Dementia: Intersectorial Strategy for Training and Innovation Network for Current Technology (DISTINCT)

Project Information

DISTINCT

Grant agreement ID: 813196

DOI 10.3030/813196

Project closed

EC signature date 18 June 2019

Start date 1 May 2019

End date 31 July 2023

Funded under

• EXCELLENT SCIENCE - Marie Skłodowska-Curie Actions

Total cost € 3 998 048,04

EU contribution € 3 998 048,04

Coordinated by

THE UNIVERSITY OF NOTTINGHAM
United Kingdom

Deliverables

Documents, reports (16)

Report on cost and effectiveness of FindMyApps tool to find usable apps for self-management and social participation
Reports on public engagement work

Initial + final reports on public engagement work

Report on design, development and testing of a low cost pet-like care-bot to support daily tasks with reminders
Report of effectiveness and implementation of Acceptance and Commitment Therapy and usability of momentary assessment technology
Report on ethical issues and implementation strategies around social robotics in dementia care to promote social health
Report on use of mini-robot for enhancing mood and social participation
Report on evaluation of the use of home-based technology using tablets as a learning system for communication, participation and enhancing the relationship of community-dwelling caregiving dyads

Report on evaluation of the use of home-based technology using tablets as a learning system for communication, participation and enhancing the relationship of community-dwelling caregiving dyads

Report on acceptance and adoption of social robots into everyday life for people with dementia
Report on the adaptation of recovery-oriented approaches and technology in dementia
3 scientific papers per ESR
Report on health and wellness coaching technology for older adults with dementia and their carers in rural areas
Report on using Geographic Information System-based intervention to assist social participation
Final report on DISTINCT Training Programme
Report on technology to assist disclosure of dementia by the diagnosed individual to their social networks
Report on the best practice implementation of Ambient Assisted Living (AAL) technology for communication across Europe
Report on impact of person-centred touch-screen based photo-activity for social participation in people with advanced dementia

Other (8)

5th DISTINCT School in year 3
Best practice guide on technology promoting social health in dementia
1st DISTINCT School in year 1

1st DISTINCT School in year 1 (M9, MU-NL + VUMC-NL + VUB-BE)

PhD (all ESRs in PhD trajectory)
3rd DISTINCT School in year 2
2nd DISTINCT School in year 2
4th DISTINCT School in year 3
2 conference presentations per ESR

Open Research Data Pilot (1)

Data Management Plan

Websites, patent fillings, videos etc. (3)

Report on improving peer support for people with young onset dementia (YOD)
Interactive peer support website for ACP for people with dementia

Interactive peer support website for ACP for people with dementia evaluated using a feasibility trial looking at benefits to mental wellbeing

Website

DISTINCT website up and running

Publications

Peer reviewed articles (41)

Can Use of Digital Technologies by People with Dementia Improve Self-Management and Social Participation? A Systematic Review of Effect Studies

Author(s): David Neal, Floor van den Berg, Caroline Planting, Teake Ettema, Karin Dijkstra, Evelyn Finnema, Rose-Marie Dröes
Published in: Journal of Clinical Medicine, Issue 10/4, 2021, Page(s) 604, ISSN 2077-0383
Publisher: Multidisciplinary Digital Publishing Institute (MDPI)
DOI: 10.3390/jcm10040604

Exploring Barriers and Facilitators to the Implementation of Pet robots for People with Dementia in Nursing Homes: A Qualitative Research Protocol

Author(s): Wei Qi Koh, Elaine Toomey, Dympna Casey
Published in: BMC Geriatrics, 2021, ISSN 1471-2318
Publisher: BioMed Central
DOI: 10.1177/16094069211047059

Online peer support: views and experiences of people with young onset dementia (YOD)

Author(s): Gerritzen, E.V., McDermott, O., & Orrell, M
Published in: Aging and Mental Health., 2023, ISSN 1360-7863
Publisher: Carfax Publishers
DOI: 10.1080/13607863.2023.2205833

