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DigitalHealthEurope: Support to a Digital Health and Care Innovation initiative in the context of Digital Single Market strategy

Periodic Reporting for period 1 - DigitalHealthEurope (DigitalHealthEurope: Support to a Digital Health and Care Innovation initiative in the context of Digital Single Market strategy)

Reporting period: 2019-01-01 to 2019-12-31

DigitalHealthEurope (DHE) supports the implementation of key aspects of the Communication on “enabling the digital transformation of health and care in the Digital Single Market; empowering citizens and building a healthier society” published in April 2018 (COM233 final). The support is organised around three main policy priorities: 1) citizens’ secure access to and sharing of health data across borders; 2) better data to advance research, disease prevention and personalised health and care; 3) digital tools for citizen empowerment and person-centred care.
To achieve these three priorities, the project work plan offers two forms of support: support to large scale deployment of digital solutions for person-centred integrated care and Support to DTHC innovation through collaboration in multi-stakeholder communities.
Each of the communities will work with key stakeholders to produce key DHE outcomes such as white papers, guidelines and policy recommendations.
1. The project has carried out a holistic approach on the identification of relevant digital solutions for person centred care and its analysis to facilitate awareness of candidate solutions for scaling up processes, impact assessment, and different support services to bridge the gap between demand and supply side. This included the development of an online catalogue of solutions to support better awareness, support services and scaling up; A series of cases of good practices have been supported in carrying out an impact assessment via the MAFEIP tool.
2. A twinning scheme was launched to support on-the-ground scaling up, implementation and knowledge transfer among EU regions and countries, focusing on digital innovative solutions addressing the three priorities. A twinning marketplace is available to support matchmaking between interested twinning originators and potential adopters. 14 twinnings are currently in the process of scaling up digital health and care solutions. Further twinnings are expected to be funded in early 2020.
3. A Capacity-Building Framework has been developed with the goal of producing guidance that will help to improve Member States’ national, regional and local care systems’ capacity to implement person centred, integrated care. The framework uses as basis the experience of the twinnings. A self-assessment survey for twinning adopters was developed to establish the baseline position with regards to their capacity building “demands” or requirements to adapt or adopt DH solutions that support person-centred integrated care.
4. A multi-stakeholder community “Citizens’ secure access to and sharing of health data across borders” was established, supported through a number of activities, including desk research to analyse the state-of-the-art of the most relevant initiatives related with the citizens’ secure access to their health data, and a survey to Member States to get their feedback on ongoing related initiatives and practices.
5. The project analysed European initiatives where citizens are directly in control of their personal data, such as health data cooperatives, with a dedicated Stakeholder Forum launched, inviting around 15 EU-wide experts actively participating in DHE dedicated sessions on several international events.
6. The project has delivered a “White paper on better utilisation of data infrastructures to support secondary uses of health data” which explores and makes initial recommendations on the common European Health Data Space. The White paper was created on basis of a systematic dialogue, supported by the priority 2 multi-stakeholder community through the number of activities, the most important being a webinar; the creation of an advisory group of 10 experts covering a whole range of specialties, from the federation of health data infrastructures, through data quality assessment, FAIR data and semantic interoperability, through to acceptable use and GDPR legal basis; the launch of a discussion space on the DHE collaboration platform, the organisation of a major “Joining the Dots” conference (November 27th-28th 2019 in Brussels)-
7. The project has contributed to advance personalised medicine through Mapping out relevant players involved in the secondary use of data and surveying regional and national initiatives and stakeholders in 27 member states. The bottlenecks in the data sharing and opportunities for EU action. The project eveloped a classification of countries based on their data sharing capacities and identified the best practices in the field of genomic sequencing at the European level.
8. DHE has documented and assessed a number of digital solutions, projects & initiatives in respect to the digital tools for citizen empowerment and for person-centred care. It has kicked off the multi-stakeholder community around citizen empowerment to facilitate that work. DHE is exploring the use of the persona approach to better shape the outcomes of the two key reports due in the second reporting period: a whitepaper on boosting active cooperation between patients and healthcare providers, and an empowerment roadmap.
9. The project consortium has been presented at key events that help to inform the project work, especially related to understanding the needs and recommendations of the different communities and stakeholders affected by the Communication. The outcomes of those meetings have already led to first policy recommendations, which are described in more detail in the WP7 section.
10. The project has produced the dissemination strategy and communication action plan together with the design, has launched the DigitalHealthEurope web portal and defined the visual identity and style guide. A myriad of dissemination activities have been organised through the standing Virtual Communication Office Team
The scope of the impact of DigitalHealthEurope focuses on key issues:
► Effective support to and engagement of stakeholders active on the third DTHC priority of the DSM, resulting in tangible impact from the beginning of the action and sustainably throughout its duration
► Functional collaboration platforms on key aspects of the three DTHC priorities of the DSM and instrumental contribution to the implementation of EU policy on DTHC in the context of the DSM
► Actionable strategic vision for EU policy on DTHC beyond 2020, incl. mobilisation of EU instruments
Impact performance indicators and targets are in place to ensure the project achieves the desired impact.The consortium has shown great dissemination and communication reach and has outperformed all of its dissemination targets. Plenty of events were organised in 2019, providing valuable input to the work of the different WPs.