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VALUE-BASED METHODOLOGY FOR INTEGRATED CARE SUPPORTED BY ICT

Periodic Reporting for period 1 - VALUECARE (VALUE-BASED METHODOLOGY FOR INTEGRATED CARE SUPPORTED BY ICT)

Período documentado: 2019-12-01 hasta 2021-05-31

Healthy ageing along with independent living have become key challenges for Europe as countries are experiencing growth in the number of older persons in their population. Several organisations have stressed the importance of the independence, participation and autonomy of older people to remain healthy and, consequently, to ensure their quality of life.

ValueCare will:
1. deliver efficient outcome-based integrated (health and social) care to older people facing cognitive impairment, frailty and multiple chronic health conditions in order to improve their quality of life (and of their families)
2. contribute to the sustainability of the health and social care systems in Europe
3. provide a secure, scalable and robust digital solution for integrated care

It will take into account the job satisfaction and the wellbeing of the health and social service providers, thus moving from the “Triple” to “Quadruple Aim”. The project’s digital solution will be tested and evaluated in 7 large-scale pilots in Europe following a sound methodology developed by the partners together with the end-users. ValueCare proposes greater efficiency in the use of resources and coordination of care in a setting that ensures trust of users and policy makers about data access, protection and sharing and standardisation that can be replicated in EU. The consortium, made up of 17 partners from 8 countries, led by the Erasmus University Medical Center, has been built to guarantee the full coverage of scientific, technological, clinical and social competencies, and to gather the viewpoint of different actors necessary to develop, test and evaluate the concepts, paradigms, protocols and interventions related to ValueCare. The multidisciplinary consortium includes stakeholders from the digital health and social care environment in order to maximize its chances of success.
The partners worked together to further detail the requirements for the ValueCare solutions. Because of COVID-19, the consortium applied new, safe ways of working together using online tools. There have been monthly online meetings for the full consortium in order to discuss the status and any issues that occurred. Additionally, there were scheduled and ‘ad-hoc’ work meetings within and between certain work packages to make progress. An External Advisory Board was established.

Regarding the development of new integrated care built on the value-based methodology, the following has been achieved: 1) a literature research to draft the value-based framework, 2) information is collected, using a co-creation approach, from all pilot sites to further define the value-based framework, 3) partners have collaborated in identifying all clerical and clinical data in the pilot sites that is needed for defining the ValueCare concept regarding ‘value-based working’, as well as the ICT requirements, 4) the engagement strategies and methodology to involve and recruit the target groups have been defined, and 5) co-design activities have been conducted in the pilot sites to collect information about the target group, the care pathways and to discuss the ValueCare concept with end-users.

With regard to the digital solution, the definition of the architecture and infrastructure points have been completed. In dialogue with all partners and local stakeholders, using a co-creation approach, it was planned that there will be three major components: 1) Virtual Coach, 2) Mobile Application and 3) Web Application. The definition and development of algorithms for the ValueCare implementation are in progress, a meeting with each pilot site took place or will be take place in the near future in order to together define the virtual coach dialogues and the algorithms needed. The cloud infrastructure for hosting the ValueCare solution is ready and finally, the mobile application development and implementation is in progress.

In relation to the pilot implementation, preparatory work, including the involvement of local stakeholders, has been conducted and is still ongoing by all pilot sites in order to be ready for the intervention foreseen to start 1 November 2021. Guidelines have been prepared for the pilot sites facilitating the adaptation of the general framework towards the local pilot site. The progress regarding the adaptation in the pilot sites vary, as the target groups and the impact of the pandemic differ.

To evaluate the effectiveness and implementation of ValueCare with the data that will be gathered in the pilot sites, an evaluation framework was designed. The effectiveness and implementation outcome measures were defined and individual pilot site meetings took place to discuss pilot specific questions and outcome measures for the evaluation. Finally, the baseline questionnaire for older persons, informal caregivers, health and social practitioners as well as organisational and ICT experts have been developed.

A dissemination and communication strategy was created that is mainly aimed at the general society, policy makers, service managers and non-recruited service users. A general project-wide website was created where information about the project, the pilots, but also blog items and news articles have been posted in the previous 18 months. Since January 2021, the website has been viewed 3,857 times by over 1,222 users from over 60 countries. Guidelines have been created regarding the visual representation of the project. A Twitter account, LinkedIn profile and podcast were created. Finally, animations were created to get a good idea about how the pilot sites work. Next to these project-wide activities, each partner has also carried out different activities, including participation in conferences/webinars/workshops, creating promotional materials for local distribution, and establishing local social media pages.

For the exploitation and innovation, there has been active collaboration between the work packages specifically regarding co-design activities, user requirements and technical specifications of the digital solution, stakeholder mapping and evaluation framework. Identification of relevant stakeholders (potential end-users and customers) is in progress.

The high importance of ethics and data protection was recognised: 1) the ValueCare Ethics Committee was established, 2) Ethical Management plan was developed, 3) Ethical Guidelines and Templates was developed, 4) Data Management Plan was developed, 5) three deliverables created (security measures, procedures to identify/recruit participants, and informed consent).
ValueCare exceeds in: (a) the implementation of ‘value-based’ working in integrated health and social care, as was developed by ICHOM, in order to put the preferences of the patients/clients central in the care process; (b) by applying of co-creation the involvement of patients/clients, health and social professionals, ICT technicians, managers and policy makers to ensure effective implementation and acceptance; (c) developing and implementing ICT solutions to support patients/clients, family members, informal care takers, and professionals; (d) involvement of specialists on business development from the start of the project; (e) an open and transparent approach with an active dissemination strategy. The consortium aims to increase quality of care at lower costs resulting in a positive socio-economic impact in participating countries and Europe as a whole.
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