Deliverables Documents, reports (14) CDSS requirements Report containing the specific CDSS requirements to comply with the requirements and need defined in WP2. These specifications will also contain the anonymized data sets from EHRs. Full clinical study validation results Clinical analysis the impact of PERSIST and the expected results of the clinical studies Detailed evaluation as a result of the four planned individual cocreation workshops M35 oncologist PRM nurses physiotherapists phycologists data manager to cross check the potential of the tool Application to other sectors and ensure the impact of the project CDSS evaluation report Report containing the formal evaluation and validation of the CDSS Dissemination and communication report year 3 Yearly reporting on the dissemination activities carried out by partnersUpdated Awareness Communication and Marketing Strategy Plan Final version of High Risk markers for patients' stratification This deliverable contains an updated version of D54 Data collection and usability clinical study results Patients will fulfil a usability questionnaire and clinical partners will evaluate how the lifestyle factors really intervene in the personalisation of the care plans that will support the technical activities of the project it will also contain the outcomes of the two clinical workshops per hospital are envisioned to gather this information and will involve patients M18 and M24 State of the art, requirements and personas definition Report including both the professionals and patients’ needs to reinforce the current best practices and the definition of the different potential users (Personas). It will define the methodology to ensure co-creation practices during the clinical studies. This report will be the starting point to define the project detailed technical specifications and architecture. High risk markers for patient stratification. The main outcome of cohort and trajectory analysis is to identify highrisk markers for detrimental treatment effects eg depression and anxiety disorder subsequent cancer disease and for metastatic cancer disease Dissemination and communication report year 1 and updated strategy plan for year 2 Yearly reporting on the dissemination activities carried out by partners. Updated Awareness, Communication and Marketing Strategy Plan Clinical study details Report containing the clinical study with common goals and the details for each local institution. It will include the informed consents in the different languages. Identification of best practices in cancer survivors’ follow-up Report including a full overview of the best practices in cancer survivors’ follow-up around Europe with particular attention to colorectal and breast cancer. The main challenge is to define an integrated pathway for the project execution that will be the starting point to guide and evaluate PERSIST impact on current practices. Dissemination and communication report year 2 and updated strategy plan for year 3 Yearly reporting on the dissemination activities carried out by partnersUpdated Awareness Communication and Marketing Strategy Plan Identification of clinical data repositories Identification of existing commercial or open datasets with clinical data that could be used during the project execution to feed the big data platform and artificial intelligence algorithms. Awareness, Communication and Marketing Strategy Plan A report including the strategic communication guidelines defining key target-groups, means, tools, responsible partners and timeline. It will be updated during the entire Project. Other (1) Big Data platform final release and evaluation report A document containing a list of test cases evaluating user group definition and performance indicators that will be used to provide meaningful results on the patients