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MyPal: Fostering Palliative Care of Adults and Children with Cancer through Advanced Patient Reported Outcome Systems

Deliverables

Clinical studies implementation plan

Report describing in full detail the defined clinical studies implementation plan.

MyPal user requirements elicitation

Report documenting in detail the user requirements of MyPal posing comprehensive requirements to WP3, WP4 and WP5.

MyPal conceptual & reference architecture

D3.1 is the direct outcome of Task 3.1 and will document the innovative, open, reference architecture of the adult’s clinical study.

MyPal ethics

Report establishing the ethical framework of MyPal with potential updates during the course of the project, given the continuous monitoring of ethical issues by T1.1 (live document).

MyPal palliative care context and user needs

Report defining the context of palliative care for cancer patients as considered in MyPal and the user need with respect to PRO systems.

Project Website

Report on the project Website, including the internal Website for partner collaboration.

User interaction methods for the adult’s ePRO tool

D3.2 will report on innovative interaction methods for ePROs.

MyPal-CHILD first study subject approvals package

Mandatory deliverable according to the H2020 rules.

MyPal-ADULT first study subject approvals package

Mandatory deliverable according to the H2020 rules.

Quality management plan

Report referring to the plans and the means for quality and risk management assurance.

MyPal ePRO personalisation and user engagement framework

Report presenting the user engagement strategies employed in MyPal and the approach employed for adapting the MyPal tools to the patient needs, in order to ensure high user acceptance and effectiveness of the proposed intervention.

MyPal ePRO tool design

Report describing the architecture and working mechanisms of the ePRO tool for children, including a detailed description of how gamification influences the motivation of the user.

MyPal clinical study protocol definition

Report defining in detail the clinical study protocols for MyPal-ADULT and MyPal-CHILD.

Report on testing and adaptation of the ePRO platform

D3.4 will report on testing and adaptation of the ePRO tool for adults.

State-of-the-art on PRO systems for palliative cancer care

Report setting the scene on the current state-of-the-art of PRO systems for palliative cancer care.

Integration plan for the patient reported outcome tools with the MyPal platform

Report describing the integration plan of the MyPal tools in the overall platform.

Evaluation and impact assessment framework

Report describing in full detail the defined impact assessment framework.

Initial set of tools for intervention design and advanced reporting of outcome

Prototype with the tools that will be employed for the MyPal clinical studies.

Data management plan

Report including the description of the data collected and/or generated in the project, as well as the different processes for ensuring its appropriate management and curation according to international standards.

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Publications

Development of a ePRO-Based Palliative Care Intervention for Cancer Patients: A Participatory Design Approach.

Author(s): Karamanidou C, Maramis C, Stamatopoulos K, Koutkias V.
Published in: Studies in health technology and informatics, Issue June 1, 2020, 2020, Page(s) 941-945
DOI: 10.3233/shti200300

Using Electronic Patient Reported Outcomes to Foster Palliative Cancer Care: The MyPal Approach

Author(s): Christos Maramis, Sheila Payne, Sarka Pospisilova, Richard Rosenquist, Paolo Ghia, Charalampos Pontikoglou, Annette Sander, Michael Doubek, Norbert Graf, Julie Ling, Julia Downing, Christina Karamanidou, Elpida Pavi, Vassilis Koutkias, Fatima Schera, Stephan Kiefer, Lefteris Koumakis, Konstantinos Marias, Stefan Hoffmann, Heather Parker, Jonathan Reston
Published in: 2019 IEEE 19th International Conference on Bioinformatics and Bioengineering (BIBE), 2019, Page(s) 405-409
DOI: 10.1109/bibe.2019.00079

Game on - using gaming technology to help children with palliative care needs: the MyPal project

Author(s): Norbert Graf
Published in: ehospice, Issue August 19, 2019, 2019

Electronic Patient-Reported Outcome–Based Interventions for Palliative Cancer Care: A Systematic and Mapping Review

Author(s): Christina Karamanidou, Pantelis Natsiavas, Lefteris Koumakis, Kostas Marias, Fatima Schera, Michael Schäfer, Sheila Payne, Christos Maramis
Published in: JCO Clinical Cancer Informatics, Issue 4, 2020, Page(s) 647-656, ISSN 2473-4276
DOI: 10.1200/cci.20.00015