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Screening to improve Health In very Preterm infantS in Europe

Objective

Very preterm birth is a principal determinant of motor and cognitive impairment in later life. About 50 000 infants in the EU survive very preterm birth annually and are at much higher risk of cerebral palsy, visual and auditory deficits, impaired cognitive ability, psychiatric disorders and behavioural problems than infants born at term. However, the long term prognosis at initial discharge from hospital for each individual infant is unknown. Follow-up screening and prevention programmes aim to identify health problems early, enable interventions to improve outcome and to allow optimal management of health care. Despite the recognised importance of these programmes, little is known about their actual application and impact. These programmes consume significant resources because of the multidisciplinary staff required for clinical and developmental assessments and interventions, the coordination required to maintain contact with children after discharge and the time input from families.
This project uses a unique resource – the EPICE cohort of 6675 babies born before 32 weeks of gestational age and surviving to discharge home in 18 geographically diverse regions in 2011/2012 – to assess the impact of these screening programmes on health, care and quality of life for very preterm infants and their families as well as on coverage, ability to meet needs, health equity and costs at the population-level. It will also generate new knowledge about assessment tools and methods. Four inter-related studies will be carried out in 11 EU countries by a multi-disciplinary consortium of clinicians (in obstetrics, paediatrics, and child development), researchers (in epidemiology, health services research and health economics) and a user organisation. Partners have the expertise to implement this project and the national and international renown to translate its result into better programmes and policies.

Field of science

  • /medical and health sciences/clinical medicine/paediatrics
  • /medical and health sciences/clinical medicine/obstetrics and gynaecology/obstetrics
  • /social sciences/sociology/demography/fertility
  • /medical and health sciences/clinical medicine/obstetrics and gynaecology

Call for proposal

H2020-PHC-2014-two-stage
See other projects for this call

Funding Scheme

RIA - Research and Innovation action

Coordinator

INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE
Address
Rue De Tolbiac 101
75654 Paris
France
Activity type
Research Organisations
EU contribution
€ 534 500

Participants (13)

UNIVERSITY OF LEICESTER
United Kingdom
EU contribution
€ 480 041
Address
University Road
LE1 7RH Leicester
Activity type
Higher or Secondary Education Establishments
PHILIPPS UNIVERSITAET MARBURG
Germany
EU contribution
€ 313 437,50
Address
Biegenstrasse 10
35037 Marburg
Activity type
Higher or Secondary Education Establishments
STICHTING KATHOLIEKE UNIVERSITEIT
Netherlands
EU contribution
€ 128 250
Address
Geert Grooteplein Noord 9
6525 EZ Nijmegen
Activity type
Higher or Secondary Education Establishments
REGIONE LAZIO

Participation ended

Italy
EU contribution
€ 0
Address
Via Del Giorgione 129
00147 Roma
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
UNIWERSYTET MEDYCZNY IM KAROLA MARCINKOWSKIEGO W POZNANIU
Poland
EU contribution
€ 113 375
Address
Ul. Fredry 10
61-701 Poznan
Activity type
Higher or Secondary Education Establishments
UNIVERSITEIT ANTWERPEN
Belgium
EU contribution
€ 216 250
Address
Prinsstraat 13
2000 Antwerpen
Activity type
Higher or Secondary Education Establishments
UNIVERSIDADE DO PORTO
Portugal
EU contribution
€ 294 615
Address
Praca Gomes Teixeira
4099 002 Porto
Activity type
Higher or Secondary Education Establishments
REGION HOVEDSTADEN
Denmark
EU contribution
€ 120 437,50
Address
Kongens Vaenge 2
3400 Hillerod
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
KAROLINSKA INSTITUTET
Sweden
EU contribution
€ 137 125
Address
Nobels Vag 5
17177 Stockholm
Activity type
Higher or Secondary Education Establishments
TARTU ULIKOOL
Estonia
EU contribution
€ 100 062,50
Address
Ulikooli 18
51005 Tartu
Activity type
Higher or Secondary Education Establishments
OSPEDALE PEDIATRICO BAMBINO GESU
Italy
EU contribution
€ 326 812,50
Address
Piazza Sant Onofrio 4
00165 Roma
Activity type
Other
THE UNIVERSITY OF WARWICK
United Kingdom
EU contribution
€ 84 518,75
Address
Kirby Corner Road - University House
CV4 8UW Coventry
Activity type
Higher or Secondary Education Establishments
EUROPEAN FOUNDATION FOR THE CARE OF NEWBORN INFANTS
Germany
EU contribution
€ 143 750
Address
Hofmannstr 7 A
81379 Munchen
Activity type
Other