Websites, patent fillings, videos etc. (1) PERSIST project Online/Digital Presence Website and social networks. Publications Peer reviewed articles (8) Language, speech, and facial expression features for artificial intelligence–based detection of cancer survivors’ depression: scoping meta-review Author(s): SMRKE, Urška, MLAKAR, Izidor, LIN, Simon, MUSIL, Bojan, PLOHL, Nejc Published in: JMIR mental health, Issue vol. 8, no. 12, 2021, Page(s) 11, ISSN 2368-7959 Publisher: JMIR DOI: 10.2196/30439 Patients-centered SurvivorShIp care plan after Cancer treatments based on Big Data and Artificial Intelligence technologies (PERSIST): a multicenter study protocol to evaluate efficacy of digital tools supporting cancer survivors Author(s): Mlakar, Izidor; Lin, Simon; Aleksandraviča, Ilona; Arcimoviča, Krista; Eglītis, Jānis; Leja, Mārcis; Salgado Barreira, Ángel; Gómez, Jesús G.; Salgado, Mercedes; Mata, Jesús G.; Batorek, Doroteja; Horvat, Matej; Molan, Maja; Ravnik, Maja; Kaux, Jean-François; Bleret, Valérie; Loly, Catherine; Maquet, Didier; Sartini, Elena; Smrke, Urška Published in: Patients-centered SurvivorShIp care plan after Cancer treatments based on Big Data and Artificial Intelligence technologies (PERSIST): a multicenter study protocol to evaluate efficacy of digital tools supporting cancer survivors. <i>BMC medical informatics and decision making, 21</i>(1), 243. (2021)., Issue vol 21, no. 243, 2021, ISSN 1472-6947 Publisher: BioMed Central DOI: 10.1186/s12911-021-01603-w CASIDE: A data model for interoperable cancer survivorship information based on FHIR. Author(s): González-Castro, L., Cal-González, V. M., Del Fiol, G., & López-Nores, M. Published in: Journal of biomedical informatics, Issue monthly, 2021, Page(s) 103953, ISSN 1532-0464 Publisher: Academic Press DOI: 10.1016/j.jbi.2021.103953 Multilingual conversational systems to drive the collection of patient-reported outcomes and integration into clinical workflows Author(s): MLAKAR, Izidor, ŠAFRAN, Valentino, HARI, Daniel, ROJC, Matej, ALANKUS, Gazihan, PEREZ, Rafael, ARIOZ, Umut Published in: Symmetry, Issue 13(7), 2021, Page(s) 1187, ISSN 2073-8994 Publisher: Multidisciplinary Digital Publishing Institute (MDPI) DOI: 10.3390/sym13071187 Agent-based Modeling for Ontology-driven Analysis of Patient Trajectories Author(s): Davide Calvaresi, Michael Schumacher, Jean-Paul Calbimonte Published in: Journal of Medical Systems, Issue 44/9, 2020, ISSN 0148-5598 Publisher: Kluwer Academic/Plenum Publishers DOI: 10.1007/s10916-020-01620-8 Multilingual Conversational Systems to Drive the Collection of PROs andIntegration into Clinical Workflow Author(s): Daniel Hari, Valentino Šafran, Umut Arioz, Izidor Mlakar, Matej Rojc, Gazihan Alankus, Rafael Perez Luna Published in: WSEAS Transactions on Biology and Biomedicine, Issue 18, 2021, Page(s) 113-118, ISSN 1109-9518 Publisher: World Scientific and Engineering Academy and Society DOI: 10.37394/23208.2021.18.13 Cohort and Trajectory Analysis in Multi-Agent Support Systems for Cancer Survivors Author(s): Gaetano Manzo, Davide Calvaresi, Oscar Jimenez-del-Toro, Jean-Paul Calbimonte, Michael Schumacher Published in: Journal of Medical Systems, Issue 45(12), 2021, ISSN 1573-689X Publisher: Springer DOI: 10.1007/s10916-021-01770-3 Will Big Data and personalized medicine do the gender dimension justice? Author(s): Antonio Carnevale, Emanuela A. Tangari, Andrea Iannone, Elena Sartini Published in: AI & SOCIETY, Issue 01/06/2021, 2021, ISSN 0951-5666 Publisher: Springer Verlag DOI: 10.1007/s00146-021-01234-9 Conference proceedings (4) PERSIST Sensing Network: A Multimodal Sensing Network Architecture For Collection of Patient-Generated Health Data In The Clinical Workflow Author(s): ŠAFRAN, Valentino, HARI, Daniel, ARIOZ, Umut, MLAKAR, Izidor Published in: Electrical, Computer, Communications and