Objetivo
Clinical transplantation is a broadly used therapeutic approach in life-threatening diseases. There are two major problems for which a national and international co-operation is condition sine qua non. One is scarcity of (donor) organs and the second is the diversity and multiplicity of genetic factors regulating donor/recipient matching. Therefore, information and communication technology became an inherent part of transplantation medicine. In organ transplantation the patient waiting list, organ allocation, patient selection (etc...) demands challenging software systems; in bone marrow transplantation excessive donor register, rapid and effective inter-centre communication, very sophisticated donor/recipient pair selection, etc... are demanding information and communication technology. E.g. for a patient "somewhere" in Europe a bone marrow donor has to be selected amongst more than 2,300,000 volunteers listed by 25 national registers. In Central Europe, transplantation activities started at the level of medical care and laboratory work. The number of kidney transplantations in Prague reached in 1994 the West-European level and Czech and Hungarian bone marrow registers are on the European list of national registers (with 4000 and 2000 donors registered, respectively). However, there are major obstacles in controlling the growing complexity of the situation.
This project proposes information and communication technology transfer to Central Europe, namely by:
education of specialist(s),
transfer and adaptation of software systems,
appropriate systems for linking to European network(s),
purchase of durable equipment needed for this project.
Co-ordination of the project will be helped by the Information Processing Department of the University Hospital Leiden; there is expertise par excellence because there are the centres for Eurotransplant (organ transplantation) and Eurodonor (bone-marrow transplantation).
Implementation:
improvement of information technology for national transplant system,
link with European Donor Secretariat (EDS) and Bone Marrow Donors World-wide (BMDW),
link with European Marrow Donor Information System (EMDIS),
link with International Transplant Waiting Lists (kidney).
The result of this project would be participation in the European Transplant-Network organisation with important consequences for medical care. The potential extension of these results to further (East and Central Europe) countries is also an important consequence for the future. Finally, the proposal is useful for "both sides" because enables organ and cell exchange for genetically matched combinations.
Tema(s)
Data not availableConvocatoria de propuestas
Data not availableRégimen de financiación
CSC - Cost-sharing contractsCoordinador
1066 Cx Amsterdam
Países Bajos