D3.1 is the direct outcome of Task 3.1 and will document the innovative, open, reference architecture of the adult’s clinical study.
Report establishing the ethical framework of MyPal with potential updates during the course of the project, given the continuous monitoring of ethical issues by T1.1 (live document).
Report defining the context of palliative care for cancer patients as considered in MyPal and the user need with respect to PRO systems.
Report on the project Website, including the internal Website for partner collaboration.
Report referring to the plans and the means for quality and risk management assurance.
Report presenting the user engagement strategies employed in MyPal and the approach employed for adapting the MyPal tools to the patient needs, in order to ensure high user acceptance and effectiveness of the proposed intervention.
Report describing the architecture and working mechanisms of the ePRO tool for children, including a detailed description of how gamification influences the motivation of the user.
Report defining in detail the clinical study protocols for MyPal-ADULT and MyPal-CHILD.
Report setting the scene on the current state-of-the-art of PRO systems for palliative cancer care.
Prototype with the tools that will be employed for the MyPal clinical studies.
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