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CORDIS

A PRivacy-prOTecting Environment for Child Transplants health-related and genomic data integration in the European Reference Network

Project description

Data integration for improved outcomes in child transplants

Child patients who undergo rare paediatric transplant operations need effective outcomes. To achieve this, data-driven innovations are essential. The EU-funded PROTECT-CHILD project aims to improve outcomes for these patients by integrating high-throughput data from various sources. It focuses on developing a secure infrastructure, harmonising data standards, and assembling large datasets to enhance clinical outcomes. The project brings together a consortium of specialists in technology, data standardisation, clinical expertise, legal experts, patient representatives, and policymakers. It aims to enable the secure and compliant processing, analysis, and sharing of sensitive personal data while preserving privacy and security.

Objective

PROTECT-CHILD is a project that aims to improve the outcomes of rare pediatric transplant patients by integrating multiple sources of high-throughput data from registries, hospital-based and public repositories, complying with ongoing initiatives such as the European Open Science Cloud (EOSC) and the European Health Data Space (EHDS). The project focuses on the co-design of a secure and privacy-preserving infrastructure, harmonization of data standards, and creation of a public/private infrastructure for assembling large datasets to improve clinical outcomes. The project involves top-level expertise from a consortium of technology specialists, data standardization experts, and High-Performance Computing (HPC) centers, as well as clinical experts, legal experts, patients’ representatives, and policy makers. The project is aligned with EHDS and General Data Protection Regulation (GDPR) principles and aims to empower secure and compliant processing, analysis, and sharing of sensitive personal data, including genomics, while preserving data privacy and security.

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Programme(s)

Topic(s)

Funding Scheme

HORIZON-RIA - HORIZON Research and Innovation Actions

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Call for proposal

(opens in new window) HORIZON-HLTH-2023-TOOL-05

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Coordinator

UNIVERSIDAD POLITECNICA DE MADRID
Net EU contribution
€ 1 015 265,00
Address
CALLE RAMIRO DE MAEZTU 7 EDIFICIO RECTORADO
28040 Madrid
Spain
Region
Comunidad de Madrid Comunidad de Madrid Madrid
Activity type
Higher or Secondary Education Establishments
Links
Total cost
€ 1 015 265,00

Participants (17)

Partners (1)