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The Vitality of Disease - Quality of Life in the Making

CORDIS provides links to public deliverables and publications of HORIZON projects.

Links to deliverables and publications from FP7 projects, as well as links to some specific result types such as dataset and software, are dynamically retrieved from OpenAIRE .

Publications

Running on Borrowed Life

Author(s): Marie Kofod Svensson
Published in: Somatosphere, Issue 12 April 2021, 2021
Publisher: Somatosphere

One click away: learning to live with type 1 diabetes via Facebook

Author(s): Natasja Kingod
Published in: Somatosphere, Issue 12 July 2021, 2021
Publisher: Somatosphere

Pains, pleasures, and a new electric wheelchair

Author(s): Anna Mann
Published in: Somatosphere, Issue 11 March 2021, 2021
Publisher: Somatosphere

Punctuated Lives – Staying Healthy with Lynch Syndrome

Author(s): Laura Louise Heinsen, Helle Vendel Petersen, Ayo Wahlberg
Published in: Somatosphere, Issue 16 April 2021, 2021
Publisher: Somatosphere

Study Sessions for Grandmother: An Experiment with Repetition, Memory, and Dementia

Author(s): Jieun Lee
Published in: Somatosphere, Issue 14 May 2021, 2021
Publisher: Somatosphere

Chronic living: ethnographic explorations of daily lives swayed by (multiple) medical conditions

Author(s): Ayo Wahlberg, Jieun Lee, Anna Mann, Arseli Dokumaci, Natasja Kingod, Marie Kofod Svensson, Laura Louise Heinsen
Published in: Somatosphere, 2021
Publisher: Somatosphere

Calibrating logics: How adolescents and young adults calibrate often-competing logics in their daily self-management of type 1 diabetes (opens in new window)

Author(s): Kingod, Natasja
Published in: Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine, 2022, ISSN 1363-4593
Publisher: SAGE Publications
DOI: 10.1177/13634593221113211

Surveillance life and the shaping of ‘genetically at risk’ chronicities in Denmark (opens in new window)

Author(s): Laura Louise Heinsen, Ayo Wahlberg, Helle Vendel Petersen
Published in: Anthropology & Medicine, 2021, Page(s) 1-16, ISSN 1364-8470
Publisher: Carfax Publishing Ltd.
DOI: 10.1080/13648470.2021.1893654

In a vigilant state of chronic disruption: how parents with a young child with type 1 diabetes negotiate events and moments of uncertainty (opens in new window)

Author(s): Natasja Kingod, Dan Grabowski
Published in: Sociology of Health & Illness, Issue 42/6, 2020, Page(s) 1473-1487, ISSN 0141-9889
Publisher: Blackwell Publishing Inc.
DOI: 10.1111/1467-9566.13123

Prognostic Calibrations Throughout Outpatient Encounters for Families Living with Congenital Heart Defects in Denmark (opens in new window)

Author(s): Marie Kofod Svensson
Published in: Medicine Anthropology Theory, Issue 8/1, 2021, Page(s) 1-27, ISSN 2405-691X
Publisher: University of Edinburgh Journal Hosting Service
DOI: 10.17157/mat.8.1.5115

Chronic Living in a Communicable World (opens in new window)

Author(s): Lenore Manderson, Ayo Wahlberg
Published in: Medical Anthropology, Issue 39/5, 2020, Page(s) 428-439, ISSN 0145-9740
Publisher: Taylor & Francis
DOI: 10.1080/01459740.2020.1761352

Ordering tasting in a restaurant: experiencing, socializing, and processing food (opens in new window)

Author(s): Anna Mann
Published in: The Senses and Society, Issue 13/2, 2018, Page(s) 135-146, ISSN 1745-8927
Publisher: Berg Publishers
DOI: 10.1080/17458927.2017.1376434

Vital affordances, occupying niches: an ecological approach to disability and performance (opens in new window)

Author(s): Arseli Dokumaci
Published in: Research in Drama Education: The Journal of Applied Theatre and Performance, Issue 22/3, 2017, Page(s) 393-412, ISSN 1356-9783
Publisher: Routledge
DOI: 10.1080/13569783.2017.1326808

Online Peer-to-Peer Communities in the Daily Lives of People With Chronic Illness (opens in new window)

Author(s): Natasja Kingod, Bryan Cleal, Ayo Wahlberg, Gitte R. Husted
Published in: Qualitative Health Research, Issue 27/1, 2016, Page(s) 89-99, ISSN 1049-7323
Publisher: SAGE Publications
DOI: 10.1177/1049732316680203

A Theory of Microactivist Affordances (opens in new window)

