Expanding Digital Health through a pan-European EHRxF-based Ecosystem

Informations projet

XpanDH

N° de convention de subvention: 101095594

DOI

10.3030/101095594

Projet clôturé

Date de signature de la CE 19 Novembre 2022

Date de début 1 Janvier 2023

Date de fin 31 Decembre 2024

Financé au titre de

• Health

Coût total

€ 1 972 310,76

Contribution de l’UE

€ 1 972 260,75

Coordonné par

ASSOCIACAO ISCTE CONHECIMENTO E INOVACAO - CENTRO DE VALORIZACAO E TRANSFERENCIA DE TECNOLOGIAS
Portugal

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Livrables

Documents, reports (23)

D1.6 - Report on Policy Dialogue activities and achievements

D1.6 – Report on Policy Dialogue activities and achievements (M23) – Summary of policy dialogue efforts, policy board constitution, engagement and achievements| Lead: NCZI (R, PU)

D7.2 - XpanDH DC and Outreach Report

D7.2 - XpanDH DC and Outreach Report (M12, M24) - evaluation of the CD and outreach activities| Lead: ECHA (R, PU)

D1.4-Definition of the EEHRxF adoption domains Report

Definition of the EEHRxF adoption domains Report (M4,18)| Lead: Iscte (R, PU)

D3.2.2 - Readiness model evaluation process Report

D3.2.2 - Readiness model evaluation process Report (M13) – Describing the process for assessing the X- Bundle specifications and explain how individual organisations can use the model and evaluate themselves against this model | Lead: OKFO (R, PU)

D4.1.2 - Adoption opportunities, challenges and barrier

D4.1.2 - Adoption opportunities, challenges and barriers (M21) - Adoption workshops organised and executed, interactions with external stakeholders, identification of opportunities, challenges and barriers for adoption |) Lead: UNINOVA (R, PU

D1.5.3- Updated Ethics and Data Management Plan

D1.5.3- Updated Ethics and Data Management Plan (M18); Lead: Iscte (R, PU)Updated data management plan, as the DMP will be updated subsequently during the course of the project

D3.2.1 - Intermediate readiness model evaluation process

D3.2.1 - Intermediate readiness model evaluation process 1.0 (M12) - Intermediate version to be delivered to WP4, WP5 and WP6 - Work in progress verification of the milestone version 1 | Lead: OKFO (R, PU)

D2.3-Report on for quality labelling of EHRs

D2.3 - Report on quality labelling of EHRs (M10, M15) | Lead: CEN/TH (R, PU): technical contributions in the Quality labelling for EHRs and consumer health products.

D5.3 - X-Bundle open-source community of the doers

D5.3 - X-Bundle open-source community of the doers (M24) - community governance model and tools, incl. recommendations on the community sustainability | Lead: Gnomon (R, PU)

D1.2-QRC Plan

Quality and Risk Management Plan (QRC Plan, D1.2) for continuous risk monitoring and assessment. This will ensure the compliance with external and internal standards in force, as well as the assessment and monitoring of the project’s progress.

D7.1 - XpanDH DC,Outreach and Exploitation Plan

D7.1 - XpanDH Dissemination, Communication, Outreach and Exploitation Plan (M6, 12) - outlines the project visual identity and the DC & Outreach activities, revised during the project | Lead: ECHA (R, PU)

D6.1.1-Governance & operating model for asset bundles & Exploitation PLan

D6.1.1 - Governance and operating model for XpanDH asset bundles and their exploitation plan (M18) | A comprehensive framework and workflow for the quality assurance, licensing, usage feedback and maintenance of asset bundles. lean Exploitation Plan will be devised under WP6 (T6.1). The main exploitable and sustainable results of the project will be well formulated definitions of interoperability adoption domains, an inventory of the corresponding interoperability assets needed to support the exchange of information, along with the specification of profiles, FHIR resources, value lists, licence requirements and any data protection impact analysis that applies.Lead: I~HD (R, PU)

D6.2 - Report on EEHRxF new adoption domains

D6.2 - Report on EEHRxF new adoption domains (updated M24) - Formalised proposal for the next priority of adoption domains, and on how to proceed with the development of asset bundles, with concrete examples in the area of telehealth| Lead: Iscte (R, PU)

D1.5.1-Ethics and Data Management Plan

D1.5.1-Ethics and Data Management Plan1IscteRPUM6, 24Ethics and Data Management Plan will be taken over by other WP during the lifecycle of the project.

