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Negotiating Digital Technologies in Palliative Home Care

Project description

Palliative care with digital solutions

Most Europeans prefer to spend their final hours at home, surrounded by loved ones. However, providing palliative care at home, particularly for those with terminal illnesses, can be challenging. Supported by the Marie Skłodowska-Curie Actions programme, the NEDIPAL project explores the use of digital technologies (teleconsultations, apps, wearables, and AI) in palliative home care. Overall, it aims to improve accessibility, sustainability, and the integration of these technologies. Conducted through field studies in Wallonia, Belgium, the project integrates health services research, palliative medicine, and digital inclusion to create a comprehensive approach to modern palliative care. Hosted by BRISPO, NEDIPAL seeks to transform the digital landscape of palliative care.

Objective

Most Europeans wish to spend their final hours at home, surrounded by loved ones. Specialist palliative home care services have been established to fulfill this wish, even for patients facing severe terminal illnesses. The sociological research project NEDIPAL: Negotiating Digital Technologies in Palliative Home Care aims to better understand the intricacies and challenges of using digital technologies such as teleconsultations, apps, wearables, and artificial intelligence to make palliative home care more accessible to a broader range of patient groups, while also enhancing its economic and environmental sustainability.

Current research typically views digital technology usage in palliative home care either from the viewpoint of patients and family caregivers or of professionals, with both seeming decoupled from one another. In contrast, NEDIPAL examines the co-production of palliative home care by professionals in collaboration with patients and family caregivers, through the lens of systems and organizational theory. The sociological project transcends disciplinary boundaries by integrating insights from health services research, palliative medicine, communication, and digital inclusion.

The research will involve qualitative on-site field studies in the Belgian region of Wallonia at five interdisciplinary quipes de soutien domicile. NEDIPAL is hosted by BRISPO, an interdisciplinary research center specializing in digitalization, health, life course, and aging.

With my supervisors international experience and unique competence, along with my prior research in palliative home care and experience in France, I am confident that I will achieve NEDIPALs research and training objectives and position myself as a leader in research on the digitalization of palliative care. This project will prepare me for achieving my mid-term career goal of working in Belgium or France and help me advance my non-academic career as an expert in digital health services.

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Keywords

Programme(s)

Topic(s)

Funding Scheme

HORIZON-TMA-MSCA-PF-EF - HORIZON TMA MSCA Postdoctoral Fellowships - European Fellowships

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Call for proposal

(opens in new window) HORIZON-MSCA-2024-PF-01

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Coordinator

VRIJE UNIVERSITEIT BRUSSEL
Net EU contribution
€ 200 400,00
Address
PLEINLAAN 2
1050 Bruxelles / Brussel
Belgium
Region
Région de Bruxelles-Capitale/Brussels Hoofdstedelijk Gewest Région de Bruxelles-Capitale/ Brussels Hoofdstedelijk Gewest Arr. de Bruxelles-Capitale/Arr. Brussel-Hoofdstad
Activity type
Higher or Secondary Education Establishments
Links
Total cost
No data