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Reflecting the Positive diveRsities of European prIorities for reSearch and Measurement in end of life cAre

Objective

There is little coordination in undertaking research in end of life care. This is due to lack of agreement on what constitutes “end of life” cancer care, no information on public or clinical priorities for achieving a “good death” in a culturally diverse Europe, few appropriate measures of quality, and a lack of established best practice. “PRISMA” aims to deliver an integrated programme to coordinate research priorities and practice. The work packages will undertake actions to identify cultural differences in end of life care, establish a collaborative research agenda informed by public and clinical priorities, and draw together best practice and resources for quality measurement. The Palliative Outcome Scale (POS) is a multidimensional tool that measures the physical, psychological, spiritual and information needs of patients and families at the end of life. It has been culturally adapted in 20 EU countries and widely used by over 100 services to evaluate and improve quality of care. However, there have been no opportunities to share practice, identify shared and country-specific domains, and coordinate to improve research across Europe. By coordinating POS use, “PRISMA” will offer a model to optimise end of life care research and measurement and identify both commonalities and differences in the evaluation of quality indicators for cancer patients and their families across Europe. Incorporating wide public/clinical consultation with the coordination of POS use into this programme will advance scientifically sound practice while taking account of cultural difference and public expectations. Through integrated action, we will exchange experience, shape best practice, and plan future collaboration through identification of priorities. This will enable research to harmonise and reflect the diversity and the needs of European citizens and clinicians. Support for the POS ensures that direct impact is felt between research and daily clinical practice.

Field of science

  • /medical and health sciences/clinical medicine/oncology/cancer

Call for proposal

FP7-HEALTH-2007-A
See other projects for this call

Funding Scheme

CSA-CA - Coordination (or networking) actions

Coordinator

KING'S COLLEGE LONDON
Address
Strand
WC2R 2LS London
United Kingdom
Activity type
Higher or Secondary Education Establishments
EU contribution
€ 643 228
Administrative Contact
Paul Labbett (Mr.)

Participants (10)

FUNDACIO CLINIC PER A LA RECERCA BIOMEDICA
Spain
EU contribution
€ 220 591
Address
Carrer Rossello 149
08036 Barcelona
Activity type
Research Organisations
Administrative Contact
Emili Bargalló (Mr.)
NORGES TEKNISK-NATURVITENSKAPELIGE UNIVERSITET NTNU
Norway
EU contribution
€ 220 099
Address
Hogskoleringen 1
7491 Trondheim
Activity type
Higher or Secondary Education Establishments
Administrative Contact
Torbjørn Digernes (Prof.)
DEUTSCHE GESELLSCHAFT FUER PALLIATIVMEDIZIN
Germany
EU contribution
€ 191 233
Address
Aachenerstrasse 5
10713 Berlin
Activity type
Research Organisations
Administrative Contact
Thomas Schindler (Prof.)
CENTRO DE ESTUDOS E INVESTIGACAO EM SAUDE DA UNIVERSIDADE DE COIMBRA
Portugal
EU contribution
€ 71 771
Address
Avenida Dias Da Silva 165
3000 512 Coimbra
Activity type
Research Organisations
Administrative Contact
Gabriela Correia (Ms.)
UNIVERSITEIT ANTWERPEN
Belgium
EU contribution
€ 57 780
Address
Prinsstraat 13
2000 Antwerpen
Activity type
Higher or Secondary Education Establishments
Administrative Contact
Noël Derycke (Dr.)
HOSPITAL SANTA MARIA
Portugal
EU contribution
€ 13 375
Address
Av. Prof. Egas Moniz
1644035 Lisbon
Activity type
Higher or Secondary Education Establishments
Administrative Contact
Maria De Jesus Lopes Barata (Ms.)
AFRICAN PALLIATIVE CARE ASSOCIATION
Uganda
EU contribution
€ 30 698
Address
Dr Gibbons Road
- Kampala
Activity type
Other
Administrative Contact
Faith Mwangi-Powell (Dr.)
ISTITUTO DI RICERCA IN MEDICINA PALLIATIVA LINO MAESTRONI- Fondazione onlus
Italy
EU contribution
€ 11 235
Address
Via Palestro 1
26100 Cremona
Activity type
Higher or Secondary Education Establishments
Administrative Contact
Francesca Pettenati (Dr.)
FEDERATIE PALLIATIEVE ZORG VLAANDEREN
Belgium
EU contribution
€ 13 696
Address
J. Van Der Vekenstraat
1780 Wemmel
Activity type
Other
Administrative Contact
Paul Jozef Georges Maria Vanden Berghe (Dr.)
VERENIGING VOOR CHRISTELIJK HOGER ONDERWIJS WETENSCHAPPELIJK ONDERZOEK EN PATIENTENZORG
Netherlands
EU contribution
€ 177 192
Address
De Boelelaan 1105
1081 HV Amsterdam
Activity type
Higher or Secondary Education Establishments
Administrative Contact
Barry De Wit (Mr.)