Project description
Innovative palliative care approach for children and young people
Palliative care is specialised medical care designed to alleviate pain and other symptoms associated with severe illnesses. Its importance is paramount for children, adolescents, and young people with life-limiting conditions. However, due to taboos, its use is often limited. The EU-funded PALLIAKID project seeks to assess new interventions for young people in need of palliative care across Europe. The project places emphasis on early identification, comprehensive assessment, and the development of interdisciplinary care plans. Its outcomes include an early detection system, interventions, and capacity-building programmes. With a consortium comprising 19 entities possessing the necessary expertise, including clinical sites, networks, experts, and technological partners, PALLIAKID is well-positioned to achieve its objectives.
Objective
PALLIAKID is an interdisciplinary project aiming to evaluate the feasibility, effectiveness, and cost-effectiveness of novel interventions for children, adolescents and young people (AYA) with palliative and end-of--life care needs in different healthcare systems across Europe, with a focus on those factors that influences the active patients' and family caregivers' engagement. PALLIAKID responds to several needs or gaps identified by the consortium clinical partners, grouped into three cornerstones of paediatric palliative care: 1) Early identification of children and AYAs with palliative and end-of-life care needs, 2) Comprehensive assessment of children and their family caregivers' needs, 3) A comprehensive, personalised, interdisciplinary care plan including Advance Care Planning. The proposed solution entails three main results: PALLIAKID Eary Detection System, PALLIAKID intervention (Needs assessment, Advance Care Planning and Patient Journey digital platform); and PALLIAKID XR-based capacity-building program for professionals. In addition, the project will develop policy recommendations, guidelines and standards for patient-centred communication, together with a scale-up strategy to guarantee the project result's’ sustainability and impact. In this sense, PALLIAKID aims to reduce taboos and misunderstandings of paediatric palliative care with its activities and the planned Public Engagement Strategy.
The consortium is composed of 19 entities with the needed and complementary expertise and knowledge to respond to the proposed objectives, including the triad perspective (child-family-professional): five clinical sites to co-design and test the PALLIAKID solutions, two European networks, four experts in the needs assessment and ACP tools to be adapted (HexCom and IMPACT), three technological partners, one expert in evaluation, three experts in SSH and one expert in data and ethical issues.
Fields of science
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Programme(s)
Funding Scheme
HORIZON-RIA - HORIZON Research and Innovation ActionsCoordinator
08950 Esplugues De Llobregat
Spain
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Participants (17)
Legal entity other than a subcontractor which is affiliated or legally linked to a participant. The entity carries out work under the conditions laid down in the Grant Agreement, supplies goods or provides services for the action, but did not sign the Grant Agreement. A third party abides by the rules applicable to its related participant under the Grant Agreement with regard to eligibility of costs and control of expenditure.
08950 Esplugues De Llobregat
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00920 Helsinki
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010073 BUCURESTI
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The organization defined itself as SME (small and medium-sized enterprise) at the time the Grant Agreement was signed.
46010 Valencia
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46870 Ontinyent
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The organization defined itself as SME (small and medium-sized enterprise) at the time the Grant Agreement was signed.
3015 GD Rotterdam
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3400 Hillerod
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1004 Riga
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00029 Helsinki
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08007 Barcelona
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Legal entity other than a subcontractor which is affiliated or legally linked to a participant. The entity carries out work under the conditions laid down in the Grant Agreement, supplies goods or provides services for the action, but did not sign the Grant Agreement. A third party abides by the rules applicable to its related participant under the Grant Agreement with regard to eligibility of costs and control of expenditure.
08007 Barcelona
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50139 Firenze
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06800 Ankara
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The organization defined itself as SME (small and medium-sized enterprise) at the time the Grant Agreement was signed.
38068 Rovereto
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The organization defined itself as SME (small and medium-sized enterprise) at the time the Grant Agreement was signed.
1800 Vilvoorde
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3584 CX Utrecht
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20123 Milano
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Partners (1)
Partner organisations contribute to the implementation of the action, but do not sign the Grant Agreement.
BS2 2NT BRISTOL
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