Patients-centered SurvivorShIp care plan after Cancer treatments based on Big Data and Artificial Intelligence technologies

Deliverables

Documents, reports (7)

CDSS requirements

Report containing the specific CDSS requirements to comply with the requirements and need defined in WP2. These specifications will also contain the anonymized data sets from EHRs.

State of the art, requirements and personas definition

Report including both the professionals and patients’ needs to reinforce the current best practices and the definition of the different potential users (Personas). It will define the methodology to ensure co-creation practices during the clinical studies. This report will be the starting point to define the project detailed technical specifications and architecture.

Dissemination and communication report year 1 and updated strategy plan for year 2

Yearly reporting on the dissemination activities carried out by partners. Updated Awareness, Communication and Marketing Strategy Plan

Clinical study details

Report containing the clinical study with common goals and the details for each local institution. It will include the informed consents in the different languages.

Identification of best practices in cancer survivors’ follow-up

Report including a full overview of the best practices in cancer survivors’ follow-up around Europe with particular attention to colorectal and breast cancer. The main challenge is to define an integrated pathway for the project execution that will be the starting point to guide and evaluate PERSIST impact on current practices.

Identification of clinical data repositories

Identification of existing commercial or open datasets with clinical data that could be used during the project execution to feed the big data platform and artificial intelligence algorithms.

Awareness, Communication and Marketing Strategy Plan

A report including the strategic communication guidelines defining key target-groups, means, tools, responsible partners and timeline. It will be updated during the entire Project.

Websites, patent fillings, videos etc. (1)

PERSIST project Online/Digital Presence

Website and social networks.

Publications

Peer reviewed articles (8)

Language, speech, and facial expression features for artificial intelligence–based detection of cancer survivors’ depression: scoping meta-review

Author(s): SMRKE, Urška, MLAKAR, Izidor, LIN, Simon, MUSIL, Bojan, PLOHL, Nejc
Published in: JMIR mental health, vol. 8, no. 12, 2021, Page(s) 11, ISSN 2368-7959
Publisher: JMIR
DOI: 10.2196/30439

Patients-centered SurvivorShIp care plan after Cancer treatments based on Big Data and Artificial Intelligence technologies (PERSIST): a multicenter study protocol to evaluate efficacy of digital tools supporting cancer survivors

Author(s): Mlakar, Izidor; Lin, Simon; Aleksandraviča, Ilona; Arcimoviča, Krista; Eglītis, Jānis; Leja, Mārcis; Salgado Barreira, Ángel; Gómez, Jesús G.; Salgado, Mercedes; Mata, Jesús G.; Batorek, Doroteja; Horvat, Matej; Molan, Maja; Ravnik, Maja; Kaux, Jean-François; Bleret, Valérie; Loly, Catherine; Maquet, Didier; Sartini, Elena; Smrke, Urška
Published in: Patients-centered SurvivorShIp care plan after Cancer treatments based on Big Data and Artificial Intelligence technologies (PERSIST): a multicenter study protocol to evaluate efficacy of digital tools supporting cancer survivors. <i>BMC medical informatics and decision making, 21</i>(1), 243. (2021)., vol 21, no. 243, 2021, ISSN 1472-6947
Publisher: BioMed Central
DOI: 10.1186/s12911-021-01603-w

CASIDE: A data model for interoperable cancer survivorship information based on FHIR.

Author(s): González-Castro, L., Cal-González, V. M., Del Fiol, G., & López-Nores, M.
Published in: Journal of biomedical informatics, monthly, 2021, Page(s) 103953, ISSN 1532-0464
Publisher: Academic Press
DOI: 10.1016/j.jbi.2021.103953

Multilingual conversational systems to drive the collection of patient-reported outcomes and integration into clinical workflows

Author(s): MLAKAR, Izidor, ŠAFRAN, Valentino, HARI, Daniel, ROJC, Matej, ALANKUS, Gazihan, PEREZ, Rafael, ARIOZ, Umut
Published in: Symmetry, 13(7), 2021, Page(s) 1187, ISSN 2073-8994
Publisher: Multidisciplinary Digital Publishing Institute (MDPI)
DOI: 10.3390/sym13071187

Agent-based Modeling for Ontology-driven Analysis of Patient Trajectories

Author(s): Davide Calvaresi, Michael Schumacher, Jean-Paul Calbimonte
Published in: Journal of Medical Systems, 44/9, 2020, ISSN 0148-5598
Publisher: Kluwer Academic/Plenum Publishers
DOI: 10.1007/s10916-020-01620-8

Multilingual Conversational Systems to Drive the Collection of PROs andIntegration into Clinical Workflow

Author(s): Daniel Hari, Valentino Šafran, Umut Arioz, Izidor Mlakar, Matej Rojc, Gazihan Alankus, Rafael Perez Luna
Published in: WSEAS Transactions on Biology and Biomedicine, 18, 2021, Page(s) 113-118, ISSN 1109-9518
Publisher: World Scientific and Engineering Academy and Society
DOI: 10.37394/23208.2021.18.13

Cohort and Trajectory Analysis in Multi-Agent Support Systems for Cancer Survivors

Author(s): Gaetano Manzo, Davide Calvaresi, Oscar Jimenez-del-Toro, Jean-Paul Calbimonte, Michael Schumacher
Published in: Journal of Medical Systems, 45(12), 2021, ISSN 1573-689X
Publisher: Springer
DOI: 10.1007/s10916-021-01770-3

Will Big Data and personalized medicine do the gender dimension justice?

