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Improving Health Research in EU through FAIR Data

Deliverables

Report on the FAIR4Health open community development

Report on the FAIR4Health open community development will be first presented at M6, and then updated at M12, M18, M24, M30, M36

Technical recommendations for the FAIR4Health platform and agents implementation

Report on Technical recommendations for the FAIR4Health platform and agents implementation

Report on the FAIRification workshops and tutorials series

Report on the FAIRification workshops and tutorials series will be presented at M6 and then updated at M21, M36

Outreach strategy and Dissemination Plan

Report on Outreach strategy and Dissemination Plan will be presented at M3 and updated at M12, M24 M36.

Guidelines for implementing FAIR open data policy in health research

Report on Guidelines for implementing FAIR open data policy in health research

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Publications

Um Novo Paradigma em Investigação em Saúde: Dados FAIR (Localizáveis, Acessíveis, Interoperáveis, Reutilizáveis)

Author(s): Marta Almada, Luis Midão, Diana Portela, Ines Dias, Francisco J. Núñez-Benjumea, Carlos L. Parra-Calderón, Elísio Costa
Published in: Acta Médica Portuguesa, Issue 33/12, 2020, Page(s) 828, ISSN 0870-399X
DOI: 10.20344/amp.12910

From Raw Data to FAIR Data: The FAIRification Workflow for Health Research

Author(s): A. Anil Sinaci, Francisco J. Núñez-Benjumea, Mert Gencturk, Malte-Levin Jauer, Thomas Deserno, Catherine Chronaki, Giorgio Cangioli, Carlos Cavero-Barca, Juan M. Rodríguez-Pérez, Manuel M. Pérez-Pérez, Gokce B. Laleci Erturkmen, Tony Hernández-Pérez, Eva Méndez-Rodríguez, Carlos L. Parra-Calderón
Published in: Methods of Information in Medicine, Issue 59/S 01, 2020, Page(s) e21-e32, ISSN 0026-1270
DOI: 10.1055/s-0040-1713684

Enhancing precision medicine: sharing and reusing data

Author(s): Carlos L. Parra Calderón
Published in: HealthManagement, Issue Volume 19 - Issue 3, 2019, 2019, Page(s) 244-245

FAIR4Health: Mejorando la Investigación en Salud Gracias al Uso de Datos FAIR

Author(s): Francisco J Núñez-Benjumea, Alicia Martínez-García, Carlos L Parra-Calderón
Published in: LIBRO DE COMUNICACIONES, PÓSTERS Y PROYECTOS DE INNOVACIÓN, Issue yearly, 2019, Page(s) 21-24

Por qué es tan difícil reutilizar nuestros datos de salud en investigación

Author(s): Antonio Hernández Pérez
Published in: The Conversation, 2019

FAIR4Health: Improving Health Research through FAIR Data

Author(s): Francisco J. Núñez-Benjumea
Published in: HL7 FHIR and the International Patient Summary, Issue Monthly, 2019, Page(s) 18-19

Security and Privacy when Applying FAIR Principles to Genomic Information

Author(s): Jaime Delgado, Silvia Llorente
Published in: Integrated Citizen Centered Digital Health and Social Care - Citizens as Data Producers and Service co-Creators – Proceedings of the EFMI 2020 Special Topic Conference, 2020, Page(s) 37-41
DOI: 10.3233/shti200690