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Stakeholder-informed ethics for new technologies with high socio-economic and human rights impact

Deliverables

Ethical assessment of human enhancement

A review of existing ethical theories and approaches regarding human enhancement and an ethical impact assessment of current and future ethical issues, both regarding human enhancement in general and in relation to specific technologies, domains and applications.

Report of the human enhancement citizen panels

A report of the discussions and outcomes of panels of citizens in five EU countries on the social and ethical issues raised by human enhancement.

Ethical assessment of HMI

A review of existing ethical theories and approaches regarding human-machine interaction technologies and an ethical impact assessment of current and future ethical issues, both regarding human-machine interaction technologies in general and in relation to specific technologies, domains and applications.

Report of the HMI citizen panels

A report of the discussions and outcomes of panels of citizens in five EU countries on the social and ethical issues raised by human-machine interaction technologies.

Survey of REC approaches and codes for HMI (Formerly EUREC)

A survey report that determines for research ethics protocols and professional ethics codes in different EU countries and internationally to what extent and how they refer explicitly or implicitly to genomics technologies, and that surveys the opinions of representatives of research ethics committees to determine awareness of these technologies and the approach that they take and would like to take to them.

Report of the HMI societal acceptance and awareness surveys

A report with results and analysis of telephone surveys in 11 countries to assess the level of societal acceptance and awareness of human-machine interaction technologies.

Analysis of legal and human rights requirements for human enhancement in and outside the EU

A report documenting and critically assessing the legal, including human rights, requirements applicable to human enhancement, including an analysis of EU and international norms and regional legal orders, an analysis of human rights norms and ways in which human rights may be affected by human enhancement technologies, and an analysis of national laws in comparison to international and regional norms and human rights standards.

Report of the genomics societal acceptance and awareness surveys

A report with results and analysis of telephone surveys in 11 countries to assess the level of societal acceptance and awareness of genomics technologies.

Interim report on communications

An interim report on outreach measurements as defined in the communication and dissemination plan.

Analysis of the legal and human rights requirements for HMI in and outside the EU

A report documenting and critically assessing the legal, including human rights, requirements applicable to human-machine interaction, including an analysis of EU and international norms and regional legal orders, an analysis of human rights norms and ways in which human rights may be affected by human-machine interaction technologies, and an analysis of national laws in comparison to international and regional norms and human rights standards.

Ethical assessment of genomics

A review of existing ethical theories and approaches regarding genomics technologies and an ethical impact assessment of current and future ethical issues, both regarding genomics in general and in relation to specific technologies, domains and applications.

State of the art review of genomics

Report of the state of the art of genomics, including a demarcation and brief history of the field, the basic scientific and commercial developments, and their present and anticipated social and economic impacts.

State-of-the-art review of human machine interactions

Report of the state of the art of human machine interaction, including a demarcation and brief history of the field, the basic scientific and commercial developments, and their present and anticipated social and economic impacts.

Report of the Genomics citizen panels

A report of the discussions and outcomes of panels of citizens in five EU countries on the social and ethical issues raised by genomics technologies.

The consortium’s methodological handbook (outlining its detailed approach)

An handbook documenting the SIENNA approaches for ethical analysis, legal and human rights analysis, the study of societal acceptance and awareness, stakeholder analysis and public engagement approach, and the analysis and development of research ethics protocols and professional ethical codes (tasks 1.1 through 1.5), as well as their benefits, limitations and challenges.

Survey of REC approaches and codes for human enhancement (Formerly EUREC)

A survey report that determines for research ethics protocols and professional ethics codes in different EU countries and internationally to what extent and how they refer explicitly or implicitly to human enhancement , and that surveys the opinions of representatives of research ethics committees to determine awareness of these technologies and the approach that they take and would like to take to them.

Survey of REC approaches and codes for genomics

A survey report that determines for research ethics protocols and professional ethics codes in different EU countries and internationally to what extent and how they refer explicitly or implicitly to genomics technologies, and that surveys the opinions of representatives of research ethics committees to determine awareness of these technologies and the approach that they take and would like to take to them.

Report of the human enhancement societal acceptance and awareness surveys

A report with results and analysis of telephone surveys in 11 countries to assess the level of societal acceptance and awareness of human enhancement.

State-of-the-art review of human enhancement

Report of the state of the art of human enhancement, including a demarcation and brief history of the field, the basic scientific and commercial developments, and their present and anticipated social and economic impacts.

Analysis of the legal and human rights requirements for genomics in and outside the EU

A report documenting and critically assessing the legal, including human rights, requirements applicable to genomics, including an analysis of EU and international norms and regional legal orders, an analysis of human rights norms and ways in which human rights may be affected by genomics technologies, and an analysis of national laws in comparison to international and regional norms and human rights standards.

Communication and dissemination plan

A report that outlines a communication and dissemination strategy and includes an activity plan for the first 12 months. This plan will be updated regularly.

Press release

A global press-release, to be issued by UT, followed by local releases from other partners.

Website launch

Delivery of a website for SIENNA.

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Publications

THE RIGHT TO SCIENCE AND HUMAN GERMLINE EDITING. Sweden, its external commitments and the ambiguous national responses under the Genetic Integrity Act

Author(s): Santa Slokenberga and Heidi Carmen Howard
Published in: Förvaltningsrättslig tidskrift, Issue 2019 2, 2019, Page(s) 199-222, ISSN 0015-8585

The Greek Law on Genetics and Genomics - An Overview and Outlook for Future Perspectives

Author(s): Maria Canellopoulou-Bottis
Published in: SSRN Electronic Journal, Issue Posted 22 Dec 2018, 2018, Page(s) 1-20, ISSN 1556-5068
DOI: 10.2139/ssrn.3295632

Setting future ethical standards for ICT, Big Data, AI and robotics

Author(s): Josepine Fernow, Inigo De Miguel Beriain, Philip Brey, Bernd Stahl
Published in: ORBIT Journal, Issue 2019/1, 2019, Page(s) 1-8, ISSN 2515-8562
DOI: 10.29297/orbit.v2019i1.115