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PanCareFollowUp: Novel, patient-centred survivorship care to improve care quality, effectiveness, cost-effectiveness and accessibility for survivors and caregivers

Objective

The 5-year survival for children with cancer increased from 30% in the 1970s to more than 80% at present. There are up to 300,000 childhood cancer survivors in Europe and this number is increasing. Years after treatment, childhood cancer survivors are at high risk for developing health and psychosocial late effects, resulting in excess morbidity and mortality compared the general population. The impact on the quality of life (QoL) of survivors and their families, as well as the societal and economic burdens, are significant. However, these impacts can be reduced by long-term survivorship care to detect treatable disease at an early phase and start timely interventions to preserve health, improve QoL, as well as coordinate specialised care and empower survivors.

Implementing follow-up care, especially for young adult and adult survivors of childhood cancer, has proven challenging across Europe. These survivors have left paediatric care and most of them have no opportunity to visit experts in survivorship care. To improve survivorship care for these survivors across Europe, PanCareFollowUp will conduct a prospective cohort study to assess effectiveness, value, cost effectiveness and feasibility of the PanCareFollowUp Care intervention, a person-centred approach to survivor follow-up care based on international clinical guidelines for surveillance of late effects. PanCareFollowUp also includes the development and assessment of a personalised, guideline-based eHealth lifestyle intervention.

Ensuring that the PanCareFollowUp interventions are used in the real world is paramount to achieving enduring improvements to survivorship care. Hence, the project includes the development of materials to support sustainable maintenance and replication of the PanCareFollowUp interventions. The PanCare network will become the guardian of the interventions after the project, ensuring that the intervention materials are openly available, sustainably maintained and widely shared.

Field of science

  • /social sciences/economics and business/economics/sustainable economy
  • /medical and health sciences/clinical medicine/oncology/cancer

Call for proposal

H2020-SC1-2018-Single-Stage-RTD
See other projects for this call

Funding Scheme

RIA - Research and Innovation action

Coordinator

PRINSES MAXIMA CENTRUM VOOR KINDERONCOLOGIE BV
Address
Heidelberglaan 25
3584CS Utrecht
Netherlands
Activity type
Other
EU contribution
€ 711 875

Participants (13)

LUNDS UNIVERSITET
Sweden
EU contribution
€ 508 998,75
Address
Paradisgatan 5C
22100 Lund
Activity type
Higher or Secondary Education Establishments
ISTITUTO GIANNINA GASLINI
Italy
EU contribution
€ 451 000
Address
Via Gerolamo Gaslini 5
16147 Genova
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
FAKULTNI NEMOCNICE U SV. ANNY V BRNE
Czechia
EU contribution
€ 363 000
Address
Pekarska 53
656 91 Brno
Activity type
Higher or Secondary Education Establishments
KATHOLIEKE UNIVERSITEIT LEUVEN
Belgium
EU contribution
€ 400 000
Address
Oude Markt 13
3000 Leuven
Activity type
Higher or Secondary Education Establishments
KRAEFTENS BEKAEMPELSE
Denmark
EU contribution
€ 335 000
Address
Strandboulevarden 49
2100 Koebenhavn
Activity type
Research Organisations
UNIVERSITAT LUZERN
Switzerland
EU contribution
€ 220 000
Address
Frohburgstrasse 3
6002 Luzern
Activity type
Higher or Secondary Education Establishments
STICHTING KATHOLIEKE UNIVERSITEIT
Netherlands
EU contribution
€ 310 000
Address
Geert Grooteplein Noord 9
6525 EZ Nijmegen
Activity type
Higher or Secondary Education Establishments
UNIVERSITY OF NEWCASTLE UPON TYNE
United Kingdom
EU contribution
€ 84 998,75
Address
Kings Gate
NE1 7RU Newcastle Upon Tyne
Activity type
Higher or Secondary Education Establishments
SIOP EUROPE ASBL
Belgium
EU contribution
€ 117 500
Address
Avenue E Mounier 83
1200 Bruxelles
Activity type
Other
STICHTING NEDERLANDS INSTITUUT VOOR ONDERZOEK VAN DE GEZONDHEIDSZORG
Netherlands
EU contribution
€ 120 000
Address
Otterstraat 118-124
3500 BN Utrecht
Activity type
Research Organisations
OSTERREICHISCHE KINDER-KREBS-HILFE-VERBAND DER OSTERREICHISCHEN KINDER-KREBS-HILFE-ORGANISATIONEN VEREIN
Austria
EU contribution
€ 110 000
Address
Borschkegasse 1/7
1090 Wien
Activity type
Other
PANCARE
Netherlands
EU contribution
€ 62 500
Address
Jacobus Bellamylaan 16
1401 AZ Bussum
Activity type
Other
PINTAIL LTD
Ireland
EU contribution
€ 205 000
Address
Springhill Avenue 77
A94 K542 Blackrock
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)