Randomized controlled feasibility study of FindMyApps: first evaluation of a tablet-based intervention to promote self-management and meaningful activities in people with mild dementia

Author(s): Yvonne Kerkhof, Gianna Kohl, Melanie Veijer, Floriana Mangiaracina, Ad Bergsma, Maud Graff & Rose-Marie Dröes
Published in: Disability and Rehabilitation: Assistive Technology, 2022, ISSN 1748-3115
Publisher: Taylor & Francis
DOI: 10.1080/17483107.2020.1765420

The impact of Covid-19 for occupational therapy: Findings and recommendations of a global survey

Author(s): Viktoria Hoel, Claudia von Zweck, Ritchard Ledgerd
Published in: World Federation of Occupational Therapists Bulletin, 2021, Page(s) 1-8, ISSN 1447-3828
Publisher: WFOT Bulletin, Taylor and Francis Groups
DOI: 10.1080/14473828.2020.1855044

Bridging gaps in the design and implementation of socially assistive technologies for dementia care: the role of occupational therapy

Author(s): Wei Qi Koh, Pascale Heins, Aisling Flynn, Aysan Mahmoudi Asl, Lesley Garcia ,Camilla Malinowsky & Anna Brorsson
Published in: Disability and Rehabilitation: Assistive Technology, 2022, ISSN 1748-3115
Publisher: Taylor & Francis
DOI: 10.1080/17483107.2022.2111610

Online peer support for people with Multiple Sclerosis: a narrative synthesis systematic review

Author(s): Gerritzen, E.V., Lee, A.R., McDermott, O., Coulson, N., & Orrell, M.
Published in: International Journal of MS Care, 2022, ISSN 1537-2073
Publisher: Consortium of Multiple Sclerosis Centers (CMSC)
DOI: 10.7224/1537-2073.2022-040

Psychometric characteristics of comprehensive geriatric assessments (CGAs) for long-term care facilities and community care: A systematic review

Author(s): Molinari Ulate, M., Mahmoudi Asl, A., Franco Martin, M., & van der Roest, H.
Published in: Ageing Research Reviews, 2022, ISSN 1568-1637
Publisher: Elsevier BV
DOI: 10.1016/j.arr.2022.101742

Factors associated with disclosing a diagnosis of dementia to one’s social network: A systematic review

Author(s): Kohl, G., Ulate, M.M., Bhatt, J., Scior, K. and Charlesworth, G.
Published in: Alzheimer's Dementtia, 2021, ISSN 1552-5279
Publisher: Wiley
DOI: 10.1002/alz.056146

Insights on conducting digital patient and public involvement in dementia research during the COVID-19 pandemic: supporting the development of an “E-nabling digital co-production” framework

Author(s): Mauricio Molinari-Ulate, Rebecca Woodcock, Isabelle Smith, Henriëtte G. van der Roest, Manuel A. Franco-Martín & Michael P. Craven
Published in: Research Involvement and Engagement, 2022, ISSN 2056-7529
Publisher: BMC
DOI: 10.1186/s40900-022-00371-9

Technology-driven solutions to prompt conversation, aid communication and support interaction for people with dementia and their caregivers: a systematic literature review

Author(s): Viktoria Hoel, Carine Mendom Feunou, Karin Wolf-Ostermann
Published in: BMC Geriatrics, Issue 21/1, 2021, ISSN 1471-2318
Publisher: BioMed Central
DOI: 10.1186/s12877-021-02105-0

Barriers and facilitators to the implementation of social robots for older adults and people with dementia: a scoping review protocol

Author(s): Wei Qi Koh, Simone Anna Felding, Elaine Toomey, Dympna Casey
Published in: Systematic Reviews, Issue 10/1, 2021, ISSN 2046-4053
Publisher: BioMed Central
DOI: 10.1186/s13643-021-01598-5

Social Health among German Nursing Home Residents with Dementia during the COVID-19 Pandemic, and the Role of Technology to Promote Social Participation

