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Evaluation of Dyadic Psychoeducational Interventions for People with Advanced Cancer and their Informal Caregivers (DIAdIC): An international randomized controlled trial

Deliverables

Background report WP8

Background report on current family caregiving practices and cultures in the participating countries

Press release launch

Press release launch of the project

Article protocol

Report on research protocol published in an open access peerreviewed journal

Report WP2

Report on preparation of intervention and associated materials

DEC report

Annual communication and dissemination report

questionnaires

High-quality translations of validated and tested questionnaires for patients and family caregivers

Manuscript WP2

Manuscript on preparation of the intervention and associated materials

Final platform

Tested, validated and IT-approved web platform ready to use

Study protocol

Completed and registered study protocol and data analysis plan

Complete training session

Complete training session nurse-led intervention

Pilot results

Results of the pilot test for the datacollection

Publications

A self-management psychoeducational eHealth program to support and empower people with advanced cancer and their family caregivers: Development using the scrum methodology.

Author(s): Van Goethem V, Dierickx S, Matthys O, Northouse L, Lund L, Jordan C, Turola E, van der Wel M, Scott D, Harding R, Deliens L, Lapeire L., DIAdIC team, Hudson P, De Vleminck A, Cohen J.
Published in: Internet Interventions, 2023, ISSN 2214-7829
Publisher: Elsevier BV
DOI: 10.1016/j.invent.2023.100659

Effectiveness of a nurse-delivered (FOCUS+) and a web-based (iFOCUS) psychoeducational intervention for people with advanced cancer and their family caregivers (DIAdIC): study protocol for an international randomized controlled trial

Author(s): Orphé Matthys, Aline De Vleminck, Sigrid Dierickx, Luc Deliens, Vincent Van Goethem, Lore Lapeire, Mogens Groenvold, Line Lund, Caroline Moeller Arnfeldt, Lisa Sengeloev, Helle Pappot, Anna Thit Johnsen, Suzanne Guerin, Philip J. Larkin, Catherine Jordan, Michael Connolly, Paul D’Alton, Massimo Costantini, Silvia Di Leo, Monica Guberti, Elena Turola, Agnes van der Heide, Erika Witkamp, Judith R
Published in: BMC Palliative Care, 2021, ISSN 1472-684X
Publisher: BioMed Central
DOI: 10.1186/s12904-021-00895-z

Size and characteristics of family caregiving for people with serious illness: A population-based survey.

Author(s): Van Goethem V, Dierickx S, Deliens L, De Vleminck A, Lapeire L, Cohen J.
Published in: Palliative Supportive Care, 2023, ISSN 1478-9515
Publisher: Cambridge University Press
DOI: 10.1017/s1478951522001079

Is pre-bereavement collaboration between family caregivers and healthcare professionals associated with post-bereavement emotional well-being? A population-based survey.

Author(s): Matthys O, Dierickx S, Deliens L, Lapeire L, Hudson P, Van Audenhove C, De Vleminck A, Cohen J.
Published in: Patient Education and Counseling, 2023, ISSN 0738-3991
Publisher: Elsevier BV
DOI: 10.1016/j.pec.2023.107654

How are family caregivers of people with a serious illness supported by healthcare professionals in their caregiving tasks? A cross-sectional survey of bereaved family caregivers

Author(s): Matthys O, Dierickx S, Deliens L, Lapeire L, Hudson P, Van Audenhove C, De Vleminck A, Cohen J.
Published in: Palliative Medicine, 2022, ISSN 0269-2163
Publisher: SAGE Publications
DOI: 10.1177/02692163211070228

Supportive interventions for family caregivers of patients with advanced cancer: A systematic review.

Author(s): Becqué YN, van der Wel M, Aktan-Arslan M, Driel AGV, Rietjens JAC, van der Heide A, Witkamp E.
Published in: Psychooncology, 2023, ISSN 1057-9249
Publisher: John Wiley & Sons Inc.
DOI: 10.1002/pon.6126

Support from healthcare professionals in empowering family carers to discuss advance care planning: A population-based survey.

Author(s): Vandenbogaerde I, Cohen J, Hudson P, Van Audenhove C, Deliens L, De Vleminck A.
Published in: Palliative Medicine, 2023, ISSN 0269-2163
Publisher: SAGE Publications
DOI: 10.1177/02692163221135032

Systematic translation and adaptation of the FOCUS program, a USA-based supportive intervention for persons with cancer and their family caregivers, for use in six European countries

Author(s): Maaike van der Wel; Doris van der Smissen; Sigrid Dierickx; Joachim Cohen; Peter Hudson; Aline De Vleminck; Lydia Tutt; David Scott; Silvia Di Leo; Caroline Moeller Arnfeldt; Catherine Jordan; Laurel Northouse; Judith Rietjens; Agnes van der Heide; Erica Witkamp
Published in: Supportive Care Cancer, 2022, ISSN 0941-4355
Publisher: Springer Verlag
DOI: 10.1007/s00520-022-07391-x

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