Author(s): Arseli Dokumacı
Published in: South Atlantic Quarterly, Issue 118/3, 2019, Page(s) 491-519, ISSN 0038-2876
Publisher: Duke University Press
DOI: 10.1215/00382876-7616127

The tinkering m-patient: Co-constructing knowledge on how to live with type 1 diabetes through Facebook searching and sharing and offline tinkering with self-care (opens in new window)

Author(s): Natasja Kingod
Published in: Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine, Issue 1–17, 2018, Page(s) 136345931880014, ISSN 1363-4593
Publisher: SAGE Publications
DOI: 10.1177/1363459318800140

Noise as Dysappearance: Attuning to a Life with Type 1 Diabetes (opens in new window)

Author(s): Natasja Kingod, Bryan Cleal
Published in: Body & Society, Issue XX(X), 2019, Page(s) 1357034X1986167, ISSN 1357-034X
Publisher: SAGE Publications
DOI: 10.1177/1357034x19861671

The ‘disabilitization’ of medicine: The emergence of Quality of Life as a space to interrogate the concept of the medical model (opens in new window)

Author(s): Arseli Dokumacı
Published in: History of the Human Sciences, Issue XX(X), 2019, Page(s) 095269511985071, ISSN 0952-6951
Publisher: SAGE Publications
DOI: 10.1177/0952695119850716

Living with/out Dementia in Contemporary South Korea (opens in new window)

Author(s): Jieun Lee
Published in: Medical Anthropology Quarterly, Issue 00, 2019, Page(s) 0-16, ISSN 0745-5194
Publisher: Wiley-Blackwell
DOI: 10.1111/maq.12532

Sensory science research on taste. An ethnography of two laboratory experiments in Western Europe (opens in new window)

Author(s): Anna Mann
Published in: Food and Foodways, Issue 26/1, 2018, Page(s) 23-39, ISSN 0740-9710
Publisher: Harwood Academic Publishers
DOI: 10.1080/07409710.2017.1420352

Abandoning questionnaires (opens in new window)

Author(s): Anna Mann
Published in: Nordic Journal of Science and Technology Studies, Issue 9(1), 2021, Page(s) 53-64, ISSN 1894-4647
Publisher: NTNU Norwegian University of Science and Technology
DOI: 10.5324/njsts.v9i1.3545

Chronic Paradoxes: A Systematic Review of Qualitative Family Perspectives on Living With Congenital Heart Defects (opens in new window)

Author(s): Marie Kofod Svensson, Ayo Wahlberg, Gunnar H. Gislason
Published in: Qualitative Health Research, Issue 30/1, 2020, Page(s) 119-132, ISSN 1049-7323
Publisher: SAGE Publications
DOI: 10.1177/1049732319869909

Improving quality of life in daily nephrology practice

Author(s): Mann, Anna
Published in: Nordic Journal of Science and Technology Studies, Vol 9, Iss 1 (2021), Issue 1, 2022, Page(s) 53-64, ISSN 1894-4647
Publisher: nordicsts.org

Activist Affordances: How Disabled People Improvise More Habitable Worlds

Author(s): Dokumaci, Arseli
Published in: 2023, ISBN 978-1-4780-1924-4
Publisher: Duke University Press

Viral Loads: Anthropologies of Urgency in the time of COVID-19

Author(s): Lenore Manderson, Nancy J. Burke, Ayo Wahlberg
Published in: 2021, ISBN 9781800080249
Publisher: University College London Press

Introduction: stratified livability and pandemic effects

Author(s): Ayo Wahlberg, Nancy J. Burke, Lenore Manderson
Published in: Viral Loads: Anthropologies of urgency in the time of COVID-19, 2021, Page(s) 1-26, ISBN 9781800080249
Publisher: University College London Press

Assemblage Ethnography: Configurations Across Scales, Sites and Practices

Author(s): Ayo Wahlberg
Published in: Handbook of the Anthropology of Technology, 2022
Publisher: Palgrave MacMillan

The Vitality of Disease (opens in new window)

Author(s): Ayo Wahlberg
Published in: The Palgrave Handbook of Biology and Society, 2018, Page(s) 727-748
Publisher: Palgrave Macmillan UK
DOI: 10.1057/978-1-137-52879-7_31

Carescapes unsettled: COVID-19 and the reworking of ‘stable illnesses’ in welfare state Denmark

Author(s): Sofie Rosenlund Lau, Marie Kofod Svensson, Natasja Kingod, Ayo Wahlberg
Published in: Viral Loads: Anthropologies of urgency in the time of COVID-19, 2021, Page(s) 324-343, ISBN 9781800080249
Publisher: University College London Press

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