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Palliative care in Parkinson’s disease

Objective

Parkinson’s Disease (PD) is the second most common neurodegenerative disorder and is characterized in its advanced stages by motor and non-motor complications causing progressive loss of autonomy in activities of daily living, poor quality of life, marked caregiver distress, and high utilization of medical services. Similar to cancer patients, albeit for much longer duration, PD patients have considerable (and mounting) unmet physical, psychosocial and spiritual needs, and experience great problems with continuity of care.
The overall ambition of PD_Pal is to validate a new model of palliative care which would be easily integrated with traditional management when disability limits mobility and independence. PD_Pal will provide an added layer of support to patients, their loved ones, and treating clinicians.
PD_Pal randomised controlled trial will provide evidence on the effectiveness of specialized, multidisciplinary, outpatient palliative care intervention (Advance Care Planning) in improving family satisfaction, symptom management and quality of life. PD_Pal will also further prove the feasibility and economic sustainability of this approach by the active involvement of patients lay associations as well relevant medical societies.
PD_Pal team includes leading experts in both neurology and palliative care with key-roles in both national and international PD working groups. PD_Pal will develop a new set of evidence-based Guidelines and a Massive Online Course (MOOC) for Palliative Care in PD involving in the process experts from the European Association for Palliative Care, the European Academy of Neurology and the Movement Disorders Society. Thus, PD_Pal is best positioned to transfer this knowledge to all European countries and ensure that “PD_Pal Guidelines” will translate into best practice. The PD_Pal MOOC “Best Care for People with Late Stage Parkinson” will be integrated into the WHO supported interdisciplinary post-graduate palliative care curriculum.

Field of science

  • /medical and health sciences/basic medicine/neurology
  • /medical and health sciences/basic medicine/neurology/parkinson
  • /medical and health sciences/clinical medicine/oncology/cancer
  • /social sciences/other social sciences/social sciences interdisciplinary/sustainable development
  • /social sciences/sociology/governance/public services

Call for proposal

H2020-SC1-2018-Single-Stage-RTD
See other projects for this call

Funding Scheme

RIA - Research and Innovation action
Leaflet | Map data © OpenStreetMap contributors, Credit: EC-GISCO, © EuroGeographics for the administrative boundaries

Coordinator

UNIVERSITA DEGLI STUDI DI PADOVA
Address
Via 8 Febbraio 2
35122 Padova
Italy
Activity type
Higher or Secondary Education Establishments
EU contribution
€ 600 000

Participants (9)

STICHTING KATHOLIEKE UNIVERSITEIT
Netherlands
EU contribution
€ 597 500
Address
Geert Grooteplein Noord 9
6525 EZ Nijmegen
Activity type
Higher or Secondary Education Establishments
PD NEUROTECHNOLOGY LTD
United Kingdom
EU contribution
€ 237 500
Address
2 More London Riverside
SE1 2AP London
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
PANEPISTIMIO IOANNINON
Greece
EU contribution
€ 378 250
Address
Panepistemioypole Panepistemio Ioanninon
45110 Ioannina
Activity type
Higher or Secondary Education Establishments
KING'S COLLEGE LONDON
United Kingdom
EU contribution
€ 318 750
Address
Strand
WC2R 2LS London
Activity type
Higher or Secondary Education Establishments
MEDIOLANUM CARDIO RESEARCH SRL
Italy
EU contribution
€ 322 500
Address
Piazza Giovine Italia 5
20123 Milano
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
UNIVERSITY COLLEGE LONDON
United Kingdom
EU contribution
€ 435 000
Address
Gower Street
WC1E 6BT London
Activity type
Higher or Secondary Education Establishments
EESTI LIIGUTUSHAIRETE SELTS
Estonia
EU contribution
€ 362 500
Address
L Puusepa 2
51014 Tartu
Activity type
Other
PARACELSUS MEDIZINISCHE PRIVATUNIVERSITAT SALZBURG - PRIVATSTIFTUNG
Austria
EU contribution
€ 450 000
Address
Strubergasse 21
5020 Salzburg
Activity type
Higher or Secondary Education Establishments
PHILIPPS UNIVERSITAET MARBURG
Germany
EU contribution
€ 293 437,50
Address
Biegenstrasse 10
35037 Marburg
Activity type
Higher or Secondary Education Establishments