Evaluation of Dyadic Psychoeducational Interventions for People with Advanced Cancer and their Informal Caregivers (DIAdIC): An international randomized controlled trial

Leistungen

Social media

Social media accounts

e-newsletter
Conference

End-of-Project Conference

presentations

At least 20 presentations at international conferences

questionnaires

High-quality translations of validated and tested questionnaires for patients and family caregivers

Manuscript WP2

Manuscript on preparation of the intervention and associated materials

Final platform

Tested, validated and IT-approved web platform ready to use

Study protocol

Completed and registered study protocol and data analysis plan

Complete training session

Complete training session nurse-led intervention

Pilot results

Results of the pilot test for the datacollection

Report WP7

Report on cost-effectiveness of DIAdIC interventions

Background report WP8

Background report on current family caregiving practices and cultures in the participating countries

Implementation guideline
Report WP9

Report process evaluation

Press release launch

Press release launch of the project

Article protocol

Report on research protocol published in an open access peerreviewed journal

Report WP2

Report on preparation of intervention and associated materials

Publications

At least 25 submitted/accepted international publications

program+guidelines

DIAdIC programs and implementation guidelines

Recommendations WP3

Recommendations for implementation of the training in different European countries (report)

Report subgroup analyses

Report on the results of subgroup analyses

Position paper

Position paper with policy and awareness recommendations

DEC report

Annual communication and dissemination report

Veröffentlichungen

Influence of digital competence on participation and retention of patients with advanced cancer and their family caregivers in a randomized controlled trial with an eHealth component: findings from the DIAdIC trial.

Autoren: Van Goethem, V., Dierickx, S., Matthys, O., Deliens, L., Lapeire, L., Surmont, V., ... & Cohen, J.
Veröffentlicht in: Telemedicine and e-Health, 2024
Herausgeber: Mary Ann Liebert, Inc

A self-management psychoeducational eHealth program to support and empower people with advanced cancer and their family caregivers: Development using the scrum methodology.

Autoren: Van Goethem V, Dierickx S, Matthys O, Northouse L, Lund L, Jordan C, Turola E, van der Wel M, Scott D, Harding R, Deliens L, Lapeire L., DIAdIC team, Hudson P, De Vleminck A, Cohen J.
Veröffentlicht in: Internet Interventions, 2023, ISSN 2214-7829
Herausgeber: Elsevier BV
DOI: 10.1016/j.invent.2023.100659

Effectiveness of a nurse-delivered (FOCUS+) and a web-based (iFOCUS) psychoeducational intervention for people with advanced cancer and their family caregivers (DIAdIC): study protocol for an international randomized controlled trial

Autoren: Orphé Matthys, Aline De Vleminck, Sigrid Dierickx, Luc Deliens, Vincent Van Goethem, Lore Lapeire, Mogens Groenvold, Line Lund, Caroline Moeller Arnfeldt, Lisa Sengeloev, Helle Pappot, Anna Thit Johnsen, Suzanne Guerin, Philip J. Larkin, Catherine Jordan, Michael Connolly, Paul D’Alton, Massimo Costantini, Silvia Di Leo, Monica Guberti, Elena Turola, Agnes van der Heide, Erika Witkamp, Judith R
Veröffentlicht in: BMC Palliative Care, 2021, ISSN 1472-684X
Herausgeber: BioMed Central
DOI: 10.1186/s12904-021-00895-z

Size and characteristics of family caregiving for people with serious illness: A population-based survey.

Autoren: Van Goethem V, Dierickx S, Deliens L, De Vleminck A, Lapeire L, Cohen J.
Veröffentlicht in: Palliative Supportive Care, 2023, ISSN 1478-9515
Herausgeber: Cambridge University Press
DOI: 10.1017/s1478951522001079

Is pre-bereavement collaboration between family caregivers and healthcare professionals associated with post-bereavement emotional well-being? A population-based survey.