Mechatronics Engineering (ICECCME), International Conference on, Issue 7-8 Oct. 2021, 2021, Page(s) 1-6, ISBN 978-1-6654-1262-9 Publisher: IEEE DOI: 10.1109/iceccme52200.2021.9591125 Decentralized Management of Patient Profiles and Trajectories through Semantic Web Agents Author(s): Jean-Paul Calbimonte, Davide Calvaresi, Michael Schumacher Published in: Proceedings of the Third International Workshop on Semantic Web Meets Health Data Management (SWH 2020) co-located with the 19th International Semantic Web Conference (ISWC 2020), 2020, Page(s) 19-29 Publisher: CEUR-WS.org The Future of Applications For Clinical Decision Support Systems in Healthcare. Case Study: H2020 PERSIST Project Author(s): Umut ARIÖZ, Barış YILDIZ, R. Alp KUT, İbrahim Tolga AĞIM, Kadir ÜĞÜDÜCÜ Published in: Izmir Democracy University, International Engineering Symposium(IES'20), Proceedings Abstract Book, Issue December 2020, 2020, Page(s) 157-158, ISBN 978-605-74811-0-8 Publisher: International Izmir Democracy University Engineering Symposium Optimization of pre analytical conditions for unbiased isolation of Circulating Tumour Cells Author(s): LR Pires, A Carneiro, C Lopes, T Pesqueira, P Piairo and L Diéguez Published in: 2021 Publisher: EURO NANOFORUM Book chapters (4) Big data e machine learning in medicina: qual è il confine tra efficacia e calamità? Author(s): Emanuela A. Tangari Published in: La condizione tecno-umana tra eccesso ed eccedenza, 2021, Page(s) 307-320, ISBN 9788837235413 Publisher: Morcelliana Can Turn-Taking Highlight the Nature of Non-Verbal Behavior: A Case Study Author(s): Izidor Mlakar, Matej Rojc, Darinka Verdonik, Simona Majhenič Published in: Types of Nonverbal Communication [Working Title], 2021 Publisher: IntechOpen DOI: 10.5772/intechopen.95516 Digital intervention for sustainable PROMs/PREMs for personalized care and interventions to increase quality of life for cancer survivors Author(s): MLAKAR, Izidor, MUSIL, Bojan, ROJC, Matej, HORVAT, Matej, RAVNIK, Maja, SMRKE, Urška Published in: Philosophical news, Issue no. 22, 2021, Page(s) 33-49, ISSN 2037-6707 Publisher: Mimesis Journals DOI: 10.7413/2039-7194120 A New Approach for Dynamic and Risk-Based Data Anonymization Author(s): Lilian Adkinson Orellana, Pablo Dago Casas, Marta Sestelo, Borja Pintos Castro Published in: 13th International Conference on Computational Intelligence in Security for Information Systems (CISIS 2020), Issue 1267, 2021, Page(s) 327-336, ISBN 978-3-030-57804-6 Publisher: Springer International Publishing DOI: 10.1007/978-3-030-57805-3_31 Other (3) Quality of life dimensions in clinical care of breast cancer survivors : a Delphy study Author(s): SMRKE, Urška, MLAKAR, Izidor, TEMENT, Sara, LIN, S.-X., DIÉGUEZ, Lorena, CHAVEZ, Marcela, HORVAT, Matjaž, RAVNIK, Maja, ALEKSANDRAVIČA, Ilona, SALGADO FERNÁNDEZ, M Published in: EHPS 2021 : book of abstracts, Issue August 23 – August 27, 2021, 2021, Page(s) 244 Publisher: Easy Conferences Ltd. The Dichotomy Between Data Ownership and Data Utilization: Using Personal Data for the Greater Good Author(s): Simon Lin, MD Published in: Philosophical News, Issue 22 – June 2021, 2021, Page(s) Pages: 51-64, ISBN 9788869773877 Publisher: MIMESIS DOI: 10.7413/2039-7194121 Mednarodni projekt za iskanje pametnih rešitev v podporo bolnikom po zdravljenju raka. Naša bolnišnica Author(s): Molan Maja, Batorek Doroteja Published in: Issue 2020, vol XXI, no. 1-2, 2020, Page(s) 7 Publisher: University Clinical Center Maribor Monographic books (1) Ethics, Health Data and Bio-Citizenship (Special Issue) Author(s): AA.VV, edited by Antonio Carnevale, Emanuela Tangari Published in: PhilosophicalNews, Issue 22/06/2022, 2021, ISBN 9788869773877 Publisher: Mimesis International Searching for OpenAIRE data... There was an error trying to search data from OpenAIRE No results available