Author(s): Hoel V, Seibert K, Domhoff D, Preuß B, Heinze F, Rothgang H, Wolf-Ostermann K
Published in: International Journal of Environmental Research and Public Health, 2022, ISSN 1661-7827
Publisher: Multidisciplinary Digital Publishing Institute (MDPI)
DOI: 10.3390/ijerph19041956

Social Isolation and the Use of Technology in Caregiving Dyads Living With Dementia During COVID-19 Restrictions

Author(s): Hoel,V., Wolf-Ostermann, K. & Atieno Ambugo, E
Published in: Frontiers in Public Health, 2022, ISSN 2296-2565
Publisher: Frontiers
DOI: 10.3389/fpubh.2022.697496

The ethics of pet robots in dementia care settings: Care professionals’ and organisational leaders' ethical intuitions

Author(s): Wei Qi Koh, Tijs Vandemeulebroucke, Chris Gastmans, Rose Miranda, Lieve van den Block
Published in: Frontiers in Psychiatry, 2023, ISSN 1664-0640
Publisher: Frontiers Research Foundation
DOI: 10.3389/fpsyt.2023.1052889

Was a global pandemic needed to adopt the use of telehealth in occupational therapy?

Author(s): Viktoria Hoel, Claudia von Zweck, Ritchard Ledgerd
Published in: Work, Issue 68/1, 2021, Page(s) 13-20, ISSN 1051-9815
Publisher: IOS Press
DOI: 10.3233/wor-205268

Information on advance care planning on websites of dementia associations in Europe: A content analysis

Author(s): Monnet, F., Pivodic, L., Dupont, C., Dröes, R. M., & Van den Block, L
Published in: Aging & Mental Health, 2023, ISSN 1360-7863
Publisher: Carfax Publishers
DOI: 10.1080/13607863.2022.2146051

Design and implementation framework of social assistive robotics for people with dementia - a scoping review

Author(s): Deniz Ozdemir, Jaroslav Cibulka, Olga Stepankova, Iva Holmerova
Published in: Health and Technology, Issue 11/2, 2021, Page(s) 367-378, ISSN 2190-7188
Publisher: Springer Verlag
DOI: 10.1007/s12553-021-00522-0

Usability and impact of a low-cost robotic pet for older adults and people with dementia: A qualitative content analysis of user experiences and perceptions on consumer websites

Author(s): Wei Qi Koh, Sally Anne Whelan, Pascale Heins, Dympna Casey, Elaine Toomey, Rose-Marie Dröes
Published in: JMIR Aging, 2022, ISSN 2561-7605
Publisher: JMIR Publications
DOI: 10.2196/29224

A scoping review using the Almere model to understand factors facilitating andhindering the acceptance of social robots in nursing homes

Author(s): Felding, Simone Anna; Koh, Wei Qi; Teupen, Sonja; Budak, Kübra Beliz; Laporte Uribe, Franziska; Roes, Martina
Published in: International Journal of Social Robotics, 2023, ISSN 1875-4805
Publisher: Springer Nature
DOI: 10.1007/s12369-023-01012-1

Cultural adaptation of the iSupport online training and support programme for caregivers of people with dementia in Castilla y León, Spain

Author(s): Molinari-Ulate M, Guirado-Sánchez Y, Platón L, van der Roest HG, Bahillo A, Franco-Martín M
Published in: Dementia, 2023, ISSN 1471-3012
Publisher: SAGE Publications
DOI: 10.1177/14713012231165578

Publicly Available, Interactive Web-Based Tools to Support Advance Care Planning: Systematic Review

Author(s): Dupont, C., Smets, T., Monnet, F., Pivodic, L., de Vleminck, A., van Audenhove, C., & Van den Block, L.
Published in: Journal of Medical Internet Research, 2022, ISSN 1438-8871
Publisher: Journal of medical Internet Research
DOI: 10.2196/33320

Read and accepted? Scoping the cognitive accessibility of privacy policies of health apps and websites in three European countries

Author(s): Neal D, Gaber S, Joddrell P, Brorsson A, Dijkstra K, Dröes R-M
Published in: Digital Health, 2023, ISSN 2673-253X
Publisher: SAGE
DOI: 10.1177/20552076231152162

The cultural adaptation of the go wish card game for use in Flanders, Belgium: a public health tool to identify and discuss end-of-life preferences.

