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Screening to improve Health In very Preterm infantS in Europe

Deliverables

Template material and tools for user associations

Template material and tools for user associations for outreach on project results within their networks and to families concerned

Final report on the Health and Wellbeing Study at 5

Report on Health and Wellbeing at 5 study, including on the economic analysis with report on the resource use data and economic analyses and cost-effectiveness of follow-up

Final report on the study of follow-up programmes

Final report of the study describing follow-up programmes in the régions.

Final Report on the Qualitative Study

Final report on the qualitative study providing results and conclusions of the qualitative interviews with parents.

Final report on the Neuro-developmental Assessment Study

Final report on the results of the neuro-developmental assessment study.

Communication plan

A communication plan for the project targeting user associations, EU stakeholders and media. This is a joint deliverable with WP8 (please see WP2 and WP8).

Status Report on the Neuro-developmental Assessment Study

Report on the status of the result posting including timelines when final posting of results is scheduled after end of funding period.

Status report for Health and Wellbeing Study

Report on the status of the result posting including timelines when final posting of results is scheduled after end of funding period.

Scientific publications and presentation of study results in scientific congresses

Scientific publications in national professional journals and scientific publications in national and international general and specialised peer-reviewed journals in order to disseminate results to the public health and health professional communities.

European Guidelines on follow up for very preterm infants during their first 5 years of life

European Guidelines on follow up for very preterm infants during their first 5 years of life

Indexed database on existing screening and prevention programmes

An database on screening and prevention programmes in 18 European regions that includes information on their institutional and organisational structures, resource use, population targets, outreach strategies, content as well as programme and health outcomes.

Project website

Project website with custom-designed communication tools for the research consortium and stakeholders

Publications

Specialist health care services use in a European cohort of infants born very preterm

Author(s): Anna-Veera Seppänen, Florence Bodeau-Livinec, Elaine M Boyle, Anna-Karin Edstedt-Bonamy, Marina Cuttini, Liis Toome, Rolf F Maier, Eva Cloet, Corine Koopman-Esseboom, Pernille Pedersen, Janusz Gadzinowski, Henrique Barros, Jennifer Zeitlin
Published in: Developmental Medicine & Child Neurology, 2018, ISSN 0012-1622
DOI: 10.1111/dmcn.14112

Duration and Time Trends in Hospital Stay for Very Preterm Infants Differ Across European Regions*

Author(s): Rolf F. Maier, Béatrice Blondel, Aurélie Piedvache, Bjoern Misselwitz, Stavros Petrou, Patrick Van Reempts, Francesco Franco, Henrique Barros, Janusz Gadzinowski, Klaus Boerch, Arno van Heijst, Elizabeth S. Draper, Jennifer Zeitlin
Published in: Pediatric Critical Care Medicine, Issue 19/12, 2018, Page(s) 1153-1161, ISSN 1529-7535
DOI: 10.1097/pcc.0000000000001756