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Psychosocial fActors Relevant to BrAin DISorders in Europe

Objective

The overall prevalence of brain disorders – both neurological and psychiatric – is very high in Europe. Although it is well known that the burden and costs of these disorders are high, there is evidence that the overall, personal, social and economic costs of brain disorders have been underestimated because of the lack of valid and reliable information regarding the full range of psychosocial difficulties that actually shape the lived experience of persons with these disorders and affect their quality of life. Current European data on psychosocial difficulties are derived from the diagnostic criteria of each disorder and so take the form of narrow ‘information silos’ that are neither comprehensive nor comparable across disorders. Distinct information silos means that treatment planning, treatment evaluation and outcome assessment ignores commonalities of psychosocial consequences across disorders, undermining treatment efficiency and effectiveness, and ultimately increasing the costs of health and social care provision. The coordination action called PARADISE has the general objective of coordinating the development of a comprehensive and cross-cutting or ‘horizontal epidemiology’ of psychosocial difficulties associated with brain disorders. Since a horizontal epidemiology accounts for the psychosocial difficulties that are actually experienced by people with brain disorders, independently of the brain disorder associated with them, it concentrates on what is more relevant to the lives of people with brain disorders. This leads to more effective intervention planning and management, and therefore to improved quality of life along the continuum of care, in the community, and across the life span. PARADISE coordinates the existing expertise in partners from eight European countries in relation to research literature, data documentation and analysis strategies for a representative range of brain disorders. These disorders are dementia, depression, epilepsy, migraine, multiple sclerosis, Parkinson’s Disease, schizophrenia, stroke and substance use disorders. PARADISE will pave the way to future investigations that more meaningfully track the trajectories of psychosocial difficulties of brain disorders.

Field of science

  • /medical and health sciences/health sciences/epidemiology
  • /medical and health sciences/basic medicine/neurology/multiple sclerosis

Call for proposal

FP7-HEALTH-2009-single-stage
See other projects for this call

Funding Scheme

CSA-CA - Coordination (or networking) actions
Leaflet | Map data © OpenStreetMap contributors, Credit: EC-GISCO, © EuroGeographics for the administrative boundaries

Coordinator

LUDWIG-MAXIMILIANS-UNIVERSITAET MUENCHEN
Address
Geschwister Scholl Platz 1
80539 Muenchen
Germany
Activity type
Higher or Secondary Education Establishments
EU contribution
€ 243 437,86
Administrative Contact
Alarcos Cieza (Dr.)

Participants (9)

UNIVERSIDAD AUTONOMA DE MADRID
Spain
EU contribution
€ 157 290
Address
Calle Einstein 3 Ciudad Univ Cantoblanco Rectorado
28049 Madrid
Activity type
Higher or Secondary Education Establishments
Administrative Contact
Ana Amigo (Ms.)
FONDAZIONE IRCCS ISTITUTO NEUROLOGICO CARLO BESTA
Italy
EU contribution
€ 215 009,01
Address
Via Giovanni Celoria 11
20133 Milano
Activity type
Research Organisations
Administrative Contact
Matilde Leonardi (Prof.)
WORLD HEALTH ORGANIZATION
Switzerland
EU contribution
€ 255 088
Address
Avenue Appia 20
1211 Geneve
Activity type
Research Organisations
Administrative Contact
Somnath Chatterji (Dr.)
Schweizer Paraplegiker-Forschung AG
Switzerland
EU contribution
€ 125 618
Address
Guido A. Zäch Strasse 4
6207 Nottwil
Activity type
Research Organisations
Administrative Contact
Mirjam Brach (Ms.)
THE EUROPEAN BRAIN COUNCIL AISBL
Belgium
EU contribution
€ 87 916
Address
Rue D Egmont 11
1000 Bruxelles
Activity type
Other
Administrative Contact
Alastair Benbow (Dr.)
UNIVERSITY OF EAST ANGLIA
United Kingdom
EU contribution
€ 81 875,56
Address
Earlham Road
NR4 7TJ Norwich
Activity type
Higher or Secondary Education Establishments
Administrative Contact
Tracy Moulton (Ms.)
INSTYTUT PSYCHIATRII I NEUROLOGII
Poland
EU contribution
€ 110 765,75
Address
Ulica Sobieskiego 9
02 957 Warszawa
Activity type
Research Organisations
Administrative Contact
Marta Anczewska (Prof.)
CF CONSULTING FINANZIAMENTI UNIONE EUROPEA SRL
Italy
EU contribution
€ 120 347,82
Address
Via Giuseppe Mussi 1
20154 Milano
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
Administrative Contact
Carla Finocchiaro (Ms.)
A-klinikkasäätiö
Finland
EU contribution
€ 84 744
Address
Paasivuorenkatu 2 A
00530 Helsinki
Activity type
Other
Administrative Contact
Raimo Viiansuo (Mr.)