Rezultaty
Report describing in full detail the defined clinical studies implementation plan.
MyPal user requirements elicitationReport documenting in detail the user requirements of MyPal posing comprehensive requirements to WP3, WP4 and WP5.
MyPal conceptual & reference architectureD3.1 is the direct outcome of Task 3.1 and will document the innovative, open, reference architecture of the adult’s clinical study.
MyPal ethicsReport establishing the ethical framework of MyPal with potential updates during the course of the project, given the continuous monitoring of ethical issues by T1.1 (live document).
eBookebook containing comprehensive clinical guidance on the implementation of PRO systems for adults and children
MyPal palliative care context and user needsReport defining the context of palliative care for cancer patients as considered in MyPal and the user need with respect to PRO systems.
MyPal-CHILD midterm recruitment reportMandatory deliverable according to the H2020 rules
Project WebsiteReport on the project Website, including the internal Website for partner collaboration.
User interaction methods for the adult’s ePRO toolD3.2 will report on innovative interaction methods for ePROs.
MyPal-CHILD first study subject approvals packageMandatory deliverable according to the H2020 rules.
MyPal-CHILD report on status of posting resultsMandatory deliverable according to the H2020 rules
MyPal-ADULT midterm recruitment reportMandatory deliverable according to the H2020 rules
Recommendations and best practices for integrating advanced PRO systems in palliative cancer careReport consolidating the outcomes of T13 and the outcomes of clinical studies WP6
MyPal impact assessment outcomesReport on effectiveness and costeffectiveness of the MyPal intervention
MyPal-ADULT first study subject approvals packageMandatory deliverable according to the H2020 rules.
Quality management planReport referring to the plans and the means for quality and risk management assurance.
MyPal ePRO personalisation and user engagement frameworkReport presenting the user engagement strategies employed in MyPal and the approach employed for adapting the MyPal tools to the patient needs, in order to ensure high user acceptance and effectiveness of the proposed intervention.
MyPal ePRO tool designReport describing the architecture and working mechanisms of the ePRO tool for children, including a detailed description of how gamification influences the motivation of the user.
MyPal clinical study protocol definitionReport defining in detail the clinical study protocols for MyPal-ADULT and MyPal-CHILD.
Report on testing and adaptation of the ePRO platformD3.4 will report on testing and adaptation of the ePRO tool for adults.
State-of-the-art on PRO systems for palliative cancer careReport setting the scene on the current state-of-the-art of PRO systems for palliative cancer care.
Integration plan for the patient reported outcome tools with the MyPal platformReport describing the integration plan of the MyPal tools in the overall platform
Evaluation and impact assessment frameworkReport describing in full detail the defined impact assessment framework
MyPal-ADULT report on status of posting resultsMandatory deliverable according to the H2020 rules
End of project expert policy and practice WorkshopReport on the outcomes of the Workshop that will be organised in the scope of MyPal in conjunction with a major international Conference eg the annual EAPC Conference
Prototype with the tools that will be employed for the MyPal clinical studies.
Report including the description of the data collected and/or generated in the project, as well as the different processes for ensuring its appropriate management and curation according to international standards.
Publikacje
Autorzy:
Meyerheim M, Burns-Gebhart A, Mirzaie K, Garani-Papadatos T, Braun Y, Graf N.
Opublikowane w:
Frontiers in Digital Health, Numer 2021 Sep 28, 2021, Strona(/y) 1-5.
Wydawca:
Frontiers Media SA
DOI:
10.3389/fdgth.2021.730680
Autorzy:
Mirzaie K, Burns-Gebhart A, Meyerheim M, Sander A, Graf N.
Opublikowane w:
Cancers, Numer 2022 Aug 11, 2022, Strona(/y) 3874, ISSN 2072-6694
Wydawca:
Multidisciplinary Digital Publishing Institute (MDPI)
DOI:
10.3390/cancers14163874
Autorzy:
Scarfò L, Karamanidou C, Doubek M, Garani-Papadatos T, Didi J, Pontikoglou C, Ling J, Payne C, Papadaki H, Rosenquist R, Stavroyianni N, Payne S, Ghia P, Natsiavas P, Maramis C, Stamatopoulos K.
Opublikowane w:
BMJ Open, Numer 2021 Nov 2, 2021, Strona(/y) e050256
Wydawca:
BMJ Publishing Group
DOI:
10.1136/bmjopen-2021-050256
Autorzy:
Meyerheim M, Karamanidou C, Payne S, Garani-Papadatos T, Sander A, Downing J, Stamatopoulos K, Ling J, Payne C, Scarfò L, Lokaj P, Maramis C, Graf N.
Opublikowane w:
BMJ Open, Numer 2021 Apr 13, 2021, Strona(/y) e045226
Wydawca:
BMJ Publishing Group
DOI:
10.1136/bmjopen-2020-045226
Autorzy:
Garani-Papadatos T, Natsiavas P, Meyerheim M, Hoffmann S, Karamanidou C, Payne S.
