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European Rare dIsease research Coordination and support Action

Project description

DEENESFRITPL

Supporting therapies for patients suffering from rare diseases

Rare diseases affect no more than 1 person in 2000, however collectively they affect 30 million people in the EU. In the area of rare diseases, knowledge exchange and research within the EU and international collaboration is indispensable. The EU-funded ERICA consortium, in which all 24 European Reference Networks (ERNs) take part, aims at building on the strength of the individual ERNs to create a platform that integrates all ERNs’ research and innovation capacity. Its overall aim is to create new intra- and inter-ERN rare disease competitive networks and establish effective data collection strategies. It will also explore ways to improve patient involvement and enhance the quality and impact of clinical trials.

Objective

Rare diseases are defined as diseases that affect not more than 1 person per 2000 in the European population. While individual rare diseases affect only a small percentage of the population, they collectively affect up to 30 million people in the EU. To facilitate access to high quality cross-border healthcare and promote and foster cooperation on rare disease healthcare between member states, 24 European Reference Networks (ERN) are currently active. The aim of the ERICA consortium, in which all 24 ERNs take part, is to build on the strength of the individual ERNs and create a platform that integrates all ERN’s research and innovation capacity. Through knowledge sharing, engagement with stakeholders in the rare disease domain and assembly of transdisciplinary research groups working across the global health spectrum ERICA strives to reach the following goals: • new intra- and inter-ERN rare disease competitive networks; • effective data collection strategies; • better patient involvement; • enhanced quality and impact of clinical trials; • increased awareness of ERN’s innovation potential; Through integration of ERN research activities, outreach to European research infrastructures to synergistically increase impact and innovation ERICA will strengthen the research and innovation capacity of the ERNs. This will result in safe, accessible and efficient access of therapies for the benefit of patients suffering from rare diseases and conditions.

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Programme(s)

Topic(s)

Call for proposal

H2020-SC1-BHC-2018-2020

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Sub call

H2020-SC1-2020-Single-Stage-RTD

Funding Scheme

CSA - Coordination and support action

Coordinator

ACADEMISCH ZIEKENHUIS LEIDEN
Net EU contribution
€ 501 000,00
Address
Albinusdreef 2
2333 ZA Leiden
Netherlands

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Region
West-Nederland Zuid-Holland Agglomeratie Leiden en Bollenstreek
Activity type
Higher or Secondary Education Establishments
Links
Other funding
€ 0,00

Participants (26)

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EC signature date 15 January 2021
Last update: 23 July 2023

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Permalink: https://cordis.europa.eu/project/id/964908

European Union, 2023