Author(s): Dupont, C., Smets, T., Monnet, F., Eneslätt, M., Tishelman, C., & Van den Block, L
Published in: BMC Public Health, 2022, ISSN 1471-2458
Publisher: BioMed Central
DOI: 10.1186/s12889-022-14523-9

Impacts of Low-cost Robotic Pets for Older Adults and People With Dementia: Scoping Review

Author(s): Wei Qi Koh, Faith Xin Hui Ang, Dympna Casey
Published in: JMIR Rehabilitation and Assistive Technologies, Issue 8/1, 2021, Page(s) e25340, ISSN 2369-2529
Publisher: JMIR
DOI: 10.2196/25340

The Effects of Technological Interventions on Social Participation of Community-Dwelling Older Adults with and Without Dementia: A Systematic Review

Author(s): Pascale Heins, Lizzy M. M. Boots, Wei Qi Koh, An Neven, Frans R. J. Verhey, Marjolein E. de de Vugt
Published in: Journal of Clinical Medicine, Issue 10/11, 2021, Page(s) 2308, ISSN 2077-0383
Publisher: Multidisciplinary Digital Publishing Institute (MDPI)
DOI: 10.3390/jcm10112308

Implementing Active Assisted Living Technology in the Long-term Care of People Living With Dementia to Address Loneliness: European Survey

Author(s): Budak KB, Laporte Uribe F, Meiland F, Felding SA, Teupen S, Bergmann JM, Mueller-Widmer R, Roes M
Published in: JMIR Aging, 2023, ISSN 2561-7605
Publisher: JMIR
DOI: 10.2196/45231

Strategies for implementing pet robots in care homes and nursing homes for residents with dementia: Protocol for a modified Delphi study

Author(s): Wei Qi Koh, Dympna Casey, Viktoria Hoel, Elaine Toomey
Published in: BMC Implementation Science Communications, 2022, ISSN 2662-2211
Publisher: Springer Nature
DOI: 10.1186/s43058-022-00308-z

Limitations of the new ISO standard for health and wellness app

Author(s): David Neal, Thomas Engelsma, Josephine Tan, Michael P Craven, Romaric Marcilly, Linda Peute, Tom Dening, Monique Jaspers, Rose-Marie Dröes
Published in: The Lancet Digital Health, 2022, ISSN 2589-7500
Publisher: Elsevier
DOI: 10.1016/s2589-7500(21)00273-9

Methodologies Used to Study the Feasibility, Usability, Efficacy, and Effectiveness of Social Robots For Elderly Adults: Scoping Review

Author(s): Mahmoudi, A., Molinari Ulate, M., Franco Martin, M., & van der Roest, H
Published in: Journal of Medical Internet Research, 2022, ISSN 1438-8871
Publisher: Journal of medical Internet Research
DOI: 10.2196/37434

Online Peer Support for People With Parkinson Disease: Narrative Synthesis Systematic Review

Author(s): Gerritzen EV, Lee AR, McDermott O, Coulson N, Orrell M
Published in: JMIR Aging, 2022, ISSN 2561-7605
Publisher: JMIR
DOI: 10.2196/35425

Known in the nursing home: development and evaluation of a digital person-centered artistic photo-activity intervention to promote social interaction between residents with dementia, and their formal and informal carers

Author(s): Josephine Rose Orejana Tan, Petra Boersma, Teake P. Ettema, Laurence Aëgerter, Robbert Gobbens, Max L. Stek & Rose-Marie Dröes
Published in: BMC Geriatrics, 2022, ISSN 1471-2318
Publisher: BioMed Central
DOI: 10.1186/s12877-021-02632-w

The usability and feasibility validation of the social robot MINI in people with dementia and mild cognitive impairment; a study protocol

