e15847, ISSN 1438-8871
DOI: 10.2196/15847