Objective
The overall goal of the Big Data for Better Outcomes (BD4BO) programme is to facilitate the use of ‘big data’ to promote the development of value-based, outcomes-focused healthcare systems in Europe. To fully exploit the transformative potential of big data, consideration will need to be taken of the use of detailed personal and biological information across the spectrum of care delivery, starting from the development of innovative medicines and treatments, to market access and adoption, diffusion, and use in healthcare systems by providers and patients. This paradigm shift requires shared understanding and standards among healthcare stakeholders including patients, providers, payers, regulators, policy makers, pharmaceutical industry, and academia.
OBJECTIVES
The proposed Coordination and Support Action (CSA) will establish an enabling platform that brings together these stakeholder groups across the BD4BO programme to ensure quality and consistency of individual projects in line with the overarching programme objective. Our consortium therefore aims to promote the use of big Data for better Outcomes, policy Innovation and healthcare system Transformation (DO->IT). Accordingly, we will:
• Define a programme strategy that ensures quality, consistency and sustainability of health outcomes related activities across individual BD4BO projects.
• Integrate, synthesise, and manage knowledge from all BD4BO projects, making it easily accessible via a single knowledge exchange platform.
• Act as pivotal point of collaboration, stakeholder engagement and communication for all BD4BO projects.
• Provide transparency and enable the use of patient health data and human biological samples for research purposes by developing minimum data privacy standards for Informed Consent Forms (ICFs) and supporting materials for use by individual BD4BO disease-specific projects and more widely in the Research and Development (R&D) sector.
Fields of science
Programme(s)
Funding Scheme
IMI2-CSA - Coordination & support actionCoordinator
WC2A 2AE London
United Kingdom
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Participants (35)
4056 Basel
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M1 4BT Manchester
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10422 Stockholm
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1210 Bruxelles / Brussel
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1030 Bruxelles / Brussel
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1085 Budapest
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SW7 2AZ LONDON
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223 61 Lund
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The organization defined itself as SME (small and medium-sized enterprise) at the time the Grant Agreement was signed.
20136 Milano
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0456 Oslo
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SW1E 6QT LONDON
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1831 Diegem
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51373 Leverkusen
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55218 Ingelheim
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2017 Boudry
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1050 Bruxelles / Brussel
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28006 MADRID
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TW89GS Brentford
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E1 1DU LONDON
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64295 DARMSTADT
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2340 Beerse
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RG21 4FA Basingstoke
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64293 Darmstadt
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08889 Whitehouse Station Nj
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2880 Bagsvaerd
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CT13 9NJ Sandwich
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4070 Basel
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94250 GENTILLY
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92284 Courbevoie
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1070 Bruxelles / Brussel
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10117 Berlin
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10117 Berlin
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0213 Oslo
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75654 Paris
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L69 7ZX Liverpool
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