D5.2 - Interoperability Enabler Report

D5.2 - Interoperability Enabler Report (M18) - l factors that drive and help to capture value from interoperability for each of the adoption domains, related benefits, investment and change needed. | Lead: IHD | (R, PU)

D3.3 - X-Bundle Readiness steppingstone guides

D3.3 - X-Bundle Readiness steppingstone guides (M12,24) - Easy to use guides for key constituencies and educational material to train the relevant parties on the steps to take to reach their next level in the readiness model | Lead: CHUP (R, PU)

D4.2 - XpanDH feasibility demonstrators

D4.2 - XpanDH feasibility demonstrators (M12, M21) – Interim results, experimentation results, if and how selected parties managed to reach the next maturity/readiness level | Lead: UniNova (R, PU)

D1.1.1-XpanDH project Handbook

XpanDH project Handbook (M4) | Lead: Iscte (R, PU)will cover guidance on how to identify and mitigate gender bias, or on how to solve any conflict resulting from differences in partners or coordinator’s GEPs, and monitor progress towards achieving a greater gender balance in all project activities (e.g., experimentation bubbles, X-Nets dynamics, invitations for events and workshops, as well as in decision making processes). Gender diversity was sought in the leading figure of the main partners of the consortium.

D4.1.1-XpanDH Adoption Domains

D4.1.1 - XpanDH Adoption Domains (M6) – Adoption domains defined, associated bubbles of experimentation specified | Lead: UNINOVA (R, PU)

D1.5.2-EEHRxF legal, cybersecurity & trust issues Report

D1.5.2 - EEHRxF related legal, cybersecurity & trust issues report (M6, M20) – Overview of legal, cybersecurity and trust related issues relevant for the X-Bundle creation and sustainability | Lead: Iscte (R, PU)

D2.1-Digital health compass for the application of EHRxF

D2.1 - Digital health compass for the application of EHRxF (M9) | Lead: HL7 (R, PU): Sets up the framework for the WP6 work, linking to previous and parallel efforts

D7.3 - Concertation Activities Report

D7.3 - Concertation Activities Report (M12, 24) with activities towards other relevant initiatives, projects etc. | Lead: EMPIRICA (R, PU)

D6.1.2 - Published library of documented asset bundle

D6.1.2 - Published library of documented asset bundles (M24) - Inventory of all XpanDH asset bundles with links to all of their digital content needed for use | Lead: I~HD (R, PU)

Websites, patent fillings, videos etc. (1)

D7.4-X-panDH website

D7.4-X-panDH websitePublic presence in the web and social media (including a website) where all outputs and activities will be disseminated as described in Task 7.1 (M6), Lead: ECHA (DEC, PU)

Other (1)

D2.2-EHRxF FHIR IG and repository of supporting materials

D2.2 - EHRxF FHIR IG and repository of supporting materials (M12, M24) | Lead: HL7 (Other, PU): Website repository to collect artefacts used to accelerate the contributions of the EEHRxF community. Results build incrementally, continuously updated, intermediate snapshot on M12, final release on M24

Publications

Peer reviewed articles (2)

Interoperability of telemonitoring data in digital health solutions: a scoping review

Auteurs: Diogo Martins, Simon Lewerenz, Anderson Carmo, Henrique Martins
Publié dans: Frontiers in Digital Health, Numéro 7, 2025, ISSN 2673-253X
Éditeur: Frontiers Media SA
DOI: 10.3389/FDGTH.2025.1502260

Assessing Cross-Border Telemedicine Data Exchange in the European Union: A Call to Action

Auteurs: Simon Lewerenz, Diogo Martins, Henrique Martins
Publié dans: Telemedicine and e-Health, Numéro 30, 2024, ISSN 1530-5627
Éditeur: Mary Ann Liebert Inc
DOI: 10.1089/tmj.2024.0338