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Citizen-centred EU-EHR exchange for personalised health

Deliverables

1st Specification of user requirements and performance criteria

Specification of user requirements and performance criteria

4HealthNavigator portal: multi-lingual EHR exchange compliant with International Patient Summary, including medication plans, and compliant connectivity with European Reference Networks

Report on 4HealthNavigator portal multilingual EHR exchange compliant with International Patient Summary including medication plans and compliant connectivity with European Reference Networks

3rd Smart4Health Helpdesk

Report on Smart4Health Helpdesk

1st Dissemination plan and activities

Report on Dissemination plan and activities.

4th Dissemination plan and activities

Report on Dissemination plan and activities

3rd Communication plan and visibility plan

Communication plan and visibility plan

2nd Dissemination plan and activities

Report on Dissemination plan and activities.

1st Smart4Health sustainability and extensibility roadmap

Smart4Health sustainability and extensibility roadmap

1st CUCs 1 and 2 US EHR+ and EU EHR progress

Report on CUCs 1 and 2 US EHR+ and EU EHR progress.

2nd Synergies and interoperability for EU DSM

Report on Synergies and interoperability for EU DSM

4th Communication plan and visibility plan

Communication plan and visibility plan

3rd Provision of tools, software and instruction notes for interoperability and integration of components in the CUCs

Report on provision of tools software and instruction notes for interoperability and integration of components in the CUCs

2nd Massive Open Online Courses

Report on Massive Open Online Courses

3rd CUC 8 Regional health, tourists, MSD prevention progress

Report on CUC8 Regional health tourists MSD prevention progress

Social Science and Humanities Framework Report
2nd Specification of user requirements and performance criteria

Specification of user requirements and performance criteria.

4HealthNavigator portal dynamic consent, access rights management

Report on 4HealthNavigator portal dynamic consent, access rights management.

Description of the Use Design Cases from the citizen/user perspective

Description of the Use Design Cases from the citizenuser perspective

4HealthPlatform detailed prototype plan and specifications requirements report

Report on 4HealthPlatform detailed prototype plan and specifications requirements.

2nd Citizen/User Consent Language Report

CitizenUser Consent Language Report

2nd Smart4Health Helpdesk

Report on Smart4Health Helpdesk

1st Provision of tools, software and instruction notes for interoperability and integration of components in the CUCs

Report on Provision of tools, software and instruction notes for interoperability and integration of components in the CUCs.

4HealthPlatform Data Centre Infrastructure

Report on 4HealthPlatform Data Centre Infrastructure

Validation report on information provision and consenting capabilities

Report on the validation of information provision and consenting capabilities

1st Communication plan and visibility plan

Communication plan and visibility plan

3rd Training and education modules and events: education campaign

Report on Training and education modules and events education campaign

2nd CUCs 3, 4, 5, 6, 7 back pain and MSD progress

Report on CUCs 3 4 5 6 7 back pain and MSD progress

2nd Smart4Health sustainability and extensibility roadmap

Smart4Health sustainability and extensibility roadmap

4HealthNavigator portal detailed engineering requirements and software architecture report

Report on 4HealthNavigator portal detailed engineering requirements and software architecture.

2nd Smart4Health Assistance Hubs

Report on Smart4Health Assistance Hubs

Report on succesfully performed donation of data from use case study datasets to research infrastructure
4HealthPlatform Citizen Health Data Platform Implementation with Access Control Services, Connectivity, Data Ingestion

Report on 4HealthPlatform Citizen Health Data Platform Implementation with Access Control Services Connectivity Data Ingestion

3rd Synergies and interoperability for EU DSM

Report on Synergies and interoperability for EU DSM

1st Platform interoperability and alignment with ELIXIR recommendations

Report on recommendations for platform interoperability and alignment with ELIXIR.

2nd Implementation of data donation for research and innovation in line with the legal provisions

Report on the implementation of data donation for research and innovation in line with the legal provisions

3rd CUCs 3, 4, 5, 6, 7 back pain and MSD progress

Report on CUCs 3 4 5 6 7 back pain and MSD progress

1st Implementation of data donation for research and innovation in line with the legal provisions

Report on the implementation of data donation for research and innovation in line with the legal provisions.

4HealthPlatform Testing & Validation.

Report on 4HealthPlatform Testing Validation

1st CUCs 3, 4, 5, 6, 7 back pain and MSD progress

Report on CUCs 3, 4, 5, 6, 7 back pain and MSD progress.

3rd CUCs 1 and 2 US EHR+ and EU EHR progress

Report on CUCs 1 and 2 US EHR and EU EHR progress

1st Smart4Health Assistance Hubs

Report on Smart4Health Assistance Hubs.

