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Open and Inclusive Healthcare for Citizens Based on Digital Fabrication

Periodic Reporting for period 2 - Made4You (Open and Inclusive Healthcare for Citizens Based on Digital Fabrication)

Période du rapport: 2019-07-01 au 2020-12-31

Digital fabrication labs and maker spaces have emerged across the globe to become local community hubs for a wide range of Do It Yourself-activities. In parallel, open source information and tools have triggered grassroots solutions in healthcare. Patients, their families, carers, health professionals and designers started to create personalised ‘open’ healthcare solutions in a bottom-up way. Instead of waiting for public healthcare services to satisfy their needs a growing number of citizens takes action themselves, regardless of national healthcare policies and regulations. During the rapid spread of the novel Coronavirus (Covid-19) worldwide we are all witnesses to the importance of the maker community for a rapid response to the lack of medical hardware supplies. Maker spaces were called to use their digital fabrication tools to e.g. 3D print valves for life-saving Coronavirus treatments or face shields to offer some protective gear for doctors. But not only does the maker community contribute to the rapid production of needed pieces, it also shows its responsible innovation capacities by rapidly prototyping, testing, documenting and reproducing new products that are needed.

The careables project sees great potential for social transformative innovation in these initiatives and proposes an open and inclusive approach to healthcare based on digital fabrication, distributed manufacturing and collaborative making. Within careables we aim to link local communities of citizens with disabilities, their families, and healthcare professionals with makers/designers to establish collaboration between these separate communities to develop open-source interventions and solutions, so called “Careables”. A careable as an open solution that aims to improve the quality of life for people with unmet needs or facing physical limitations. Careables are co-designed, replicable, accessible, adjustable, and shareable online, using digital technologies. Careables is a new category that promises readily customized solutions and a horizontal and collaborative approach to health and care.

Careables are driven by a methodological commitment towards co-design of ‘open’ healthcare solutions, involving all relevant stakeholders. Key to co-design is that people become creators, not only users of innovation. In our case, patients, their families, healthcare professionals and designers are involved in the co-design process as experts in their specific environments, together with makers, who are experts in the use of digital tools, such as 3D printers, laser cutters, etc. At a global scale we offer a platform for sharing open healthcare solutions, including detailed documentation to facilitate the replication and adaptation of careables.
The project team has shown great commitment to establish careables as an open and inclusive approach to healthcare. We started experimenting with different long- and short-term formats of co-designing careables and looked into the impacts of these co-creation events. We created the Careables platform (www.careables.org) to foster communication and information exchange around our approach and documented the designed careables on the Welder platform. By the time of writing this we counted 180 documented careables on Welder, more than 20.000 visitors to the Careables platform, 7.000 visitors to the Welder platform, generating more than 200.000 page views.

We used our dissemination channels to spread the idea of Careables, took part in maker fairs, conferences, workshops etc. and actively involved more than 100.000 people in these activities. As a result of our work, a FabCare group composed of fablabs with long-term experience in digital fabrication and health and care was created and is now hosted by the FabFoundation, an organisation that gathers more than 1.750 fablabs around the globe.

When we faced the COVID-19 situation we tried to adapt to the new needs arising with the worldwide maker response movement and created a selection of high quality COVID-19 related careables on our platform, which includes around 40 shared designs. We supported makers responding to the COVID-19 situation with e.g. a guide on how to legitimately design or reproduce open source medical devices and PPE.

Our work showed that the Careables approach positively impacts our main three target groups: designers and makers benefit from the acquisition of digital fabrication and design-thinking skills. They were highly interested in producing solutions that have a real impact on people's lives and we even see new job profiles emerging in the future. Health professionals benefited from the Careables activities during the COVID-19 crisis and from trainings and workshops that aimed at introducing digital fabrication skills and demonstrating how the tailor-made, co-creation of healthcare solutions might support their daily work with patients.

Patients and users with specific needs benefited not only from a number of Careables tailor-made to their needs. They were empowered to take the design of required healthcare solutions into their own hands, joining co-creation teams with designers and health professionals at eye level. In the three years project runtime, different scenarios emerged how digital fabrication can support all three groups in the future, where some of them depend on public and private funding, while others might become self-sustained activities to the benefit of society.
The Careables approach proved to have great benefits for those involved in the co-creation of open health care solutions:

We experienced high interest of makers, local manufacturers and designers in creating and making innovative solutions that have a real impact on peoples’ lives. This high interest was even intensified during the pandemic. We can find in all countries, maker communities that aim to better understand how to foster and implement co-creation with people with disabilities, actively supporting the health and care of others.

Careables brought benefits to those people and patients with specific needs. The co-creation experience supported a change in mindset of case owners, feeling empowered to take their own needs into their hands, feeling valued by creating health and care devices that make lives easier.

Health professionals showed high engagement and interest in learning more on new fabrication approaches that might support their work with patients. Hospitals and health professionals might be in the right situation to involve participatory co-design processes with patients and maker experts in their daily working activities.

Careables also showed that the co-creation approach might be even more important in the Global South and that Careables activities are linked to the SDGs. In many countries of the Global South local manufacturing is a highly important way of serving the needs of the local population. We see successful collaborations with hospitals established in Brazil, Ghana, Nepal and Careables being an approach that helps to adapt production to local facilities, available material etc.

In the light of these different scenarios of Careables, we also see new job profiles emerging. If digital fabrication will continue to rise then we will also see the rising need for designers and engineers, who combine digital fabrication and design thinking skills with soft skills like empathy.
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