Attempts to Control the End of Life in People with Dementia: Two-level Approach to Examine Controversies

Project Information

CONT-END

Grant agreement ID: 771483

DOI 10.3030/771483

EC signature date 16 July 2018

Start date 1 December 2018

End date 31 May 2025

Funded under

• EXCELLENT SCIENCE - European Research Council (ERC)

Total cost € 1 988 972,00

EU contribution € 1 988 972,00

Coordinated by

ACADEMISCH ZIEKENHUIS LEIDEN
Netherlands

Publications

Peer reviewed articles (10)

Consensus definition of advance care planning in dementia: A 33-country Delphi study

Author(s): van der Steen JT, Nakanishi M, Van den Block L, Di Giulio P, Gonella S, In der Schmitten J, Sudore RL, Harrison Dening K, Parker D, Mimica N, Holmerova I, Larkin P, Martins Pereira S, Rietjens JAC, Korfage IJ; European Association for Palliative Care (EAPC). .
Published in: Alzheimers Dement, Issue 20(2), 2024, Page(s) 1309-1320, ISSN 1552-5260
Publisher: Elsevier BV
DOI: 10.1002/alz.13526

"Commentary to: ""Timely dying in dementia: Use patients' judgments and broaden the concept of suffering."" Timely dying, suffering in dementia, and a role for family and professional caregivers in preventing it."

Author(s): van der Steen JT, Scheeres-Feitsma TM, Schaafsma P.
Published in: Alzheimer's & dementia : diagnosis, assessment & disease monitoring, Issue 16(1), 2024, Page(s) e12536, ISSN 2352-8729
Publisher: Elsevier
DOI: 10.1002/dad2.12536

Interventions that may increase control at the end of life in persons with dementia: the cross-cultural CONT-END acceptability study protocol and pilot-testing

Author(s): Hanneke J.A. Smaling; Xu Jingyuan; Miharu Nakanishi; Shiri Shinan-Altman; David R. Mehr; Lukas Radbruch; Jan Gaertner; Perla Werner; Wilco P. Achterberg; Jenny T. van der Steen
Published in: BMC Palliative Care, Issue 22(1), 2023, Page(s) 142, ISSN 1472-684X
Publisher: BioMed Central
DOI: 10.1186/s12904-023-01249-7

Family involvement in euthanasia or Physician Assisted Suicide and dementia: A systematic review.

Author(s): Scheeres-Feitsma TM, van Laarhoven AJJMK, de Vries R, Schaafsma P, van der Steen JT.
Published in: Alzheimers Dement, Issue April 25, ahead of print, 2023, Page(s) 0-0, ISSN 1552-5260
Publisher: Elsevier BV
DOI: 10.1002/alz.13094

Advance care planning in the Netherlands

Author(s): van der Steen JT, Engels Y, Touwen DP, Kars MC, Reyners AKL, van der Linden YM, Korfage IJ.
Published in: Z Evid Fortbild Qual Gesundhwes, Issue S1865-9217(23), 2023, Page(s) 00136-8., ISSN 2212-0289
Publisher: Elsevier
DOI: 10.1016/j.zefq.2023.06.003

Causes of reporting bias: a theoretical framework [version 2; peer review: 2 approved]

Author(s): Jenny T van der Steen; Gerben ter Riet; Cornelis A van den Bogert; Lex M Bouter
Published in: F1000Research, Issue 8, 2019, Page(s) 280, ISSN 2046-1402
Publisher: F1000 Research Ltd.
DOI: 10.12688/f1000research.18310.2

Palliative Care in Advanced Dementia: Comparison of Strategies in Three Countries

Author(s): Shelley A. Sternberg, Shiri Shinan-Altman, Ladislav Volicer, David J. Casarett, Jenny T. van der Steen
Published in: Geriatrics, Issue 6/2, 2021, Page(s) 44, ISSN 2308-3417
Publisher: MDPI
DOI: 10.3390/geriatrics6020044

Talking about Meaning and Loss with Relatives of Persons with Dementia: An Ethnographic Study in a Nursing Home

Author(s): Caroline Couprie; Jenny T. van der Steen
Published in: Geriatrics (Basel), Issue 8(1), 2023, Page(s) 23, ISSN 2308-3417
Publisher: MDPI
DOI: 10.3390/geriatrics8010023

Analysis of linked electronic health records and administrative data

Author(s): Bahar Azizi; Bram Tilburgs; Hein P. J. van Hout; Iris van der Heide; Robert A. Verheij; Robert A. Verheij; Wilco P. Achterberg; Jenny T. van der Steen; Jenny T. van der Steen; Karlijn J. Joling
Published in: Frontiers in Public Health, Issue 10, 2022, Page(s) 653174, ISSN 2296-2565
Publisher: Frontiers
DOI: 10.3389/fpubh.2022.653174

Noninvasive monitoring technologies to identify discomfort and distressing symptoms in persons with limited communication at the end of life: a scoping review.

Author(s): Xu J, Smaling HJA, Schoones JW, Achterberg WP, van der Steen JT.
Published in: BMC Palliat Care, Issue 23(1), 2024, Page(s) 78, ISSN 1472-684X
Publisher: BioMed Central
DOI: 10.1186/s12904-024-01371-0

Conference proceedings (1)

Cross‐cultural acceptability of interventions at the end of life in dementia: Video vignette study design and pilot evaluation (ERC CONT‐END WP1)

Author(s): Jenny T van der Steen, Bahar Azizi, Miharu Nakanishi, Shiri Shinan‐Altman, David R Mehr, Lukas Radbruch, Jan Gaertner, Perla Werner, Wilco P Achterberg, Bram Tilburgs, Hanneke JA Smaling
Published in: Alzheimer's & Dementia, Issue 16/S7, 2020, Page(s) e041542, ISSN 1552-5260
Publisher: Elsevier BV
DOI: 10.1002/alz.041542

Non-peer reviewed articles (1)

Nieuw onderzoek advance care planning dementie

Author(s): Bahar Azizi
Published in: Huisarts en wetenschap, Issue 63/1, 2020, Page(s) 59-59, ISSN 0018-7070
Publisher: Bohn Stafleu van Loghum B.V
DOI: 10.1007/s12445-019-0393-3