Public participation by other means? Informal practices to engage with matters of collective concern in non-democratic settings

Project Information

InPart

Grant agreement ID: 948073

DOI

10.3030/948073

EC signature date 17 December 2020

Start date 1 January 2021

End date 31 August 2026

Funded under

• EXCELLENT SCIENCE - European Research Council (ERC)

Total cost

€ 1 499 510,00

EU contribution

€ 1 499 510,00

Coordinated by

UNIVERSITEIT MAASTRICHT
Netherlands

CORDIS provides links to public deliverables and publications of HORIZON projects.

Links to deliverables and publications from FP7 projects, as well as links to some specific result types such as dataset and software, are dynamically retrieved from OpenAIRE .

Publications

Peer reviewed articles (13)

Patient engagement in drug development: configuring a new resource for generating innovati

Author(s): Olga Zvonareva
Published in: Critical Public Health, 2023, ISSN 1469-3682
Publisher: Taylor and Francis
DOI: 10.1080/09581596.2023.2188140

Participation in Times of War: The Ambivalence of Digital Media

Author(s): Olga Zvonareva
Published in: Social Inclusion, Issue 13, 2025, ISSN 2183-2803
Publisher: Cogitatio
DOI: 10.17645/si.9128

Patient engagement in drug development: dialogically problematizing participation

Author(s): Claudia Egher, Tamás Bereczky, Lisbeth Snede, Olga Zvonareva
Published in: Science as Culture, Issue 34, 2025, Page(s) 31-51, ISSN 0950-5431
Publisher: Free Association Books
DOI: 10.1080/09505431.2024.2410719

Entangled Positionality: Researchers’ Everyday Practices Amidst Coronavirus, War, and Parenting

Author(s): Vlas Nikulkin, Olga Zvonareva
Published in: The Qualitative Report, 2024, ISSN 2160-3715
Publisher: Nova Southeastern University
DOI: 10.46743/2160-3715/2024.6479

Speaking of Epistemic Injustice: A Reply

Author(s): Marieke Janne Hopman, Guleid Ahmed Jama, Olga Zvonareva, Arturs Holavins, Anonymous
Published in: Journal of Human Rights Practice, 2023, ISSN 1757-9627
Publisher: Oxford Academic
DOI: 10.1093/jhuman/huad019

Standardising Patient Engagement in Drug Development: The Emerging, yet Already Noteworthy Case of Patient Focused Medicines Development (PFMD) and its Materials

Author(s): Claudia Egher, Olga Zvonareva
Published in: Science and Technology Studies, 2024, ISSN 2243-4690
Publisher: The Finnish Society for Science and Technology Studies
DOI: 10.23987/sts.121487

Knowledge-based representation: Patient engagement in drug development

Author(s): Claudia Egher, Olga Zvonareva
Published in: Health Expectations, 2024, ISSN 1369-7625
Publisher: John Wiley & Sons Ltd
DOI: 10.1111/hex.13912

“We Know Best Because Our Skin Is in the Game”: Doing Politics Through DIY Pharmaceuticals

Author(s): Natasa Stoli, Klasien Horstman, Olga Zvonareva
Published in: Social Inclusion, Issue 13, 2025, ISSN 2183-2803
Publisher: Cogitatio
DOI: 10.17645/si.9037

Practices of patient engagement in drug development: a systematic scoping review

Author(s): Zvonareva, O., Craveț, C. & Richards, D.P.
Published in: Research Involvement and Engagement, 2022, ISSN 2056-7529
Publisher: BMC
DOI: 10.1186/s40900-022-00364-8

The Trading Zones of Patient Participation: Public Issue Formation in Nondemocratic Situations

Author(s): Vlas Nikulkin, Olga Zvonareva
Published in: Science, Technology, & Human Values, Issue 50, 2025, Page(s) 772-796, ISSN 0162-2439
Publisher: SAGE Publications
DOI: 10.1177/01622439241253943

Ecologising Invited and Uninvited Patient Participation in Russia

Author(s): Vlas Nikulkin, Yan Vlasov, Olga Zvonareva
Published in: Health Expectations, Issue 27, 2024, ISSN 1369-6513
Publisher: Blackwell Publishing Inc.
DOI: 10.1111/hex.14150

Formatting patient knowledge and channelling participation: how patient organisations work under authoritarianism

Author(s): Arturs Holavins
Published in: Biosocieties, 2024, ISSN 1745-8560
Publisher: Palgrave Macmillan
DOI: 10.1057/s41292-023-00316-9

Reflections on fluidity and stability: a look at the formality vs informality debate

Author(s): Olga Zvonareva, Arturs Holavins
Published in: International Journal of Sociology and Social Policy, 2023, ISSN 0144-333X
Publisher: Barmarick Publications
DOI: 10.1108/ijssp-05-2023-0112

Non-peer reviewed articles (1)

Ambivalence and Agonism of Public Participation in Contemporary Societies

Author(s): Olga Zvonareva, Claudia Egher
Published in: Social Inclusion, Issue 13, 2025, ISSN 2183-2803
Publisher: Cogitatio
DOI: 10.17645/si.10095