Attempts to Control the End of Life in People with Dementia: Two-level Approach to Examine Controversies

Consensus definition of advance care planning in dementia: A 33-country Delphi study

Autori: van der Steen JT, Nakanishi M, Van den Block L, Di Giulio P, Gonella S, In der Schmitten J, Sudore RL, Harrison Dening K, Parker D, Mimica N, Holmerova I, Larkin P, Martins Pereira S, Rietjens JAC, Korfage IJ; European Association for Palliative Care (EAPC). .
Pubblicato in: Alzheimers Dement, Numero 20(2), 2024, Pagina/e 1309-1320, ISSN 1552-5260
Editore: Elsevier BV
DOI: 10.1002/alz.13526

"Commentary to: ""Timely dying in dementia: Use patients' judgments and broaden the concept of suffering."" Timely dying, suffering in dementia, and a role for family and professional caregivers in preventing it."

Autori: van der Steen JT, Scheeres-Feitsma TM, Schaafsma P.
Pubblicato in: Alzheimer's & dementia : diagnosis, assessment & disease monitoring, Numero 16(1), 2024, Pagina/e e12536, ISSN 2352-8729
Editore: Elsevier
DOI: 10.1002/dad2.12536

Interventions that may increase control at the end of life in persons with dementia: the cross-cultural CONT-END acceptability study protocol and pilot-testing

Autori: Hanneke J.A. Smaling; Xu Jingyuan; Miharu Nakanishi; Shiri Shinan-Altman; David R. Mehr; Lukas Radbruch; Jan Gaertner; Perla Werner; Wilco P. Achterberg; Jenny T. van der Steen
Pubblicato in: BMC Palliative Care, Numero 22(1), 2023, Pagina/e 142, ISSN 1472-684X
Editore: BioMed Central
DOI: 10.1186/s12904-023-01249-7

Family involvement in euthanasia or Physician Assisted Suicide and dementia: A systematic review.

Autori: Scheeres-Feitsma TM, van Laarhoven AJJMK, de Vries R, Schaafsma P, van der Steen JT.
Pubblicato in: Alzheimers Dement, Numero April 25, ahead of print, 2023, Pagina/e 0-0, ISSN 1552-5260
Editore: Elsevier BV
DOI: 10.1002/alz.13094

Advance care planning in the Netherlands

Autori: van der Steen JT, Engels Y, Touwen DP, Kars MC, Reyners AKL, van der Linden YM, Korfage IJ.
Pubblicato in: Z Evid Fortbild Qual Gesundhwes, Numero S1865-9217(23), 2023, Pagina/e 00136-8., ISSN 2212-0289
Editore: Elsevier
DOI: 10.1016/j.zefq.2023.06.003

Causes of reporting bias: a theoretical framework [version 2; peer review: 2 approved]

Autori: Jenny T van der Steen; Gerben ter Riet; Cornelis A van den Bogert; Lex M Bouter
Pubblicato in: F1000Research, Numero 8, 2019, Pagina/e 280, ISSN 2046-1402
Editore: F1000 Research Ltd.
DOI: 10.12688/f1000research.18310.2

Palliative Care in Advanced Dementia: Comparison of Strategies in Three Countries

Autori: Shelley A. Sternberg, Shiri Shinan-Altman, Ladislav Volicer, David J. Casarett, Jenny T. van der Steen
Pubblicato in: Geriatrics, Numero 6/2, 2021, Pagina/e 44, ISSN 2308-3417
Editore: MDPI
DOI: 10.3390/geriatrics6020044

Talking about Meaning and Loss with Relatives of Persons with Dementia: An Ethnographic Study in a Nursing Home

Autori: Caroline Couprie; Jenny T. van der Steen
Pubblicato in: Geriatrics (Basel), Numero 8(1), 2023, Pagina/e 23, ISSN 2308-3417
Editore: MDPI
DOI: 10.3390/geriatrics8010023

Analysis of linked electronic health records and administrative data

Autori: Bahar Azizi; Bram Tilburgs; Hein P. J. van Hout; Iris van der Heide; Robert A. Verheij; Robert A. Verheij; Wilco P. Achterberg; Jenny T. van der Steen; Jenny T. van der Steen; Karlijn J. Joling
Pubblicato in: Frontiers in Public Health, Numero 10, 2022, Pagina/e 653174, ISSN 2296-2565
Editore: Frontiers
DOI: 10.3389/fpubh.2022.653174

Noninvasive monitoring technologies to identify discomfort and distressing symptoms in persons with limited communication at the end of life: a scoping review.

Autori: Xu J, Smaling HJA, Schoones JW, Achterberg WP, van der Steen JT.
Pubblicato in: BMC Palliat Care, Numero 23(1), 2024, Pagina/e 78, ISSN 1472-684X
Editore: BioMed Central
DOI: 10.1186/s12904-024-01371-0

Cross‐cultural acceptability of interventions at the end of life in dementia: Video vignette study design and pilot evaluation (ERC CONT‐END WP1)

Autori: Jenny T van der Steen, Bahar Azizi, Miharu Nakanishi, Shiri Shinan‐Altman, David R Mehr, Lukas Radbruch, Jan Gaertner, Perla Werner, Wilco P Achterberg, Bram Tilburgs, Hanneke JA Smaling
Pubblicato in: Alzheimer's & Dementia, Numero 16/S7, 2020, Pagina/e e041542, ISSN 1552-5260
Editore: Elsevier BV
DOI: 10.1002/alz.041542

Nieuw onderzoek advance care planning dementie

Autori: Bahar Azizi
Pubblicato in: Huisarts en wetenschap, Numero 63/1, 2020, Pagina/e 59-59, ISSN 0018-7070
Editore: Bohn Stafleu van Loghum B.V
DOI: 10.1007/s12445-019-0393-3

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