Opublikowane w:
Frontiers in Digital Health, Numer 2022 Feb 3 (accepted), 2022, Strona(/y) not yet assigned
Wydawca:
Frontiers Media SA
DOI:
10.3389/fdgth.2022.730430
Autorzy:
Hoffmann S, Schraut R, Kröll T, Scholz W, Belova T, Erhardt J, Gollmer D, Mauck C, Zacharioudakis G, Meyerheim M, Bonotis P, Kakalou C, Chatzimina M, Karamanidou C, Sander A, Didi J, Graf N, Natsiavas P.
Opublikowane w:
Frontiers in Digital Health, Numer 2021 Dec 8, 2021, Strona(/y) 1-10
Wydawca:
Frontiers Media SA
DOI:
10.3389/fdgth.2021.730948
Autorzy:
Koumakis L, Schera F, Parker H, Bonotis P, Chatzimina M, Argyropaidas P, Zacharioudakis G, Schäfer M, Kakalou C, Karamanidou C, Didi J, Kazantzaki E, Scarfo L, Marias K, Natsiavas P.
Opublikowane w:
Frontiers in Digital Health, Numer 2021 Dec 17, 2021, Strona(/y) 7-12
Wydawca:
Frontiers Media SA
DOI:
10.3389/fdgth.2021.730722
Autorzy:
Christina Karamanidou, Pantelis Natsiavas, Lefteris Koumakis, Kostas Marias, Fatima Schera, Michael Schäfer, Sheila Payne, Christos Maramis
Opublikowane w:
JCO Clinical Cancer Informatics, Numer 4, 2020, Strona(/y) 647-656, ISSN 2473-4276
Wydawca:
American Society of Clinical Oncology
DOI:
10.1200/cci.20.00015
Autorzy:
Payne S, Collingridge Moore D, Stamatopoulos K.
Opublikowane w:
Journal of Palliative Medicine, Numer 2021 Jun 4, 2021, Strona(/y) 962-964
Wydawca:
Mary Ann Liebert, Inc., publishers
DOI:
10.1089/jpm.2021.0120
Autorzy:
Payne C, Kondylakis H, Koumakis L.
Opublikowane w:
Frontiers in Digital Health, Numer 2022 Apr 7, 2022, ISSN 2673-253X
Wydawca:
Frontiers Media SA
DOI:
10.3389/fdgth.2022.888419
Autorzy:
Chatzimina M, Papadaki H, Pontikoglou C, Koumakis L, Marias K, Tsiknakis M.
Opublikowane w:
2021 IEEE EMBS International Conference on Biomedical and Health Informatics, Numer 2021 Aug 10, 2021, Strona(/y) 1-4
Wydawca:
IEEE
DOI:
10.1109/bhi50953.2021.9508587
Autorzy:
Karamanidou C, Maramis C, Stamatopoulos K, Koutkias V.
Opublikowane w:
Studies in health technology and informatics, Numer June 1, 2020, 2020, Strona(/y) 941-945
Wydawca:
IOS Press
DOI:
10.3233/shti200300
Autorzy:
Karamanidou C, et al.
Opublikowane w:
HemaSphere, Numer 2022 Oct 6, 2022
Wydawca:
European Hematology Association
Autorzy:
Christos Maramis, Sheila Payne, Sarka Pospisilova, Richard Rosenquist, Paolo Ghia, Charalampos Pontikoglou, Annette Sander, Michael Doubek, Norbert Graf, Julie Ling, Julia Downing, Christina Karamanidou, Elpida Pavi, Vassilis Koutkias, Fatima Schera, Stephan Kiefer, Lefteris Koumakis, Konstantinos Marias, Stefan Hoffmann, Heather Parker, Jonathan Reston
Opublikowane w:
2019 IEEE 19th International Conference on Bioinformatics and Bioengineering (BIBE), 2019, Strona(/y) 405-409, ISBN 978-1-7281-4617-1
Wydawca:
IEEE
DOI:
10.1109/bibe.2019.00079
Autorzy:
Bonotis P, Chytas A, Zacharioudakis G, Karamanidou C, Koumakis L, Stamatopoulos K, Natsiavas P.
Opublikowane w:
Studies in health technology and informatics, Numer 2021 May 1, 2021, Strona(/y) 1124-1125
Wydawca:
IOS Press
DOI:
10.3233/shti210375
Autorzy:
Payne S, Harding R.
Opublikowane w:
EAPC blog, Numer 2022 Apr 4, 2022
Wydawca:
EAPC
Autorzy:
Macdonald G, Downing J.
Opublikowane w:
EAPC blog, Numer 2021 Jun 16, 2021
Wydawca:
EAPC
Autorzy:
Norbert Graf
Opublikowane w:
ehospice, Numer August 19, 2019, 2019
Wydawca:
WHPCA
Autorzy:
Sander, A.
Opublikowane w:
Das Magazin der Medizinischen Hochschule Hannover, Numer 2021 Sep 22, 2021, Strona(/y) 13
Wydawca:
MHH
Autorzy:
Garani-Papadatos T, Payne S, Hughes S.
Opublikowane w:
EAPC blog, Numer 2021 Jan 11, 2021, Strona(/y) --
Wydawca:
EAPC
Autorzy:
Payne S, Salifu Y, Begovic D, Greenwood A. (eds.)
Opublikowane w:
Numer 2022 Dec 16, 2022
Wydawca:
Lancaster University
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