Autoren: Matthys O, Dierickx S, Deliens L, Lapeire L, Hudson P, Van Audenhove C, De Vleminck A, Cohen J.
Veröffentlicht in: Patient Education and Counseling, 2023, ISSN 0738-3991
Herausgeber: Elsevier BV
DOI: 10.1016/j.pec.2023.107654

How are family caregivers of people with a serious illness supported by healthcare professionals in their caregiving tasks? A cross-sectional survey of bereaved family caregivers

Autoren: Matthys O, Dierickx S, Deliens L, Lapeire L, Hudson P, Van Audenhove C, De Vleminck A, Cohen J.
Veröffentlicht in: Palliative Medicine, 2022, ISSN 0269-2163
Herausgeber: SAGE Publications
DOI: 10.1177/02692163211070228

Sexual satisfaction and its predictors in patients with advanced cancer and their family caregivers in six European countries: Baseline data from the DIAdIC study

Autoren: Orphé Matthys, Sigrid Dierickx, Vincent Van Goethem, Luc Deliens, Lore Lapeire, Aglaja De Pauw, Peter Hudson, Christof Vulsteke, Karen Geboes, Stefanie De Waele, Isabelle Spoormans, Silvia Di Leo, Monica Guberti, Ulrik Sørensen Schmidt, David Scott, Richard Harding, Erica Witkamp, Michael Connolly, null null, Aline De Vleminck, Joachim Cohen
Veröffentlicht in: Psycho-Oncology, Ausgabe 33, 2024, ISSN 1057-9249
Herausgeber: John Wiley & Sons Inc.
DOI: 10.1002/pon.6347

Supportive interventions for family caregivers of patients with advanced cancer: A systematic review.

Autoren: Becqué YN, van der Wel M, Aktan-Arslan M, Driel AGV, Rietjens JAC, van der Heide A, Witkamp E.
Veröffentlicht in: Psychooncology, 2023, ISSN 1057-9249
Herausgeber: John Wiley & Sons Inc.
DOI: 10.1002/pon.6126

Support from healthcare professionals in empowering family carers to discuss advance care planning: A population-based survey.

Autoren: Vandenbogaerde I, Cohen J, Hudson P, Van Audenhove C, Deliens L, De Vleminck A.
Veröffentlicht in: Palliative Medicine, 2023, ISSN 0269-2163
Herausgeber: SAGE Publications
DOI: 10.1177/02692163221135032

Improving the Well-Being of People With Advanced Cancer and Their Family Caregivers: Protocol for an Effectiveness-Implementation Trial of a Dyadic Digital Health Intervention (FOCUSau)

Autoren: Peter Hudson, Jill Francis, Joachim Cohen, Suzanne Kapp, Richard De Abreu Lourenco, Lisa Beatty, Kathleen Gray, Michael Jefford, Ilona Juraskova, Laurel Northouse, Aline de Vleminck, Sungwon Chang, Patsy Yates, Sophy Athan, Shaira Baptista, Marlena Klaic, Jennifer Philip
Veröffentlicht in: JMIR Research Protocols, Ausgabe 13, 2024, Seite(n) e55252, ISSN 1929-0748
Herausgeber: JMIR Publications Inc.
DOI: 10.2196/55252

Systematic translation and adaptation of the FOCUS program, a USA-based supportive intervention for persons with cancer and their family caregivers, for use in six European countries

Autoren: Maaike van der Wel; Doris van der Smissen; Sigrid Dierickx; Joachim Cohen; Peter Hudson; Aline De Vleminck; Lydia Tutt; David Scott; Silvia Di Leo; Caroline Moeller Arnfeldt; Catherine Jordan; Laurel Northouse; Judith Rietjens; Agnes van der Heide; Erica Witkamp
Veröffentlicht in: Supportive Care Cancer, 2022, ISSN 0941-4355
Herausgeber: Springer Verlag
DOI: 10.1007/s00520-022-07391-x

Leistungen

Veröffentlichungen

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