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Improving Health Research in EU through FAIR Data

Deliverables

Report on the FAIR4Health open community development

Report on the FAIR4Health open community development will be first presented at M6, and then updated at M12, M18, M24, M30, M36

"Scientific open access paper on the hypothesis validation #1"

Report on Scientific open access paper on the hypothesis validation 1

FAIR4Health platform user guide

FAIR4Health platform user guide link will be facilitated to the EC Officers access limited with username and password brief user tutorial

Technical recommendations for the FAIR4Health platform and agents implementation

Report on Technical recommendations for the FAIR4Health platform and agents implementation

Scientific open access paper on the FAIRification methods

Report on Scientific open access paper on the FAIRification methods

Report on the FAIRification workshops and tutorials series

Report on the FAIRification workshops and tutorials series will be presented at M6 and then updated at M21, M36

Report on FAIR data certification roadmap

Report on FAIR data certification roadmap

Scientific open access paper on the potential impact in health outcomes

Report on Scientific open access paper on the potential impact in health outcomes

Business model & marketing strategy for products/services derived from FAIR data reuse in health domains

Report on Business model marketing strategy for productsservices derived from FAIR data reuse in health domains

Outreach strategy and Dissemination Plan

Report on Outreach strategy and Dissemination Plan will be presented at M3 and updated at M12, M24 M36.

Report on the demonstrators performance

Report on the demonstrators performance

"Scientific open access paper on the hypothesis validation #2"

Report on Scientific open access paper on the hypothesis validation 2

Local ethical approvals

Report on Local ethical approvals

Guidelines for implementing FAIR open data policy in health research

Report on Guidelines for implementing FAIR open data policy in health research

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Publications

Um Novo Paradigma em Investigação em Saúde: Dados FAIR (Localizáveis, Acessíveis, Interoperáveis, Reutilizáveis)

Author(s): Marta Almada, Luis Midão, Diana Portela, Ines Dias, Francisco J. Núñez-Benjumea, Carlos L. Parra-Calderón, Elísio Costa
Published in: Acta Médica Portuguesa, 33/12, 2020, Page(s) 828, ISSN 0870-399X
Publisher: Ordem dos Medicos
DOI: 10.20344/amp.12910

From Raw Data to FAIR Data: The FAIRification Workflow for Health Research

Author(s): A. Anil Sinaci, Francisco J. Núñez-Benjumea, Mert Gencturk, Malte-Levin Jauer, Thomas Deserno, Catherine Chronaki, Giorgio Cangioli, Carlos Cavero-Barca, Juan M. Rodríguez-Pérez, Manuel M. Pérez-Pérez, Gokce B. Laleci Erturkmen, Tony Hernández-Pérez, Eva Méndez-Rodríguez, Carlos L. Parra-Calderón
Published in: Methods of Information in Medicine, 59/S 01, 2020, Page(s) e21-e32, ISSN 0026-1270
Publisher: Schattauer
DOI: 10.1055/s-0040-1713684

Applying the FAIR4Health Solution to Identify Multimorbidity Patterns and their Association with Mortality through a Frequent Pattern Growth Association Algorithm: Validation Study

Author(s): Jonás CARMONA-PÍREZ, Beatriz POBLADOR-PLOU, Antonio PONCEL-FALCÓ, Jessica ROCHAT, Celia ALVAREZ-ROMERO, Alicia MARTÍNEZ-GARCÍA, Carmen ANGIOLETTI, Marta ALMADA, Mert GENCTURK , Anil SINACI, Jara Eloisa TERNERO-VEGA, Christophe GAUDET-BLAVIGNAC, Christian LOVIS, Rosa LIPEROTI, Elisio COSTA, Carlos Luis PARRA-CALDERÓN, Aida Moreno-Juste, Antonio GIMENO-MIGUEL, Alexandra PRADOS-TORRES
Published in: International Journal of Environmental Research and Public Health, 19(4), 2022, Page(s) 2040, ISSN 1660-4601
Publisher: Multidisciplinary Digital Publishing Institute
DOI: 10.3390/ijerph19042040

The Challenge of the Effective Implementation of FAIR Principles in Biomedical Research

Author(s): Carlos Luis Parra-Calderón, Ferran Sanz, Leslie D. McIntosh
Published in: Methods of Information in Medicine, Methods Inf Med 2020; 59(04/05): 117-118, 2020, Page(s) 59:117–118, ISSN 0026-1270
Publisher: Schattauer
DOI: 10.1055/s-0040-1721726

Enhancing precision medicine: sharing and reusing data

Author(s): Carlos L. Parra Calderón
Published in: HealthManagement, Volume 19 - Issue 3, 2019, 2019, Page(s) 244-245
Publisher: HealthManagement

FAIR4Health: Mejorando la Investigación en Salud Gracias al Uso de Datos FAIR

Author(s): Francisco J Núñez-Benjumea, Alicia Martínez-García, Carlos L Parra-Calderón
Published in: LIBRO DE COMUNICACIONES, PÓSTERS Y PROYECTOS DE INNOVACIÓN, yearly, 2019, Page(s) 21-24, ISBN 978-84-09-09250-5
Publisher: SEIS, Sociedad Española de Informática de la Salud

Por qué es tan difícil reutilizar nuestros datos de salud en investigación

Author(s): Antonio Hernández Pérez
Published in: The Conversation, 2019
Publisher: The Conversation

FAIR4Health: Improving Health Research through FAIR Data

Author(s): Francisco J. Núñez-Benjumea
Published in: HL7 FHIR and the International Patient Summary, Monthly, 2019, Page(s) 18-19
Publisher: HL7 Europe

Security and Privacy when Applying FAIR Principles to Genomic Information

Author(s): Jaime Delgado, Silvia Llorente
Published in: Integrated Citizen Centered Digital Health and Social Care - Citizens as Data Producers and Service co-Creators – Proceedings of the EFMI 2020 Special Topic Conference, 2020, Page(s) 37-41, ISBN 9781643681443
Publisher: IOS Press
DOI: 10.3233/shti200690