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Big Data for Better Outcomes, Policy Innovation and Healthcare System Transformation - Sofia ref.: 116055

Deliverables

Level 2 Clinical ICF

Migration

Level 1 Clinical ICF based on T4.1.1, T4.2.1 and D4.15

Migration

Training Materials for patients and to increase awareness about R&D, and to clarify essential aspects of data privacy laws and regulations in R&D

Migration

Toolkit for the identification, selection, and measurement of outcomes in real world settings for BD4BO projects

Migration

Narrative: The consortium narrative that communicates the purpose of the BD4BO programme

Migration

Establish unmet ‘big data’ data needs of the health care system

Migration

Provide quarterly updates on key learnings from BD4BO projects about outcomes standardisation and methodological issues

Migration

Level 2 Non-Clinical ICF

Migration

Level 3 Biobanking ICF

Migration

Develop a targeted outreach plan for external collaboration with stakeholders

Migration

Develop interim/short-term strategic guidance document

Migration

Interim guidance document for existing BD4BO projects on approach proposed by the Distributed Data Network working group

Migration

Level 3 Non-Clinical ICF

Migration

Develop the overall BD4BO programme strategy/long-term strategic guidance

Migration

Level 2 Biobanking ICF

Migration

Level 3 Clinical ICF

Migration

Explanatory Information on minimum data privacy standards for ICFs for clinical studies, non-clinical studies and biobanking incl. focus group’ feedback on the Clinical ICF, Non-Clinical ICF and Biobanking ICF

Migration

Summary of the empirical investigation results, including proposal on method in order to integrate survey results

Migration

Publications

Big Data for Better Outcomes: Supporting Health Care System Transformation in Europe

Author(s): Miklós Szócska, Sahan Jayawardana, Carin Smand, Tayyab Salimullah, Catherine Reed and Shahid Hanif
Published in: EuroHealth, Issue 2017; Vol. 23(1):, 2017, Page(s) 7-9, ISSN 1356-1030
Publisher: London School of Economics and Political Science

Connecting the dots: putting big data to work for health systems

Author(s): Maximilian Salcher
Published in: EuroHealth, Issue 2017; Vol. 23(1):, 2017, Page(s) 3-6, ISSN 1356-1030
Publisher: London School of Economics and Political Science

Interim guidance document for existing BD4BO projects on approach proposed by the Distributed Data Network working group

Author(s): Michel Van Speybroeck (Janssen), Michael Arend (Bayer), Jeremy Hayter (Pfizer), Joachim Marti (Imperial College London), Anthouny Rowe (Janseen), Jerry Lanfear (Pfizer)
Published in: 2017
Publisher: BD4BO Programme

Interim strategic guidance document

Author(s): Myriam Drysdale, Marianne Cunningham and Bart Barefoot(GlaxoSmithKline); Fredrik Moen from the Swedish Institute of Health; Tino Melzer (Bayer); Irene Schluender (TMF);Michel Van Speybroeck (Janssen); Michael Arend (Bayer); Jeremy Hayter (Pfizer); Joachim Marti (Imperial College London); Anthony Rowe (Janssen);Jerry Lanfear (Pfizer);Carmen Fenollosa (LSE);László Bencze (Semmelweis University)
Published in: 2017
Publisher: BD4BO Programme

CliniCal Core outComes sets in real World data

Author(s): Ciani O1, Meregaglia M2, Jayawardana S3, Carney C3, Salcher M3, Williamson P41Centre for Research on Health and Social Care Management (CERGAS), Bocconi University, Milan, Italy, 2Bocconi University, Milan, Italy, 3London School of Economics and Political Science, London, UK, 4University of Liverpool, Liverpool, UK
Published in: VALUE IN HEALTH Journal, 2018, Page(s) 112
Publisher: https://www.valueinhealthjournal.com/

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