Author(s): Mahmoudi, A., Toribio-Guzmán, J. M., van der Roest, H., Castro-González, Á., Malfaz, M., Salichs, M. A., & Martin, M. F.
Published in: BMC Psychiatry, 2022, ISSN 1471-244X
Publisher: BioMed Central
DOI: 10.1186/s12888-022-04418-9

Enrichment of dementia caregiving relationships through psychosocial interventions: A scoping review

Author(s): Viktoria Hoel; Wei Qi Koh; Duygu Sezgin
Published in: Frontiers in Medicin, Issue 18, 2022, ISSN 2296-858X
Publisher: Frontiers
DOI: 10.3389/fmed.2022.1069846

Potential facilitators and barriers to implementing the MINI robot in community-based Meeting Centres for people with dementia and their carers in the Netherlands and Spain

Author(s): Mahmoudi Asl A, Kouters S, Castro-González, Henriëtte van der Roest H, Franco Martin M, Dröes RM
Published in: Journal of Medical Internet Research, 2023, ISSN 1438-8871
Publisher: Journal of medical Internet Research
DOI: 10.2196/44125

Can technology impact loneliness in dementia? A scoping review on the role of assistive technologies in delivering psychosocial interventions in long-term care

Author(s): Kübra Beliz Budak, Golnaz Atefi, Viktoria Hoel, Franziska Laporte Uribe, Franka Meiland, Sonja Teupen, Simone Anna Felding & Martina Roes
Published in: Disability and Rehabilitation: Assistive Technology, 2021, ISSN 1748-3107
Publisher: Taylor & Francis
DOI: 10.1080/17483107.2021.1984594

A Neuropsychological Rehabilitation Program for People with Mild Cognitive Impairment and Mild Dementia. Results of a Randomized Controlled Trial After 4 and 12 Months of Treatment

Author(s): Angie A. Diaz Baquero; Manuel A. Franco-Martín; Esther Parra Vidales; José Miguel Toribio-Guzmán; Yolanda Bueno-Aguado; Fernando Martínez Abad; María V. Perea Bartolomé; Aysan Mahmoudi Asl; Henriëtte G. van der Roest
Published in: Journal of Alzheimer's Disease, 86(2), 711 - 727. IOS Press, Issue 36, 2022, ISSN 1387-2877
Publisher: IOS Press
DOI: 10.3233/jad-215350

Evaluation of FindMyApps: protocol for a randomized controlled trial of the effectiveness and cost-effectiveness of a tablet-based intervention to improve self-management and social participation of community-dwelling people with mild dementia, compared to usual tablet use

Author(s): David Peter Neal, Yvonne J. F. Kerkhof, Teake P. Ettema, Majon Muller, Judith Bosmans, Evelyn Finnema, Maud Graff, Karin Dijkstra, Max L. Stek, Rose-Marie Dröes
Published in: BMC Geriatrics, Issue 21/1, 2021, ISSN 1471-2318
Publisher: BioMed Central
DOI: 10.1186/s12877-021-02038-8

Strategies to implement pet robots in long-term care facilities for dementia care: A modified Delphi study

Author(s): Wei Qi Koh, Viktoria Hoel, Dympna Casey, Elaine Toomey
Published in: Journal of the American Medical Directors Association, 2022, ISSN 1525-8610
Publisher: Lippincott Williams & Wilkins Ltd.
DOI: 10.1016/j.jamda.2022.09.010

Peer support through video meetings: Experiences of people with young onset dementia

Author(s): Gerritzen, E.V., Kohl, G., Orrell, M., & McDermott, O.
Published in: Dementia, 2023, ISSN 1471-3012
Publisher: SAGE Publications
DOI: 10.1177/14713012221140468

Development of Best Practice Guidance on Online Peer Support for People With Young Onset Dementia: Protocol for a Mixed Methods Study

Author(s): Gerritzen, E.V., McDermott, O., & Orrell, M.
Published in: JMIR Research Protocols, 2022, ISSN 1929-0748
Publisher: JMIR Publications
DOI: 10.2196/38379