Objective The current study aims at developing and testing methods that can be used in European countries to assess the quality of life of children with disabilities and their families, focussing on the development of health condition specific assessments. This is deemed necessary to identify needs and evaluate interventions with regards to those needs on a national and a European level. The project will develop a modular assessment instrument for children/adolescents suffering from asthma, severe spinal cord affections and one of the following conditions: epilepsy, diabetes, arthritis and skin diseases. This instrument will be tested in 1.260 children and will be delaminated for implementation in clinical settings. It is expected that the availability of this tool will help patients to express their views and needs for care and will guide care givers in planning, improving and evaluating their care. Fields of science medical and health sciencesbasic medicineneurologyepilepsymedical and health sciencesclinical medicinepneumologyasthmamedical and health sciencesclinical medicinerheumatologymedical and health sciencesclinical medicineendocrinologydiabetes Programme(s) FP5-LIFE QUALITY - Specific Programme for research, technological development and demonstration on "Quality of life and management of living resources", 1998-2002 Topic(s) 1.1.1.-11. - Research relating to the persons with disabilities Call for proposal Data not available Funding Scheme CSC - Cost-sharing contracts Coordinator UNIVERSITY OF HAMBURG Address Martinistraße 52 20246 Hamburg Germany See on map EU contribution € 0,00 Participants (7) Sort alphabetically Sort by EU Contribution Expand all Collapse all ARISTOTLE UNIVERSITY OF THESSALONIKI Greece EU contribution € 0,00 Address Konstantinoypoleos 49 - hippocratio hospital 54642 Thessaloniki See on map LEIDEN UNIVERSITY Netherlands EU contribution € 0,00 Address 72,rapenburg 70 2311 EZ Leiden See on map LUND UNIVERSITY Sweden EU contribution € 0,00 Address Lasarettet 221 85 Lund See on map PUBLIC UNIVERSITY HOSPITAL SYSTEM OF MARSEILLE France EU contribution € 0,00 Address 27, bd jean moulin - faculte de medecine 13385 Marseille See on map UNIVERSITY OF EDINBURGH United Kingdom EU contribution € 0,00 Address Morningside park royal edinburgh hospital EH10 5HF Edinburgh See on map UNIVERSITY OF LUEBECK Germany EU contribution € 0,00 Address Ratzeburger allee 160 23538 Luebeck See on map UNIVERSITY OF VIENNA Austria EU contribution € 0,00 Address Wahringer gurtel 18-20 1010 Wien See on map