3rd Smart4Health Assistance Hubs

Report on Smart4Health Assistance Hubs

4HealthPlatform De-identified Research Platform Implementation with analytics, connectivity and access control, de-identification/pseudonymization, data integration/harmonization

Report on 4HealthPlatform Deidentified Research Platform Implementation with analytics connectivity and access control deidentificationpseudonymization data integrationharmonization

1st Massive Open Online Courses

Report on Massive Open Online Courses.

1st Citizen/User Consent Language Report

Citizen/User Consent Language Report.

4HealthNavigator portal user sign-up, login, and record deletion

Report on 4HealthNavigator portal user sign-up, login, and record deletion.

Report on the methodological design of the co-creation environment

Methodological design of the co-creation environment.

1st Smart4Health Helpdesk

Report on Smart4Health Helpdesk.

Implementation report on measures of quality and meaningfulness of data addressed

Report on the implementation of measures of quality and meaningfulness of data addressed

2nd Communication plan and visibility plan

Communication plan and visibility plan.

2nd CUC 8 Regional health, tourists, MSD prevention progress

Report on CUC8 Regional health tourists MSD prevention progress

4HealthNavigator portal: data-driven, Omics-capable personalised health services

Report on 4HealthNavigator portal datadriven Omicscapable personalised health services

2nd CUCs 1 and 2 US EHR+ and EU EHR progress

Report on CUCs 1 and 2 US EHR and EU EHR progress

4HealthNavigator User Portal

Report on 4HealthNavigator User Portal

1st Exploitation plan

Report on Exploitation plan.

1st Training and education modules and events: education campaign

Report on Training and education modules and events: education campaign.

2nd Provision of tools, software and instruction notes for interoperability and integration of components in the CUCs

Report on provision of tools software and instruction notes for interoperability and integration of components in the CUCs

3rd Dissemination plan and activities

Report on Dissemination plan and activities

2nd Training and education modules and events: education campaign

Report on Training and education modules and events education campaign

4HealthNavigator portal: use case-oriented testing and validation

Report on 4HealthNavigator portal use caseoriented testing and validation

2nd Platform interoperability and alignment with ELIXIR recommendations

Report on recommendations for platform interoperability and alignment with ELIXIR.

Validation Report

Report on validation

1st Synergies and interoperability for EU DSM

Report on Synergies and interoperability for EU DSM.

3rd Specification of user requirements and performance criteria

Specification of user requirements and performance criteria

1st CUC 8 Regional health, tourists, MSD prevention progress

Report on CUC 8 Regional health, tourists, MSD prevention progress.

Publications

Social Sciences and Humanities Framework Report. Framing the research, development and design processes when building a prototype of a citizen-centred interoperable health-data exchange platform

Author(s): Felt Ulrike; Öchsner, Susanne; Rae, Robin
Published in: 2019
Publisher: -
DOI: 10.5281/zenodo.3334261

Using CEF Digital Service Infrastructures in the Smart4Health Project for the Exchange of Electronic Health Records

Author(s): Slosarek, Tamara; Wohlbrandt, Attila; Böttinger, Erwin
Published in: n.a., Issue n.a., 2019, Page(s) n.a.
Publisher: n.a.
DOI: 10.5281/zenodo.3552241

Crypto Bluebook

Author(s): D4L Data4life GGmbH
Published in: n.a., Issue 1, 2020, Page(s) n.a.
Publisher: n.a.
DOI: 10.5281/zenodo.3988429

Smart4Health Connector Documentation

Author(s): Mark Kirschbaum; Kevin Hübner; Thomas Harris; Felix Weißl
Published in: 2022
Publisher: -
DOI: 10.5281/zenodo.6782460

Physiosense User Guide

Author(s): Correia, Carolina; Pedrosa, Marisa; Popescu, Ina; Silva, Óscar; Costa, Ruben
Published in: 2022
Publisher: -
DOI: 10.5281/zenodo.7007284

Smart4Health Therapists Handbook

Author(s): Fábio Januário, Vasco Gomes, Maria Marques, Kerstin Neininger, Caroline Schulte, Tamara Gehlen, Nora Refai, Yannick Evertz
Published in: 2021
Publisher: Smart4Health consortium
DOI: 10.5281/zenodo.5471837

StudyU: a platform for designing and conducting innovative digital N-of-1 trials

Author(s): Konigorski, Stefan; Wernicke, Sarah; Slosarek, Tamara; Zenner, Alexander Maximilian; Strelow, Nils; Ruether, Darius Ferenc; Henschel, Florian; Manaswini, Manisha; Pottbäcker, Fabian; Edelman, Jonathan Antonio; Owoyele, Babajide; Danieletto, Matteo; Golden, Eddye; Zweig, Micol; Nadkarni, Girish N.; Bottinger, Erwin
Published in: Crossref, Issue 10, 2022
Publisher: National Library of Medicine
DOI: 10.48550/arxiv.2012.14201

Bio-data collection for a community adaptative work-life balance

Author(s): Fábio A. Seixas-Lopes, Carlos Lopes, Maria Marques, Carlos Agostinho
Published in: IFAC-PapersOnLine, Issue Volume 56, Issue 2, 2023, Page(s) 1502-1509, ISSN 2405-8963
Publisher: IFAC
DOI: 10.1016/j.ifacol.2023.10.1845

Citizens in Search for a Place in the Digital Health Data Space. A Case Study.

