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Comparing the effectiveness of palliative care for elderly people in long term care facilities in Europe

Objective

Aging populations, rising costs and sustainable delivery of high-quality care are increasingly common concerns in all EU countries. PACE aims to perform comparative effectiveness research concerning palliative care in long term care facilities (LTCFs) in Europe. While a growing number of older people will require palliative care in institutionalized settings, palliative care has only recently begun to be developed in LTCFs and effectiveness research hardly exists.

PACE aims to compare, in six EU countries (BE, UK, IT, FI, PL, NL)
(1) the effectiveness of health care systems with and without formal palliative care structures in LTCFs on patient and family outcomes –quality of dying, quality of life– quality of palliative care and cost-effectiveness, by performing a representative cross-sectional study in 48 LTCFs per country to include at least 1,152 deceased residents
(2) the impact of the UK palliative care health service intervention Route to Success on patient outcomes, family and staff in LTCFs, by performing a controlled cluster trial across the six countries, randomly allocating 24 LTCFs to intervention and 24 to control.

The PACE consortium brings together leading academic partners from multiple disciplines with EU organizations/networks actively tapping into the most important professional groups and policy-makers in the field, making it possible to influence research, practice, policy and public at national and international level in and beyond participating PACE countries. PACE will help to achieve the objectives of the European 2020 Strategy, specifically the European Innovation Partnership on Healthy and Active Aging. Based on its study results, PACE will develop tools to assist practitioners and policy and decision-makers to make evidence-based decisions regarding best palliative care practices in LTCFs. This will ultimately lead to optimizing the delivery of palliative care to the large proportion of EU citizens living and dying in old age.

Call for proposal

FP7-HEALTH-2013-INNOVATION-1
See other projects for this call

Funding Scheme

CP-FP - Small or medium-scale focused research project

Coordinator

VRIJE UNIVERSITEIT BRUSSEL
Address
Pleinlaan 2
1050 Brussel
Belgium
Activity type
Higher or Secondary Education Establishments
EU contribution
€ 1 107 499
Administrative Contact
Christl Vereecken (Ms.)

Participants (13)

UNIVERSITY OF LANCASTER
United Kingdom
EU contribution
€ 815 398
Address
Bailrigg
LA1 4YW Lancaster
Activity type
Higher or Secondary Education Establishments
Administrative Contact
Sheila Payne (Prof.)
UNIVERSITA CATTOLICA DEL SACRO CUORE
Italy
EU contribution
€ 553 424
Address
Largo Gemelli 1
20123 Milano
Activity type
Higher or Secondary Education Establishments
Administrative Contact
Filippo Leone (Mr.)
TERVEYDEN JA HYVINVOINNIN LAITOS
Finland
EU contribution
€ 812 450
Address
Mannerheimintie 166
00271 Helsinki
Activity type
Research Organisations
Administrative Contact
Harriet Finne-Soveri (Prof.)
UNIWERSYTET JAGIELLONSKI
Poland
EU contribution
€ 485 912
Address
Ul. Golebia 24
31007 Krakow
Activity type
Other
Administrative Contact
Katarzyna Gubernat (Ms.)
STICHTING VU
Netherlands
EU contribution
€ 761 379
Address
De Boelelaan 1105
1081 HV Amsterdam
Activity type
Higher or Secondary Education Establishments
Administrative Contact
Michel Telkamp
STICHTING KATHOLIEKE UNIVERSITEIT
Netherlands
EU contribution
€ 282 828
Address
Geert Grooteplein Noord 9
6525 EZ Nijmegen
Activity type
Higher or Secondary Education Establishments
Administrative Contact
Wim Van Oijen (Mr.)
UNIVERSITEIT GENT
Belgium
EU contribution
€ 311 500
Address
Sint Pietersnieuwstraat 25
9000 Gent
Activity type
Higher or Secondary Education Establishments
Administrative Contact
Evelien Vandevelde (Ms.)
ASSOCIAZIONE EUROPEA PER LE CURE PALLIATIVE
Italy
EU contribution
€ 111 720
Address
Via Venezian 1
20133 Milano
Activity type
Other
Administrative Contact
Heidi Blumhuber (Mrs.)
EUROPEAN FORUM FOR PRIMARY CARE ASSOCIATION
Netherlands
EU contribution
€ 85 600
Address
Randstad 2145 A
1314 BG Almere
Activity type
Other
Administrative Contact
Diederik Aarendonk (Mr.)
AGE PLATFORM EUROPE
Belgium
EU contribution
€ 146 750
Address
Avenue De Tervuren 168
1150 Bruxelles
Activity type
Other
Administrative Contact
Anne-Sophie Parent (Mrs.)
ALZHEIMER EUROPE
Luxembourg
EU contribution
€ 91 680
Address
Rue Dicks 14
1417 Luxembourg
Activity type
Other
Administrative Contact
Jean Georges (Mr.)
STICHTING VUMC
Netherlands
Address
De Boelelaan 1117
1081 HV Amsterdam
Activity type
Research Organisations
Administrative Contact
Yvonne Koppelman (Mrs.)
EUROPEAN ASSOCIATION OF PALLIATIVE CARE
Belgium
Address
Toekomststraat 36
1800 Vilvoorde
Activity type
Other
Administrative Contact
Julie Ling (Dr.)