Objective
Benefit sharing is an area of increasing international debate at the highest levels of policy making (WHO, WTO, WIPO). Despite the central significance of ethics in this context, ethical concerns have hardly been discussed nor researched in depth.
Benefit sharing occurs mainly in two areas:
- Human genetic banking for the purpose of pharmacogenomics or population genomics research (human genetic resources).
- Use of traditional knowledge from indigenous communities mainly by the pharmaceutical industry to develop new products (non-human genetic resources).
Researchers, specialists and stakeholders from the human and the non-human realm hardly ever have a chance to co-operate. This is particularly detrimental to those working in the human area, which lacks legally binding, international regulations already in existence for benefit sharing regarding plants, animals and micro-organisms (e.g. Convention on Biodiversity, 1992). It is therefore essential to create an international network of experts and stakeholders on benefit sharing from human and non-human areas to explore synergies and forward the benefit sharing debate for human genetic resources.
This project will establish an interdisciplinary team of ethicists, lawyers, economists, medical doctors, specialists in gender studies, representatives of indigenous communities and policy-advisors from five continents. The teams will study four paradigmatic international case studies (from South Africa, India, Iceland, and Kenya) to provide a profound state-of-the-art analysis for benefit sharing in the context of human and non-human resources.
Based on this comparative research, the main aim of this project is to promote policy developments by developing an "ethics health check" for benefit sharing agreements involving vulnerable groups and communities in the area of human genetics.
Fields of science (EuroSciVoc)
CORDIS classifies projects with EuroSciVoc, a multilingual taxonomy of fields of science, through a semi-automatic process based on NLP techniques. See: The European Science Vocabulary.
CORDIS classifies projects with EuroSciVoc, a multilingual taxonomy of fields of science, through a semi-automatic process based on NLP techniques. See: The European Science Vocabulary.
- natural sciences biological sciences genetics
- social sciences sociology gender studies
- social sciences sociology social issues social inequalities
- natural sciences biological sciences ecology ecosystems
- medical and health sciences basic medicine medical genetics
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Keywords
Project’s keywords as indicated by the project coordinator. Not to be confused with the EuroSciVoc taxonomy (Fields of science)
Project’s keywords as indicated by the project coordinator. Not to be confused with the EuroSciVoc taxonomy (Fields of science)
Programme(s)
Multi-annual funding programmes that define the EU’s priorities for research and innovation.
Multi-annual funding programmes that define the EU’s priorities for research and innovation.
Topic(s)
Calls for proposals are divided into topics. A topic defines a specific subject or area for which applicants can submit proposals. The description of a topic comprises its specific scope and the expected impact of the funded project.
Calls for proposals are divided into topics. A topic defines a specific subject or area for which applicants can submit proposals. The description of a topic comprises its specific scope and the expected impact of the funded project.
Call for proposal
Procedure for inviting applicants to submit project proposals, with the aim of receiving EU funding.
Procedure for inviting applicants to submit project proposals, with the aim of receiving EU funding.
FP6-2005-SCIENCE-AND-SOCIETY-14
See other projects for this call
Funding Scheme
Funding scheme (or “Type of Action”) inside a programme with common features. It specifies: the scope of what is funded; the reimbursement rate; specific evaluation criteria to qualify for funding; and the use of simplified forms of costs like lump sums.
Funding scheme (or “Type of Action”) inside a programme with common features. It specifies: the scope of what is funded; the reimbursement rate; specific evaluation criteria to qualify for funding; and the use of simplified forms of costs like lump sums.
Coordinator
PRESTON
United Kingdom
The total costs incurred by this organisation to participate in the project, including direct and indirect costs. This amount is a subset of the overall project budget.