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Support dialogue towards the development of national cancer data nodes

 

The proposal should address all of the following:

  • Foster the development of national cancer data nodes through policy dialogues at national level with relevant actors in the research and innovation community, digital health and public health policy.
  • Identify and build synergies between European infrastructures related to health data access and health data sharing for primary and secondary data uses (e.g. MyData@eu, HealthData@eu, ELIXIR, BBMRI, and others), and other initiatives relevant for the UNCAN.eu and ECPDC platforms.
  • Identify challenges and barriers to the effective future implementation of the UNCAN.eu and the ECPDC platforms at national and European levels and propose operational solutions to overcome them.
  • Identify population subgroups with poor digital skills and geographical areas with limited digital resources that might prevent the use of those platforms and propose solutions to reduce the digital divide.

The involvement of cancer research centres, digital infrastructures, public health bodies, policy makers and cancer patient organisations will ensure that the UNCAN.eu and ECPDC platforms will deliver effective outcomes for researchers, clinicians, healthcare providers, cancer patients, survivors, and caregivers.

Due consideration should be given to EU-funded initiatives, infrastructures and projects such as: EOSC4cancer[[https://eosc4cancer.eu/]] canSERV[[https://www.canserv.eu/]], the European Cancer Information System[[https://ecis.jrc.ec.europa.eu/info/cancer_registries.html]], and the successful proposals resulting from the topics; HORIZON-MISS-2024-CANCER-01-01, HORIZON-MISS-2024-CANCER-01-06.

This topic requires the effective contribution of Social Sciences and Humanities (SSH) disciplines and the involvement of SSH experts, institutions as well as the inclusion of relevant SSH expertise, to produce meaningful and significant effects enhancing the societal impact of the related research activities.

The Commission will facilitate coordination. Therefore, successful proposals should include a budget for networking, attendance at meetings, and potential joint activities without the prerequisite to give details of these at this stage. Examples are: organising joint workshops, establishing best practices, joint communication or citizen engagement activities with projects funded under other clusters and pillars of Horizon Europe, or other EU programmes, as appropriate. Successful proposals will be asked to join the 'Understanding' and ‘Quality of Life’ clusters for the Mission on Cancer established in 2022 and 2023. The details of joint activities will be defined during the grant agreement preparation phase and during the life of the project.

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