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National CAncer data Node DeveLopErs

Project description

Improving cancer data management across Europe

Cancer remains a significant health threat and societal burden. Europe’s Beating Cancer Plan aims to improve the lives of over 3 million people by 2030 through better prevention, early detection, diagnostics, therapeutics, and quality of life. However, a significant challenge is the poor management of cancer data from research and healthcare. The EU-funded CANDLE project will enhance national and international health data infrastructures, aligning with the European Health Data Space (EHDS) in Member States. It will also identify and address barriers to implementing the UNCAN.eu and ECPDC digital platforms. Additionally, the project will provide a ‘ready-to-use’ CANDLE resource kit for data users and developers. This initiative is part of the Cancer Mission.

Objective

Despite decades of devoted research, cancer remains a tremendous health threat and societal burden. Europe's Beating Cancer Plan aims to improve the lives of more than 3 million people by 2030 by improving prevention, early detection, diagnostics, therapeutics, and quality of life. The biggest single hurdle here is the highly inadequate way cancer data, both from research and healthcare, are still being dealt with. While other areas of society (e.g. e-finance, e-commerce, logistics, travel, meteorology, etc.) have fully exploited advances in data and information technology to serve organisations as well as individual consumers, so far this has failed in the health domain. Consequently, cancer data are hard to Find, Access, make Interoperable and Reuse. Evidently this is not caused by lack of suitable technology, but rather by organisational, social and cultural causes. Inherently, solving the problem requires a cultural shift from the current craftsmanship approach to cancer research and data, to a drastic collaboration model at industrial scale.
CANDLE therefore aims to scale-up and improve existing (inter)national health data infrastructures, align maximally with national EHDS implementations in member states, including HDAB’s, DAAMS’s and SPE’s. CANDLE will also identify and resolve potential barriers (https://www.health-ri.nl/en/participation/obstacles-removal-trajectory ) that jeopardize effective implementation of UNCAN.eu and ECPDC digital platforms. CANDLE aims to equip data users and NCDN developers with a ‘ready-to-use' CANDLE Resource Kit in a process oriented (research journey, patient journey, data life cycle) way. This action is part of the Cancer Mission clusters of projects 'Understanding' and ‘Quality of Life’ established in 2022 and 2023.
In summary, CANDLE will provide an avenue towards a successful and highly desired data transformation in European cancer research and serve as a catalyzer for the UNCAN.eu and ECPDC platforms by advancing the development of NCDNs to reach the goal of the Cancer Mission and Europe’s Beating Cancer Plan, i.e. reducing the burden of cancer.

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HORIZON-CSA - HORIZON Coordination and Support Actions

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Call for proposal

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(opens in new window) HORIZON-MISS-2024-CANCER-01

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Coordinator

STICHTING HEALTH-RI
Net EU contribution

Net EU financial contribution. The sum of money that the participant receives, deducted by the EU contribution to its linked third party. It considers the distribution of the EU financial contribution between direct beneficiaries of the project and other types of participants, like third-party participants.

€ 388 000,00
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JAARBEURSPLEIN 6
3521 AL Utrecht
Netherlands

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Total cost

The total costs incurred by this organisation to participate in the project, including direct and indirect costs. This amount is a subset of the overall project budget.

€ 388 000,00

Participants (30)

Partners (9)

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