Author(s): Ulrike Felt, Susanne Oechsner, Robin Rae
Published in: dHealth 2022 - Proceedings of the 16th Health Informatics Meets Digital Health Conference, Issue Vol. 293, 2022, Page(s) 127-136, ISBN 9781643682822
Publisher: IOS Press
DOI: 10.3233/shti220359

Seamless Wearable Data Collection in a Mobile Environment

Author(s): Fábio Lopes, Carlos Lopes, Maria Marques, Carlos Agostinho
Published in: I-Esa 2022, 2022
Publisher: CEUR

Smarterization of Medical Device using a CPS approach.

Author(s): Fábio Januário, Carlos Lopes, Vasco Gomes, Maria Marques, Carlos Agostinho
Published in: I-ESA 2022, 2022
Publisher: CEUR

Innovative product/service for personalized health management

Author(s): Marques, Maria; Lopes, Fábio; Costa, Ruben; Agostinho, Carlos; Oliveria, Pedro; Jardim-Gonçalves, Ricardo
Published in: ASME 2019 International Mechanical Engineering Congress and Exposition (IMECE 2019), Issue 8-14 November, 2019, 2019
Publisher: ASME
DOI: 10.5281/zenodo.3607455

Sensor network integration for a medical device using CDG

Author(s): Vasco Delgado-Gomes, Fabio Januario, Nuno Vilhena, Maria Marques, Ricardo Jardim-Goncalves
Published in: 2019 IEEE International Symposium on Measurements & Networking (M&N), Issue 8 - 10 July, 2019, 2019, Page(s) 1-6, ISBN 978-1-7281-1273-2
Publisher: IEEE
DOI: 10.1109/IWMN.2019.8805010

Implementation and Evaluation of Personal Genetic Testing As Part of Genomics Analysis Courses in German Universities

Author(s): Tamara Slosarek, Susanne Ibing, Barbara Schormair, Henrike O. Heyne, Erwin P. Böttinger, Till F. M. Andlauer, Claudia Schurmann
Published in: BMC Medical Genomics, Issue 16, 2023, ISSN 1755-8794
Publisher: BioMed Central
DOI: 10.1186/s12920-023-01503-0

Leveraging the trust of nurses to advance a digital agenda in Europe: a critical review of health policy literature

Author(s): Paul De Raeve; Patricia M. Davidson; Franklin A. Shaffer; Eric Pol; Amit Kumar Pandey; Elizabeth Adams
Published in: Open Research Europe 2021, Issue 5, 2021, ISSN 2732-5121
Publisher: Open Research Europe
DOI: 10.12688/openreseurope.13231.2

Digital Therapeutic Care and Decision Support Interventions for People with Low Back Pain: Systematic Review.

Author(s): Lewkowicz D, Slosarek T, Wernicke S, Winne A, Wohlbrandt W, Bottinger E.
Published in: JMIR Rehabil Assist Technol., 2021, ISSN 1438-8871
Publisher: Journal of medical Internet Research
DOI: 10.2196/26612

Interoperability for EU DSM: Implementation of CEF building blocks in the Smart4Health project - success stories and lessons learned

Author(s): Kerstin Neininger; Tamara Slosarek; Claudia Marx; Attila Wohlbrandt; Murali Sukumaran; Wei Gu; Gabriel Sieglerschmid; Erwin Böttinger; Andreas Kremer
Published in: Crossref, Issue 11, 2023, ISSN 2046-1402
Publisher: F1000 Research Ltd.
DOI: 10.12688/f1000research.128648.1

Economic impact of clinical decision support interventions based on electronic health records.

Author(s): Erwin P. Boettinger; Erwin P. Boettinger; Attila Wohlbrandt; Daniel Lewkowicz
Published in: BMC Health Services Research, Vol 20, Iss 1, Pp 1-12 (2020), Issue 20, 2020, ISSN 1472-6963
Publisher: BioMed Central
DOI: 10.21203/rs.3.rs-30228/v3

The Making of Digital Health: Between Visions and Realizations

Author(s): Ulrike Felt, Susanne Öchsner, Robin Rae
Published in: University - Society – Industry (book series) Title of the book: Digitaler Humanismus, Issue Volume 9, annual, 2020, Page(s) 89-101, ISBN 978-3-8309-4278-8
Publisher: Waxmann GmbH (eds. Judith Fritz, Nino Tomaschek)

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