Data Spaces: Making Sense of Health in an Age of Cross-Border Data Infrastructures

Project Information

DataSpace

Grant agreement ID: 101096999

DOI

10.3030/101096999

EC signature date 9 June 2023

Start date 1 October 2023

End date 30 September 2028

Funded under

• European Research Council (ERC)

Total cost

€ 2 499 060,00

EU contribution

€ 2 499 060,00

Coordinated by

KOBENHAVNS UNIVERSITET
Denmark

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Links to deliverables and publications from FP7 projects, as well as links to some specific result types such as dataset and software, are dynamically retrieved from OpenAIRE .

Publications

Book chapters (1)

23314 Organising Cross-Border Health Data Infrastructures

Author(s): Klaus Hoeyer
Published in: De Gruyter Handbook of Digital Health and Society, 2026
Publisher: De Gruyter
DOI: 10.1515/9783111247854-014

Peer reviewed articles (9)

Waiting as a frontier: (Un)making patients for uterus transplantation in Denmark

Author(s): Zainab Afshan Sheikh, Alexandra Middleton, Anja M.B. Jensen
Published in: Social Science & Medicine, Issue 401, 2026, ISSN 0277-9536
Publisher: Elsevier BV
DOI: 10.1016/J.SOCSCIMED.2026.119291

The European Health Data Space can be a boost for research beyond borders

Author(s): Andrea Ganna, Angel Carracedo, Christian F. Christiansen, Emanuele Di Angelantonio, Pearl A. Dykstra, Angel M. Dzhambov, Roland Eils, Sara Green, Katharina L. Schneider, Tibor V. Varga, Anna-Leena Vuorinen, Luisa Zuccolo, Naja Hulvej Rod, Klaus Hoeyer
Published in: Nature Medicine, Issue 30, 2024, ISSN 1078-8956
Publisher: Springer Science and Business Media LLC
DOI: 10.1038/S41591-024-03246-6

Survey of attitudes in a Danish public towards reuse of health data

Author(s): Lea Skovgaard, Claus Thorn Ekstrøm, Mette N. Svendsen, Klaus Hoeyer
Published in: PLOS ONE, Issue 19, 2024, ISSN 1932-6203
Publisher: Public Library of Science (PLoS)
DOI: 10.1371/JOURNAL.PONE.0312558

Policy Studies

Author(s): Klaus Hoeyer; Sara Green
Published in: Policy Studies, 2024, ISSN 0144-2872
Publisher: Taylor & Francis
DOI: 10.1080/01442872.2024.2415149

​​Data on the Mind:​ How the Data on the Use of Force in Psychiatry Interacts with Professional Judgment

Author(s): Klaus Hoeyer; Anne Hoeyen Munk; Sarah Wadmann
Published in: Medicine Anthropology Theory, 2025, ISSN 2516-8061
Publisher: University of Edinburgh with support from Edinburgh Diamond.
DOI: 10.17157/MAT.12.1.9053

Health Policy

Author(s): Marelli, Luca; Stevens, Marthe; Sharon, Tamar; Van Hoyweghen, Ine; Boeckhout, Martin; Colussi, Ilaria; Dgelsegger-Marquez, Alexander; El-Sayed, Seliem; Hoeyer, Klaus; van Kessel, Robin; Krekora Zajac, Dorota; Matei, Mihaela; Roda, Sara; Prainsack, Barbara; Schlünder, Irene; Shabani, Mahsa; Southerington, Tom
Published in: Health Policy, 2023, ISSN 0168-8510
Publisher: Elsevier
DOI: 10.1016/J.HEALTHPOL.2023.104861

Health in data space: Formative and experiential dimensions of cross-border health data sharing

Author(s): Klaus Hoeyer, Sara Green, Andrea Martani, Alexandra Middleton, Clémence Pinel
Published in: Big Data & Society, Issue 11, 2024, ISSN 2053-9517
Publisher: SAGE Publications
DOI: 10.1177/20539517231224258

Policy Studies

Author(s): Porta, Vittoria; Fors Connolly, Anne-Marie; Rod, Naja Hulvej; Hoeyer, Klaus; Van Hoyweghen, Ine; Botrugno, Carlo; Lucivero, Federica; Testa, Giuseppe; Marelli, Luca
Published in: Policy Studies, 2025, ISSN 0144-2872
Publisher: Taylor & Francis
DOI: 10.1080/01442872.2025.2486159

User journeys in cross-European secondary use of health data: insights ahead of the European Health Data Space

Author(s): Rachel B Forster; Eva Garcia Alvarez; Adrian G Zucco; Enrique Bernal-Delgado; Gayo Diallo; Francisco Estupiñán-Romero; Andrea Ganna; Madeleine Gorman-Asal; Christina Hilmarsen; Petr Holub; Klaus Hoeyer; Arti Rawat; Naja H Rod; Anna-Leena Vuorinen; Tibor V Varga
Published in: European Journal of Public Health, 2025, ISSN 1464-360X
Publisher: Oxford Academic
DOI: 10.1093/EURPUB/CKAF096