EFOEUPATI project deliverables were divided into four main workpackages (WPs): WP1 (Coordination), WP2 (Sustainability), WP3 (Patient Education and Engagement Portal) and WP4 (ENP). All workpackages achieved their objectives, deliverables and milestones according to the set timelines.
WP1 focused on coordinating the different WPs and in delivering the governance of the project. It involved all the partners of the Consortium and adapted the project plan as necessary to ensure the timely delivery of all project work. It also coordinated the submission of interim and final reports as well as all deliverable reports.
WP2 developed a viable sustainability and business model for the mid- to long-term future of EUPATI by identifying new funding sources and creating the necessary plans to implement and exploit them. This mixed business model comprises different interconnected funding streams which serve to sustain the core EUPATI activities and enable widening EUPATI’s scope to reach and support more patients and stakeholders engaging patients to improve medicines development in Europe. Pilot activities to validate the different pillars of the business model (executed and evaluated outside of the framework of the EFOEUPATI project) provided valuable feedback and helped to refine and finalise the model. Finally, WP2 supported the establishment of EUPATI Foundation as an independent legal entity necessary to put the full business model into action, ensuring long-term sustainability and maintaining the impact of EUPATI.
WP3 developed, designed and launched new EUPATI Patient Education and Engagement Portals. These host relevant information and resources for patients and other stakeholders to ensure meaningful and value adding patient engagement in medicines R&D. EUPATI main portal (www.eupati.eu) provides information and guidance about the training & education, The EUPATI Online Toolbox (www.toolbox.eupati.eu) offers a large library of resources in multiple languages to the general public and the EUPATI Collaborate Portal (www.collaborate.eupati.eu) provides opportunities for collaboration with EUPATI and its network.
WP4 focused on the regionalisation of the EUPATI National Platforms and provide a support infrastructure, optimising the efforts of initiatives whilst connecting cultural and system similarities. It also supported training initiatives through sharing of best practices and guides. A communication toolkit and common ENP messages package was developed and shared widely within the network. These tools are easily adaptable to different country contexts and facilitate the replication of the public-private partnership model and EUPATI activities at the national level.
The EUPATI Secretariat worked closely with the Work Package leaders to ensure successful communication and dissemination of project progress and results. Information about the project outcomes were widely disseminated. The communication channels include among others presentations, conferences, social media such as Twitter (4’700+) and Facebook (2’500+), distribution list (4’000+), webinars, and the EUPATI website (700’000+). Key dissemination elements include a webinar, press release and newsletter features.
