Objective This study has been designed to evaluate the quality of haemophilia care in Europe to describe the Sol of European haemophiliacs and to estimate the costs needed to attain these levels of quality of life. About 2040 Patients will be recruited con-seductively from haemophilia comprehensive care centres from 22 Countries. The Study will consist of a Sol Study, Cost-of-Illness-, Cost-Effectiveness- and Cost-Utility-Analysis to perform total costs due to haemophilia, to compare alternative treatments and to determine patient's preferences. Haemophiliac patients from 4 years on will be stratified according to following characteristics: severity of haemophilia, presence of inhibitors, treatment schemes. Clinical and health economic data will be assessed at baseline and prospectively over a 6-month follow-up period. In addition the patients fill in a diary during the follow-up period. Programme(s) FP5-LIFE QUALITY - Specific Programme for research, technological development and demonstration on "Quality of life and management of living resources", 1998-2002 Topic(s) 1.1.1.-13. - Socio-economic aspects of life sciences and technologies Call for proposal Data not available Funding Scheme CSC - Cost-sharing contracts Coordinator LUDWIG-MAXIMILIANS UNIVERSITY OF MUNICH EU contribution No data Address Geschwister-Scholl-Platz 1 80539 MUENCHEN Germany See on map Total cost No data Participants (7) Sort alphabetically Sort by EU Contribution Expand all Collapse all MEDICAL ECONOMICS RESEARCH GROUP Germany EU contribution No data Address Paul-Gerhardt-Allee 42 81245 MUENCHEN See on map Total cost No data NATIONAL MEDICAL CENTER Hungary EU contribution No data Address Vagany u 2 fsz 1135 BUDAPEST See on map Total cost No data OXFORD RADCLIFFE HOSPITAL NHS TRUST United Kingdom EU contribution No data Address Off Headley Way, Manor House OX3 9DU OXFORD/HEADINGTON See on map Total cost No data THE UNIVERSITY OF MILANO Italy EU contribution No data Address Via Festa del Perdono 7 20122 MILANO See on map Total cost No data UNIVERSITY HOSPITAL MAS Sweden EU contribution No data Address Soedra Foerstadsgatan 20502 MALMOE See on map Total cost No data UNIVERSITY OF HAMBURG Germany EU contribution No data Address Martinistraße 52 20246 HAMBURG See on map Total cost No data UNIVERSITY OF MEDICINE AND PHARMACY VICTOR BABES TIMISOARA Romania EU contribution No data Address 2nd, P-ta Eftimie Murgu 1900 TIMISOARA See on map Total cost No data