Author(s): Antonio Carnevale, Emanuela A. Tangari, Andrea Iannone, Elena Sartini
Published in: AI & SOCIETY, 01/06/2021, 2021, ISSN 0951-5666
Publisher: Springer Verlag
DOI: 10.1007/s00146-021-01234-9

Conference proceedings (4)

PERSIST Sensing Network: A Multimodal Sensing Network Architecture For Collection of Patient-Generated Health Data In The Clinical Workflow

Author(s): ŠAFRAN, Valentino, HARI, Daniel, ARIOZ, Umut, MLAKAR, Izidor
Published in: Electrical, Computer, Communications and Mechatronics Engineering (ICECCME), International Conference on, 7-8 Oct. 2021, 2021, Page(s) 1-6, ISBN 978-1-6654-1262-9
Publisher: IEEE
DOI: 10.1109/iceccme52200.2021.9591125

Decentralized Management of Patient Profiles and Trajectories through Semantic Web Agents

Author(s): Jean-Paul Calbimonte, Davide Calvaresi, Michael Schumacher
Published in: Proceedings of the Third International Workshop on Semantic Web Meets Health Data Management (SWH 2020) co-located with the 19th International Semantic Web Conference (ISWC 2020), 2020, Page(s) 19-29
Publisher: CEUR-WS.org

The Future of Applications For Clinical Decision Support Systems in Healthcare. Case Study: H2020 PERSIST Project

Author(s): Umut ARIÖZ, Barış YILDIZ, R. Alp KUT, İbrahim Tolga AĞIM, Kadir ÜĞÜDÜCÜ
Published in: Izmir Democracy University, International Engineering Symposium(IES'20), Proceedings Abstract Book, December 2020, 2020, Page(s) 157-158, ISBN 978-605-74811-0-8
Publisher: International Izmir Democracy University Engineering Symposium

Optimization of pre analytical conditions for unbiased isolation of Circulating Tumour Cells

Author(s): LR Pires, A Carneiro, C Lopes, T Pesqueira, P Piairo and L Diéguez
Published in: 2021
Publisher: EURO NANOFORUM

Book chapters (4)

Big data e machine learning in medicina: qual è il confine tra efficacia e calamità?

Author(s): Emanuela A. Tangari
Published in: La condizione tecno-umana tra eccesso ed eccedenza, 2021, Page(s) 307-320, ISBN 9788837235413
Publisher: Morcelliana

Can Turn-Taking Highlight the Nature of Non-Verbal Behavior: A Case Study

Author(s): Izidor Mlakar, Matej Rojc, Darinka Verdonik, Simona Majhenič
Published in: Types of Nonverbal Communication [Working Title], 2021
Publisher: IntechOpen
DOI: 10.5772/intechopen.95516

Digital intervention for sustainable PROMs/PREMs for personalized care and interventions to increase quality of life for cancer survivors

Author(s): MLAKAR, Izidor, MUSIL, Bojan, ROJC, Matej, HORVAT, Matej, RAVNIK, Maja, SMRKE, Urška
Published in: Philosophical news, no. 22, 2021, Page(s) 33-49, ISSN 2037-6707
Publisher: Mimesis Journals
DOI: 10.7413/2039-7194120

A New Approach for Dynamic and Risk-Based Data Anonymization

Author(s): Lilian Adkinson Orellana, Pablo Dago Casas, Marta Sestelo, Borja Pintos Castro
Published in: 13th International Conference on Computational Intelligence in Security for Information Systems (CISIS 2020), 1267, 2021, Page(s) 327-336, ISBN 978-3-030-57804-6
Publisher: Springer International Publishing
DOI: 10.1007/978-3-030-57805-3_31

Other (3)

Quality of life dimensions in clinical care of breast cancer survivors : a Delphy study

Author(s): SMRKE, Urška, MLAKAR, Izidor, TEMENT, Sara, LIN, S.-X., DIÉGUEZ, Lorena, CHAVEZ, Marcela, HORVAT, Matjaž, RAVNIK, Maja, ALEKSANDRAVIČA, Ilona, SALGADO FERNÁNDEZ, M
Published in: EHPS 2021 : book of abstracts, August 23 – August 27, 2021, 2021, Page(s) 244
Publisher: Easy Conferences Ltd.

The Dichotomy Between Data Ownership and Data Utilization: Using Personal Data for the Greater Good

Author(s): Simon Lin, MD
Published in: Philosophical News, 22 – June 2021, 2021, Page(s) Pages: 51-64, ISBN 9788869773877
Publisher: MIMESIS
DOI: 10.7413/2039-7194121

Mednarodni projekt za iskanje pametnih rešitev v podporo bolnikom po zdravljenju raka. Naša bolnišnica

Author(s): Molan Maja, Batorek Doroteja
Published in: 2020, vol XXI, no. 1-2, 2020, Page(s) 7
Publisher: University Clinical Center Maribor

Monographic books (1)

Ethics, Health Data and Bio-Citizenship (Special Issue)

Author(s): AA.VV, edited by Antonio Carnevale, Emanuela Tangari
Published in: PhilosophicalNews, 22/06/2022, 2021, ISBN 9788869773877
Publisher: Mimesis International