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Re-envisioning Vulnerability in HIV Care: Lived Experience, Emotional Meaning, and Service Innovation.

Project description

Everyday life of people with HIV in Finland

People living with HIV in Europe still confront stigma, mental distress and social exclusion, and are frequently neglected in both care and policymaking. Supported by the Marie Skłodowska-Curie Actions programme, the RE-HIV project explores how people living with HIV in Finland experience and navigate support systems. Using qualitative narrative interviews and interdisciplinary theories, it will examine how support is interpreted when it unintentionally causes emotional distress and how this affects mental health and social connectedness. The findings will be translated into recommendations for more inclusive and emotionally safe care and policy. The project will also produce academic outputs.

Objective

Despite major advances in HIV treatment, people living with HIV (PLHIV) in Europe continue to face emotional vulnerability, persistent stigma, and social marginalisation. These lived and emotional dimensions are underexplored in both research and policy, limiting the effectiveness of person-centred care and contributing to healthcare avoidance, mental distress, and reduced quality of life.

This interdisciplinary project addresses this gap by exploring how PLHIV in Finland interpret and navigate support systems—such as healthcare services, peer networks, and family—through the lens of stigma, emotional harm, and lived experience. Drawing on phenomenological-hermeneutics, Customer-Dominant Logic (CDL), and Value Co-Destruction (VCD) theory, the fellow will conduct in-depth narrative interviews with a diverse sample of PLHIV. The study will: (1) investigate how PLHIV experience and interpret support; (2) identify when and how support unintentionally causes emotional harm; (3) explore how these experiences impact mental health and social connectedness; and (4) translate insights into actionable recommendations for emotionally safe and inclusive services and policies.

The project directly supports EU goals under the EU HIV Action Plan 2024–2029, the EU Charter of Fundamental Rights, and Horizon Europe’s Health Cluster by generating evidence for non-discriminatory, person-centred care. Findings will inform academic publications, co-created policy briefs, and a practical framework for inclusive support.

The fellowship includes structured training in qualitative methods, emotional trauma ethics, service design, and open science. It will strengthen the fellow’s interdisciplinary expertise and establish long-term collaborations with service researchers, NGOs, and public health actors. The project enhances Europe’s capacity for equitable care and advances scientific, societal, and policy impact, particularly in HIV care and support for vulnerable populations.

Fields of science (EuroSciVoc)

Keywords

Programme(s)

Topic(s)

Funding Scheme

HORIZON-TMA-MSCA-PF-EF - HORIZON TMA MSCA Postdoctoral Fellowships - European Fellowships

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Call for proposal

(opens in new window) HORIZON-MSCA-2025-PF

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Coordinator

SVENSKA HANDELSHOGSKOLAN
Net EU contribution
€ 226 276,80
Address
ARKADIANKATU 22
00100 Helsinki
Finland
Region
Manner-Suomi Helsinki-Uusimaa Helsinki-Uusimaa
Activity type
Higher or Secondary Education Establishments
Links
Total cost
No data